🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

David Isenberg

Regenerative Medicine Institute

ORCID: 0000-0001-9514-2455

Also affiliated with MRC Unit for Lifelong Health and Ageing, University College London

MedicineImmunology and Microbiology

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 1%percentile
5.5Author DataRank

Indexed papers

6in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 6 indexed papers attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Flares after hydroxychloroquine reduction or discontinuation: results from the Systemic Lupus International Collaborating Clinics (SLICC) inception cohort

Annals of the Rheumatic Diseases(2021)10.1136/annrheumdis-2021-221295
Top 6%
3.8DataRank
Top 6%100 citations

John G. Hanly, Murray B. Urowitz, Ann E. Clarke, Guillermo Ruiz‐Irastorza, Caroline Gordon +34 more

Papers

Driven by 44 papers — median percentile 66. Top paper: “Flares after hydroxychloroquine reduction or discontinuation: results from the Systemic Lupus International Collaborating Clinics (SLICC) inception cohort”.

Flares after hydroxychloroquine reduction or discontinuation: results from the Systemic Lupus International Collaborating Clinics (SLICC) inception cohort

Annals of the Rheumatic Diseases(2021)10.1136/annrheumdis-2021-221295
Top 6%
3.8DataRank
Top 6%100 citations

John G. Hanly, Murray B. Urowitz, Ann E. Clarke, Guillermo Ruiz‐Irastorza, Caroline Gordon +34 more

Lower vitamin D is associated with metabolic syndrome and insulin resistance in systemic lupus: data from an international inception cohort

Lara D. Veeken(2021)10.1093/rheumatology/keab090
Top 16%
1.3DataRank
Top 16%105 citations

John A. Reynolds, Apinya Lertratanakul, Peggy Wu, Murray B. Urowitz, Dafna D. Gladman +34 more

EULAR recommendations for the management of systemic lupus erythematosus. Report of a Task Force of the EULAR Standing Committee for International Clinical Studies Including Therapeutics

Annals of the Rheumatic Diseases(2008)10.1136/ard.2007.070367
N/A
0.994DataRank · unranked
753 citations

J. Boletis, S Bombardieri, R Cervera, C Dostal, J Font +28 more

Measures of adult systemic lupus erythematosus: Updated Version of British Isles Lupus Assessment Group (BILAG 2004), European Consensus Lupus Activity Measurements (ECLAM), Systemic Lupus Activity Measure, Revised (SLAM‐R), Systemic Lupus Activity Questionnaire for Population Studies (SLAQ), Systemic Lupus Erythematosus Disease Activity Index 2000 (SLEDAI‐2K), and Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index (SDI)

Arthritis Care & Research(2011)10.1002/acr.20572
Top 25%
0.815DataRank
Top 25%228 citations

David Isenberg, Rosalind Ramsey‐Goldman, Juanita Romero‐Diaz

Neuropsychiatric events in systemic lupus erythematosus: a longitudinal analysis of outcomes in an international inception cohort using a multistate model approach

Annals of the Rheumatic Diseases(2020)10.1136/annrheumdis-2019-216150
N/A
0.659DataRank · unranked
80 citations

Murray B. Urowitz, Caroline Gordon, Sang‐Cheol Bae, Juanita Romero‐Díaz, Jorge Sánchez‐Guerrero +29 more

Physician Global Assessment International Standardisation COnsensus in Systemic Lupus Erythematosus: the PISCOS study

The Lancet Rheumatology(2022)10.1016/s2665-9913(22)00107-2
N/A
0.624DataRank · unranked
63 citations

Elisabetta Chessa, Eric F. Morand, Manuel F. Ugarte‐Gil, Maria G. Tektonidou, Ronald van Vollenhoven +77 more

EULAR points to consider for conducting clinical trials in systemic lupus erythematosus

Annals of the Rheumatic Diseases(2009)10.1136/ard.2007.083022
N/A
0.587DataRank · unranked
49 citations

G K Bertsias, J. Boletis, S Bombardieri, R Cervera, C Dostal +30 more

Association Between Severe Nonadherence to Hydroxychloroquine and Systemic Lupus Erythematosus Flares, Damage, and Mortality in 660 Patients From the SLICC Inception Cohort

