🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Susanne M. Benseler

Royal College of Surgeons in Ireland

ORCID: 0000-0001-5756-3638

Also affiliated with University of Calgary, Trinity College Dublin

MedicineBiochemistry, Genetics and Molecular BiologyHealth Professions

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 4%percentile
0.906Author DataRank

Indexed papers

2in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 2 indexed papers attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Baseline characteristics of children with juvenile dermatomyositis enrolled in the first year of the new Childhood Arthritis and Rheumatology Research Alliance registry

Pediatric Rheumatology(2022)10.1186/s12969-022-00709-3
Top 34%
0.576DataRank
Top 34%14 citations

Kaveh Ardalan, Adam M. Huber, Susan Kim, Novillo Abel, K. Abulaban +93 more

Papers

Driven by 8 papers — median percentile 57. Top paper: “The 2021 EULAR/American College of Rheumatology points to consider for diagnosis, management and monitoring of the interleukin-1 mediated autoinflammatory diseases: cryopyrin-associated periodic syndromes, tumour necrosis factor receptor-associated periodic syndrome, mevalonate kinase deficiency, and deficiency of the interleukin-1 receptor antagonist”.

The 2021 EULAR/American College of Rheumatology points to consider for diagnosis, management and monitoring of the interleukin-1 mediated autoinflammatory diseases: cryopyrin-associated periodic syndromes, tumour necrosis factor receptor-associated periodic syndrome, mevalonate kinase deficiency, and deficiency of the interleukin-1 receptor antagonist

Annals of the Rheumatic Diseases(2022)10.1136/annrheumdis-2021-221801
N/A
0.737DataRank · unranked
135 citations

Zehra Serap Arıcı, David Piskin, Sara Alehashemi, Daniel Aletaha, Karyl S. Barron +26 more

Baseline characteristics of children with juvenile dermatomyositis enrolled in the first year of the new Childhood Arthritis and Rheumatology Research Alliance registry

Pediatric Rheumatology(2022)10.1186/s12969-022-00709-3
Top 34%
0.576DataRank
Top 34%14 citations

Kaveh Ardalan, Adam M. Huber, Susan Kim, Novillo Abel, K. Abulaban +93 more

The 2021 EULAR/American College of Rheumatology Points to Consider for Diagnosis, Management and Monitoring of the Interleukin‐1 Mediated Autoinflammatory Diseases: Cryopyrin‐Associated Periodic Syndromes, Tumour Necrosis Factor Receptor‐Associated Periodic Syndrome, Mevalonate Kinase Deficiency, and Deficiency of the Interleukin‐1 Receptor Antagonist

Arthritis & Rheumatology(2022)10.1002/art.42139
N/A
0.561DataRank · unranked
41 citations

Zehra Serap Arıcı, David Piskin, Sara Alehashemi, Daniel Aletaha, Karyl S. Barron +26 more

Community poverty level influences time to first pediatric rheumatology appointment in Polyarticular Juvenile Idiopathic Arthritis

Pediatric Rheumatology(2021)10.1186/s12969-021-00610-5
N/A
0.461DataRank · unranked
16 citations

William Daniel Soulsby, Victoria Cooley, Linda M. Gerber, Erica Lawson, Susan Goodman +92 more

Patterns of etanercept use in juvenile idiopathic arthritis in the Childhood Arthritis and Rheumatology Research Alliance Registry

Pediatric Rheumatology(2021)10.1186/s12969-021-00625-y
Top 52%
0.330DataRank
Top 52%5 citations

Aimee Lougee, Roland Matsouaka, David H. Collier, Dax G. Rumsey, Jennifer Schenfeld +93 more

Implementation study of the CARRA Uveitis Consensus Treatment Plans: feasibility for clinical practice and applicability for research

Pediatric Rheumatology(2024)10.1186/s12969-024-01022-x
N/A
0DataRank · unranked
0 citations

Fatima Barbar‐Smiley, Shoghik Akoghlanian, Joanne Drew, Sheila T. Angeles‐Han, Megan Quinlan‐Waters +92 more

Intraarticular steroids as DMARD-sparing agents for juvenile idiopathic arthritis flares: Analysis of the Childhood Arthritis and Rheumatology Research Alliance Registry

Pediatric Rheumatology(2022)10.1186/s12969-022-00770-y
N/A
0DataRank · unranked
8 citations

Carrie Daymont, Timothy Beukelman, Brandt Groh, Kimberly A. Hays, Catherine A. Bingham +92 more

An activating NLRC4 inflammasome mutation causes autoinflammation with recurrent macrophage activation syndrome

UNC Libraries(2020)10.17615/7rbn-e697
N/A
0DataRank · unranked
0 citations

Susanne M. Benseler, Raphaela Goldbach‐Mansky, Yin Liu, Kristien J.M. Zaal, Angélique Biancotto +18 more