Peter Jacoby

Biochemistry, Genetics and Molecular BiologyPsychologyMedicine

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 100%percentile

0Author DataRank

Indexed papers

1in pilot corpus

datarank_citation_only_1hop_v6· scope data_onlyMethodology

Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 1 indexed paper attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Beyond Seizures as an Outcome Measure: A Global Severity Scoring System for CDKL5 Deficiency Disorder

Brain and Behavior(2025)10.1002/brb3.71061

Top 100%

0DataRank

Top 100%0 citations

Eric D. Marsh, Scott Demarest, Jacinta Saldaris, Helen Leonard, Heather E. Olson +9 more

Papers

Driven by 14 papers — median percentile 0. Top paper: “Content Validation of Clinician-Reported Items for a Severity Measure for CDKL5 Deficiency Disorder”.

Content Validation of Clinician-Reported Items for a Severity Measure for CDKL5 Deficiency Disorder

Journal of Child Neurology(2021)10.1177/08830738211019576

N/A

0DataRank · unranked

27 citations

Judith Weisenberg, Elia Pestana‐Knight, Eric D. Marsh, Bernhard Suter, Rajsekar R. Rajaraman +10 more

Negative impact of insomnia and daytime sleepiness on quality of life in individuals with the cyclin‐dependent kinase‐like 5 deficiency disorder

Journal of Sleep Research(2022)10.1111/jsr.13600

N/A

0DataRank · unranked

17 citations

Peter Jacoby, Jacinta Saldaris, Helen Leonard, Tim A. Benke, Eric D. Marsh +2 more

Devising a Missing Data Rule for a Quality of Life Questionnaire—A Simulation Study

Journal of Developmental & Behavioral Pediatrics(2022)10.1097/dbp.0000000000001061

N/A

0DataRank · unranked

3 citations

Andrew Whitehouse, Helen Leonard, Jacinta Saldaris, Scott Demarest, Tim Benke +2 more

Validating the Communication and Symbolic Behavior Scales–Developmental Profile Infant–Toddler Checklist (CSBS–DP ITC) Beyond Infancy in the CDKL5 Deficiency Disorder

Journal of Autism and Developmental Disorders(2023)10.1007/s10803-023-06002-w

N/A

0DataRank · unranked

13 citations

Helen Leonard, Kingsley J. H. Wong, Peter Jacoby, Mary Spence, Eric D. Marsh +4 more

Psychometric properties of QI-Disability in CDKL5 Deficiency Disorder: Establishing readiness for clinical trials

Epilepsy & Behavior(2023)10.1016/j.yebeh.2022.109069

N/A

0DataRank · unranked

10 citations

Peter Jacoby, Helen Leonard, Tim A. Benke, Scott Demarest, Eric D. Marsh +2 more

The development, content and response process validation of a caregiver-reported severity measure for CDKL5 deficiency disorder

Epilepsy Research(2023)10.1016/j.eplepsyres.2023.107231

N/A

0DataRank · unranked

8 citations

Alexandra T. Mackie, Jacinta Saldaris, Helen Leonard, Peter Jacoby, Eric D. Marsh +11 more

Communication of individuals with CDKL5 deficiency disorder as observed by caregivers: A descriptive qualitative study

American Journal of Medical Genetics Part A(2024)10.1002/ajmg.a.63570

N/A

0DataRank · unranked

9 citations

Sofia Benson‐Goldberg, Jacinta Saldaris, Judy Lariviere, Helen Leonard, Eric D. Marsh +5 more

Adapting a measure of gross motor skills for individuals with CDKL5 deficiency disorder: A psychometric study

Epilepsy Research(2024)10.1016/j.eplepsyres.2024.107287

N/A

0DataRank · unranked

7 citations

Peter Jacoby, Eric D. Marsh, Bernhard Suter, Helen Leonard, Heather E. Olson +9 more

Parent‐reported outcome measures evaluating communication in individuals with rare neurodevelopmental disorders: A systematic review

International Journal of Language & Communication Disorders(2024)10.1111/1460-6984.13100

N/A

0DataRank · unranked

5 citations

Jeremiah Ayalde, Samali Kankanange, Jessica Keeley, Helen Leonard, Peter Jacoby +5 more

Psychometric evaluation of clinician‐ and caregiver‐reported clinical severity assessments for individuals with CDKL5 deficiency disorder

Epilepsia(2024)10.1111/epi.18094

N/A

0DataRank · unranked

5 citations

Peter Jacoby, Jenny Downs, Eric D. Marsh, Helen Leonard, Elia Pestana‐Knight +10 more

Modification of a parent-report sleep scale for individuals with CDKL5 deficiency disorder: a psychometric study

Journal of Clinical Sleep Medicine(2024)10.5664/jcsm.11244

N/A

0DataRank · unranked

4 citations

Scott Demarest, Peter Jacoby, Heather E. Olson, Kiran Maski, Elia Pestana‐Knight +9 more

Parent/caregiver perspectives of meaningful improvement in functional domains for people with CDKL5 deficiency disorder: a mixed-methods study

Quality of Life Research(2025)10.1007/s11136-025-04048-0

N/A

0DataRank · unranked

3 citations

Zoe Skoda, Karen Utley, Eric D. Marsh, Gabrielle Conecker, JayEtta Hecker +9 more

Content Validation of the Communication Inventory Disability–Observer Reported (CID-OR)

Journal of Child Neurology(2025)10.1177/08830738251369138

N/A

0DataRank · unranked

1 citations

Jacinta Saldaris, Sofia Benson‐Goldberg, Judy Lariviere, Helen Leonard, Eric D. Marsh +5 more

Beyond Seizures as an Outcome Measure: A Global Severity Scoring System for CDKL5 Deficiency Disorder

Brain and Behavior(2025)10.1002/brb3.71061

Top 100%

0DataRank

Top 100%0 citations

Eric D. Marsh, Scott Demarest, Jacinta Saldaris, Helen Leonard, Heather E. Olson +9 more

Peter Jacoby

Indexed papers

Top data-sharing exemplar

Papers