Arthritis & Rheumatology(2023)10.1002/art.42645
N/A
0.564DataRank · unranked
42 citations

Benoı̂t Blanchet, Murray B. Urowitz, John G. Hanly, Caroline Gordon, Sang‐Cheol Bae +33 more

EULAR points to consider for conducting clinical trials in systemic lupus erythematosus: literature based evidence for the selection of endpoints

Annals of the Rheumatic Diseases(2009)10.1136/ard.2007.083030
N/A
0.515DataRank · unranked
30 citations

J. Boletis, S Bombardieri, R Cervera, C Dostal, J Font +30 more

Retinal toxicity in a multinational inception cohort of patients with systemic lupus on hydroxychloroquine

University of Birmingham Research Portal (University of Birmingham)(2022)10.1136/lupus-2022-000789
Top 43%
0.434DataRank
Top 43%17 citations

John G. Hanly, Murray B. Urowitz, Ann E. Clarke, Guillermo Ruiz‐Irastorza, Caroline Gordon +34 more

OP0064 Joint EULAR/ERA-EDTA recommendations for the management of adult and pediatric lupus nephritis

Annals of the Rheumatic Diseases(2012)10.1136/annrheumdis-2012-eular.1747
N/A
0.241DataRank · unranked
4 citations

Z. Amoura, M. Aringer, I. Bajema, J. Berden, J. Boletis +55 more

Antimitochondrial antibodies in systemic lupus erythematosus are associated with and predict nephritis, arterial vascular events, and mortality

Annals of the Rheumatic Diseases(2025)10.1016/j.ard.2025.11.007
N/A
0.165DataRank · unranked
2 citations

Éric Boilard, Emmanuelle Rollet‐Labelle, Christian Lood, Anne‐Sophie Julien, Michał Abrahamowicz +38 more

ACK1 and BRK non-receptor tyrosine kinase deficiencies are associated with familial systemic lupus and involved in efferocytosis

eLife(2024)10.7554/elife.96085
N/A
0.104DataRank · unranked
1 citations

Tomi Lazarov, Natasha Jordan, Bertrand Boisson, María Tello‐Lafoz, Barbara P. Craddock +20 more

Anti-beta 2 glycoprotein I IgA in the SLICC classification criteria dataset

Lupus(2021)10.1177/09612033211014248
N/A
0DataRank · unranked
6 citations

Ana‐Maria Orbai, Laurence S. Magder, Michelle Petri, Graciela S. Alarcón, Caroline Gordon +36 more

Clinical associations of the metabolic syndrome in systemic lupus erythematosus: data from an international inception cohort

UNC Libraries(2021)10.17615/drch-vk33
Top 100%
0DataRank
Top 100%0 citations

Paul R. Fortin, Kenneth Kalunian, David Isenberg, Susan Manzi, Sang‐Cheol Bae +34 more

1704 Identifying clusters of longitudinal autoantibody profiles associated with systemic lupus erythematosus disease outcomes

Abstracts(2021)10.1136/lupus-2021-lupus21century.99
N/A
0DataRank · unranked
2 citations

Irene Chen, Ann E. Clarke, Marvin J. Fritzler, Katherine A Buhler, Murray Urowitz +36 more

OP0013 SEX DIFFERENCES IN AUTOIMMUNE DISEASE SUSCEPTIBILITY; A MULTI-OMIC APPROACH

Annals of the Rheumatic Diseases(2021)10.1136/annrheumdis-2021-eular.1405
N/A
0DataRank · unranked
1 citations

Kirsty E. Waddington, Junjie Peng, Anna Radziszewska, Hannah Peckham, David Isenberg +5 more

801 Factors associated with SLE flares after HCQ taper, discontinuation or maintenance in the SLICC inception cohort: lower education linked with higher flare risk

Abstracts(2021)10.1136/lupus-2021-lupus21century.38
N/A
0DataRank · unranked
0 citations

John G. Hanly, Murray B. Urowitz, Ann E. Clarke, Rosalind Ramsey‐Goldman, Caroline Gordon +33 more

1107 Economic evaluation of hydroxychloroquine use in an international inception cohort

Abstracts(2021)10.1136/lupus-2021-lupus21century.50
N/A
0DataRank · unranked
0 citations

