🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Amy Brower

Creighton University

ORCID: 0000-0001-6621-1247
Biochemistry, Genetics and Molecular BiologyMedicine

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 1%percentile
8.3Author DataRank

Indexed papers

4in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 4 indexed papers attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

The Human Phenotype Ontology in 2021

Nucleic Acids Research(2020)10.1093/nar/gkaa1043
Top 3%
7.0DataRank
Top 3%1255 citations

Michael Gargano, Nicolas Matentzoglu, Leigh C Carmody, David Lewis‐Smith, Nicole A. Vasilevsky +46 more

Papers

Driven by 15 papers — median percentile 65. Top paper: “The Human Phenotype Ontology in 2021”.

The Human Phenotype Ontology in 2021

Nucleic Acids Research(2020)10.1093/nar/gkaa1043
Top 3%
7.0DataRank
Top 3%1255 citations

Michael Gargano, Nicolas Matentzoglu, Leigh C Carmody, David Lewis‐Smith, Nicole A. Vasilevsky +46 more

The Longitudinal Pediatric Data Resource: Facilitating Longitudinal Collection of Health Information to Inform Clinical Care and Guide Newborn Screening Efforts

International Journal of Neonatal Screening(2021)10.3390/ijns7030037
Top 25%
0.805DataRank
Top 25%20 citations

Kee Chan, M. J. Hartnett, Jennifer Taylor, Amy Brower

The Longitudinal Pediatric Data Resource: Facilitating Longitudinal Collection of Health Information to Inform Clinical Care and Guide Newborn Screening Follow-Up Efforts

Preprints.org(2021)10.20944/preprints202106.0043.v1
Top 45%
0.416DataRank
Top 45%10 citations

Kee Chan, M. J. Hartnett, Jennifer Taylor, Amy Brower

Moving away from one disease at a time: Screening, trial design, and regulatory implications of novel platform technologies

American Journal of Medical Genetics Part C Seminars in Medical Genetics(2023)10.1002/ajmg.c.32031
N/A
0.373DataRank · unranked
11 citations

Philip J. Brooks, Dwight D. Koeberl, Amy Brower, Aaron J. Goldenberg, Robert C. Green +5 more

Diverse Participant Recruitment for Infant Sequencing in the BabySeq Project

medRxiv(2024)10.1101/2024.10.01.24314717
N/A
0.165DataRank · unranked
2 citations

Sheyenne A. Walmsley, Barbara W. Harrison, Crystal T. Stephens, Bethany Zettler, Greysha Rivera-Cruz +17 more

Charting the Ethical Frontier in Newborn Screening: Insights from the NBSTRN ELSI Researcher Needs Survey

Preprints.org(2024)10.20944/preprints202403.1068.v1
Top 78%
0.104DataRank
Top 78%1 citations

Kee Chan, Amy Brower, Yekaterina Unnikumaran

NBSTRN Tools to Advance Newborn Screening Research and Support Newborn Screening Stakeholders

Preprints.org(2023)10.20944/preprints202309.2039.v1
N/A
0DataRank · unranked
10 citations

Zhanzhi Hu, Lynn Bush, Heidi Cope, Ingrid A. Holm, Stephen F. Kingsmore +4 more

A Children’s Rights Framework for Genomic Medicine: Newborn Screening as a Use Case

Medical Research Archives(2024)10.18103/mra.v12i3.5167
N/A
0DataRank · unranked
5 citations

Kee Chan, James Tabery, Warren Binford, Amy Brower, Luca Brunelli

The “Other E” in ELSI: The Use of Economic Evaluation to Inform the Expansion of Newborn Screening

Archives of Pediatrics(2024)10.29011/2575-825x.100307
N/A
0DataRank · unranked
3 citations

Amy Brower, Théodore G. Ganiats, Kee Chan

Operationalizing the Wilson-Jungner principles for the genomics era: Consensus recommendations from the International Consortium on Newborn Sequencing

Genetics in Medicine(2025)10.1016/j.gim.2025.101618
N/A
0DataRank · unranked
4 citations

Julie Yeo, Thomas Minten, Rose Heald, Derek Ansel, Mei Baker +89 more

Newborn Sequencing in Genomic Medicine and Public Health

UNC Libraries(2020)10.17615/p3y4-3s09
N/A
0DataRank · unranked
0 citations

Stacey Pereira, Sean D. Mooney, Anastasia L. Wise, Jennifer M. Puck, Timothy W. Yu +37 more

Population-Based Screening of Newborns: Findings From the NBS Expansion Study (Part One)

Frontiers in Genetics(2022)10.3389/fgene.2022.867337
N/A
0DataRank · unranked
21 citations

Kee Chan, Marc S. Williams, Susan A. Berry, Robert J. Currier, Piero Rinaldo +22 more

Population-based screening of newborns: Findings from the newborn screening expansion study (part two)

Frontiers in Genetics(2022)10.3389/fgene.2022.867354
N/A
0DataRank · unranked
6 citations

Amy Brower, Marc S. Williams, Kee Chan

Using Long-Term Follow-Up Data to Classify Genetic Variants in Newborn Screened Conditions

Frontiers in Genetics(2022)10.3389/fgene.2022.859837
N/A
0DataRank · unranked
5 citations

Mathew J. Edick, Susan A. Berry, M. J. Hartnett, Amy Brower, Kevin Wilhelm

NBSTRN Tools to Advance Newborn Screening Research and Support Newborn Screening Stakeholders

International Journal of Neonatal Screening(2023)10.3390/ijns9040063
N/A
0DataRank · unranked
13 citations

Zhanzhi Hu, Lynn Bush, Heidi Cope, Ingrid A. Holm, Stephen F. Kingsmore +4 more