🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Domenica Taruscio

Istituto Superiore di Sanità

ORCID: 0000-0001-5403-233X
Biochemistry, Genetics and Molecular BiologyEconomics, Econometrics and FinanceMedicine

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 1%percentile
11.5Author DataRank

Indexed papers

1in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 1 indexed paper attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

RD-Connect: An Integrated Platform Connecting Databases, Registries, Biobanks and Clinical Bioinformatics for Rare Disease Research

Journal of General Internal Medicine(2014)10.1007/s11606-014-2908-8
Top 1%
11.5DataRank
Top 1%199 citations

Louise Johnston, Domenica Taruscio, Lucia Monaco, Christophe Béroud, Manaswi Gupta +18 more

Papers

Driven by 6 papers — median percentile 99. Top paper: “RD-Connect: An Integrated Platform Connecting Databases, Registries, Biobanks and Clinical Bioinformatics for Rare Disease Research”.

RD-Connect: An Integrated Platform Connecting Databases, Registries, Biobanks and Clinical Bioinformatics for Rare Disease Research

Journal of General Internal Medicine(2014)10.1007/s11606-014-2908-8
Top 1%
11.5DataRank
Top 1%199 citations

Louise Johnston, Domenica Taruscio, Lucia Monaco, Christophe Béroud, Manaswi Gupta +18 more

The case for open science: rare diseases

JAMIA Open(2020)10.1093/jamiaopen/ooaa030
N/A
2.2DataRank · unranked
63 citations

Peter N. Robinson, William A. Gahl, Paul Avillach, Gareth Baynam, Helene Cederroth +20 more

Building expertise on FAIR through evolving Bring Your Own Data (BYOD) workshops: describing the data, software, and management-focused approaches and their evolution

Zenodo (CERN European Organization for Nuclear Research)(2023)10.5281/zenodo.8247728
N/A
0DataRank · unranked
0 citations

Lieze Thielemans, Rajaram Kaliyaperumal, Claudio Carta, Shuxin Zhang, Celia W. G. van Gelder +28 more

Building Expertise on FAIR Through Evolving Bring Your Own Data (BYOD) Workshops: Describing the Data, Software, and Management-focused Approaches and Their Evolution

Data Intelligence(2024)10.1162/dint_a_00236
N/A
0DataRank · unranked
0 citations

Lieze Thielemans, Rajaram Kaliyaperumal, Claudio Carta, Shuxin Zhang, Nirupama Benis +28 more

Variants in ATP6V0A1 cause progressive myoclonus epilepsy and developmental and epileptic encephalopathy

Brain Communications(2021)10.1093/braincomms/fcab245
N/A
0DataRank · unranked
32 citations

Mitra Forouhan, Maria Lieto, Ambre J. Sala, Ruth Ellerington, Janel O. Johnson +53 more

Towards the international interoperability of clinical research networks for rare diseases: recommendations from the IRDiRC Task Force

Orphanet Journal of Rare Diseases(2023)10.1186/s13023-023-02650-4
N/A
0DataRank · unranked
11 citations

Galliano Zanello, Dixie B. Baker, Lora Black, Isabella Brambilla, Orion J. Buske +14 more