Yvan St. Pierre, John G. Hanly, Murray B. Urowitz, Caroline Gordon, Sang‐Cheol Bae +30 more

Remission and low disease activity (LDA) prevent damage accrual in patients with systemic lupus erythematosus: results from the Systemic Lupus International Collaborating Clinics (SLICC) inception cohort

Annals of the Rheumatic Diseases(2022)10.1136/ard-2022-222487
N/A
0DataRank · unranked
56 citations

John G. Hanly, Murray B. Urowitz, Caroline Gordon, Sang‐Cheol Bae, Juanita Romero‐Díaz +30 more

The origins, evolution and future of the International Myositis Assessment and Clinical Studies Group (IMACS)

Clinical and Experimental Rheumatology(2022)10.55563/clinexprheumatol/yg743i
N/A
0DataRank · unranked
1 citations

Hector Chinoy, Mazen M. Dimachkie, Frederick W. Miller, Lisa G. Rider, David Isenberg

International Guideline for Idiopathic Inflammatory Myopathy-Associated Cancer Screening: an International Myositis Assessment and Clinical Studies Group (IMACS) initiative

Nature Reviews Rheumatology(2023)10.1038/s41584-023-01045-w
N/A
0DataRank · unranked
142 citations

Jeffrey P. Callen, Hector Chinoy, Leland W.K. Chung, David Fiorentino, Patrick Gordon +74 more

Assessing the Costs of Neuropsychiatric Disease in the Systemic Lupus International Collaborating Clinics Cohort Using Multistate Modeling

Arthritis Care & Research(2023)10.1002/acr.25090
N/A
0DataRank · unranked
2 citations

John G. Hanly, Murray B. Urowitz, Yvan St. Pierre, Caroline Gordon, Sang‐Cheol Bae +30 more

Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research

Annals of the Rheumatic Diseases(2024)10.1136/ard-2024-226528
N/A
0DataRank · unranked
5 citations

Jennifer C. Cooper, Alexandre Bélot, Tadej Avčin, Amita Aggarwal, Jenny Ainsworth +40 more

Remission and low disease activity are associated with lower healthcare costs: results from the Systemic Lupus International Collaborating Clinics (SLICC) inception cohort

Annals of the Rheumatic Diseases(2024)10.1136/ard-2024-225613
N/A
0DataRank · unranked
6 citations

Manuel F. Ugarte‐Gil, John G. Hanly, Murray B. Urowitz, Yvan St‐Pierre, Caroline Gordon +33 more

Anti-KIF20B autoantibodies are associated with cranial neuropathy in systemic lupus erythematosus

Lupus Science & Medicine(2024)10.1136/lupus-2023-001139
N/A
0DataRank · unranked
3 citations

John G. Hanly, Ricky Chin, Katherine A Buhler, Murray B. Urowitz, Caroline Gordon +34 more

ACK1 and BRK non-receptor tyrosine kinase deficiencies are associated with familial systemic lupus and involved in efferocytosis

medRxiv(2024)10.1101/2024.02.15.24302255
N/A
0DataRank · unranked
0 citations

Tomi Lazarov, Natasha Jordan, Bertrand Boisson, María Tello‐Lafoz, Barbara P. Craddock +20 more

ACK1 and BRK non-receptor tyrosine kinase deficiencies are associated with familial systemic lupus and involved in efferocytosis

eLife(2024)10.7554/elife.96085.1
N/A
0DataRank · unranked
0 citations

Tomi Lazarov, Natasha Jordan, Bertrand Boisson, María Tello‐Lafoz, Barbara P. Craddock +20 more

Anti-KIF20B autoantibodies are associated with cranial neuropathy in systemic lupus erythematosus

UNC Libraries(2024)10.17615/gtyz-fb89
N/A
0DataRank · unranked
0 citations

Ann E. Clarke, Sasha Bernatsky, Murray B. Urowitz, Ellen M. Ginzler, Juanita Romero‐Díaz +34 more

Defining Optimally Safe and Effective Blood Levels of Hydroxychloroquine in Lupus: An Important Step Toward Precision Drug Monitoring

Arthritis & Rheumatology(2025)10.1002/art.70010
N/A
0DataRank · unranked
5 citations

