🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Anna Mayhew

Muscular Dystrophy UK

ORCID: 0000-0001-7085-9011
Biochemistry, Genetics and Molecular BiologyMedicineEngineering

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 2%percentile
2.2Author DataRank

Indexed papers

1in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 1 indexed paper attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Respiratory Trajectories in Type 2 and 3 Spinal Muscular Atrophy in the iSMAC Cohort Study

Neurology(2020)10.1212/wnl.0000000000011051
Top 10%
2.2DataRank
Top 10%82 citations

Deborah Ridout, Mariacristina Scoto, Giorgia Coratti, Marion Main, R. Muni Lofra +25 more

Papers

Driven by 7 papers — median percentile 90. Top paper: “Respiratory Trajectories in Type 2 and 3 Spinal Muscular Atrophy in the iSMAC Cohort Study”.

Respiratory Trajectories in Type 2 and 3 Spinal Muscular Atrophy in the iSMAC Cohort Study

Neurology(2020)10.1212/wnl.0000000000011051
Top 10%
2.2DataRank
Top 10%82 citations

Deborah Ridout, Mariacristina Scoto, Giorgia Coratti, Marion Main, R. Muni Lofra +25 more

Efficacy and Safety of Vamorolone in Duchenne Muscular Dystrophy

JAMA Network Open(2022)10.1001/jamanetworkopen.2021.44178
N/A
2.0DataRank · unranked
89 citations

Paula R. Clemens, Michela Guglieri, Edward C. Smith, Richard S. Finkel, M. Tulinius +92 more

Novel approaches to analysis of the North Star Ambulatory Assessment (NSAA) in Duchenne muscular dystrophy (DMD): Observations from a phase 2 trial

PLoS ONE(2022)10.1371/journal.pone.0272858
N/A
0.473DataRank · unranked
12 citations

Michela Guglieri, Jean K. Mah, Kathryn R. Wagner, John F. Brandsema, Russell J. Butterfield +7 more

Functional outcome measures in young, steroid-naïve boys with Duchenne muscular dystrophy

Neuromuscular Disorders(2022)10.1016/j.nmd.2022.02.012
N/A
0.345DataRank · unranked
9 citations

D. Moat, Michael McDermott, Michelle Eagle, Robert C. Griggs, Wendy King +46 more

Therapeutic Role of Nusinersen on Respiratory Progression in Pediatric Patients With Spinal Muscular Atrophy Type 2 and Nonambulant Type 3

Neurology Clinical Practice(2024)10.1212/cpj.0000000000200298
N/A
0DataRank · unranked
14 citations

Deborah Ridout, Harriet Weststrate, Mariacristina Scoto, Annemarie Rohwer, Giorgia Coratti +32 more

Disease Trajectories in the Revised Hammersmith Scale in a Cohort of Untreated Patients with Spinal Muscular Atrophy types 2 and 3

Journal of Neuromuscular Diseases(2024)10.3233/jnd-230211
N/A
0DataRank · unranked
13 citations

Georgia Stimpson, Danielle Ramsey, Giorgia Coratti, Sally Dunaway Young, Anna Mayhew +29 more

Height, weight, and body mass index trajectories and their correlation with functional outcome assessments in boys with Duchenne muscular dystrophy

Developmental Medicine & Child Neurology(2025)10.1111/dmcn.16437
N/A
0DataRank · unranked
2 citations

Utkarsh J. Dang, Claire Wood, Sze Choong Wong, Leanne M. Ward, Robert Muni‐Lofra +7 more