Benoı̂t Blanchet, Yann Nguyen, Fauzia Osman, Ada Clarke, Michelle Petri +38 more

Towards a minimal core dataset for systemic lupus erythematosus studies

Lupus Science & Medicine(2025)10.1136/lupus-2025-001595
Top 100%
0DataRank
Top 100%0 citations

Jialin Teng, Chengde Yang, Michelle Barraclough, Graciela S. Alarcón, Anca Askanase +20 more

A Longitudinal Analysis of Outcomes of Lupus Nephritis in an International Inception Cohort Using a Multistate Model Approach

UNC Libraries(2024)10.17615/3436-n322
N/A
0DataRank · unranked
0 citations

Joan T. Merrill, Kenneth Kalunian, Chris Theriault, David Isenberg, John G. Hanly +36 more

Cancer Risk in a Large Inception Systemic Lupus Erythematosus Cohort: Effects of Demographic Characteristics, Smoking, and Medications

Arthritis Care & Research(2020)10.1002/acr.24425
N/A
0DataRank · unranked
34 citations

Rosalind Ramsey‐Goldman, Murray B. Urowitz, John G. Hanly, Caroline Gordon, Michelle Petri +31 more

Comparison of the 2019 European Alliance of Associations for Rheumatology/American College of Rheumatology Systemic Lupus Erythematosus Classification Criteria With Two Sets of Earlier Systemic Lupus Erythematosus Classification Criteria

Arthritis Care & Research(2020)10.1002/acr.24263
N/A
0DataRank · unranked
29 citations

Daniel Goldman, Graciela S. Alarcón, Caroline Gordon, Joan T. Merrill, Paul R. Fortin +35 more

Accrual of Atherosclerotic Vascular Events in a Multicenter Inception Systemic Lupus Erythematosus Cohort

Arthritis & Rheumatology(2020)10.1002/art.41392
N/A
0DataRank · unranked
24 citations

Dafna D. Gladman, Vernon T. Farewell, Jiandong Su, Juanita Romero‐Díaz, Sang‐Cheol Bae +36 more

Derivation and validation of the Systemic Lupus International Collaborating Clinics classification criteria for systemic lupus erythematosus

Carolina Digital Repository (University of North Carolina at Chapel Hill)(2020)10.17615/vvmx-wv80
N/A
0DataRank · unranked
3 citations

Caroline Gordon, Ana‐Maria Orbai, Michelle Petri, Jill P. Buyon, Asad Zoma +27 more

OP0287 A MACHINE LEARNING APPROACH FOR PRECISION STRATIFICATION OF JUVENILE-ONSET SLE

Annals of the Rheumatic Diseases(2020)10.1136/annrheumdis-2020-eular.4167
N/A
0DataRank · unranked
1 citations

Junjie Peng, Pierre Dönnes, Leda Coelewij, Meena Naja, Anna Radziszewska +8 more

P42 Disease activity, impaired iron transport and failed sequestration: a novel mechanism for anaemia in systemic lupus erythematosus

Poster presentations(2020)10.1136/lupus-2020-eurolupus.90
N/A
0DataRank · unranked
0 citations

Thomas McDonnell, George Robinson, Filipa Farinha, Anna Radziszewska, David Isenberg +2 more

The frequency and outcome of lupus nephritis: results from an international inception cohort study

UNC Libraries(2020)10.17615/ppnq-7g14
N/A
0DataRank · unranked
0 citations

Christine Peschken, Juanita Romero‐Díaz, Ann E. Clarke, Michelle Petri, Guillermo Ruiz‐Irastorza +40 more

Anti-C1q antibodies in systemic lupus erythematosus

UNC Libraries(2020)10.17615/k3b2-7h93
N/A
0DataRank · unranked
0 citations

Caroline Gordon, M A Khamashta, G Sturfelt, M I Costner, H Fang +27 more

Impact of early disease factors on metabolic syndrome in systemic lupus erythematosus: data from an international inception cohort

UNC Libraries(2020)10.17615/3782-9v26
N/A
0DataRank · unranked
0 citations

Ben Parker, Ann E. Clarke, Jorge Sánchez‐Guerrero, Susan Manzi, Caroline Gordon +27 more

25-Hydroxyvitamin D and Cardiovascular Disease in Patients With Systemic Lupus Erythematosus: Data From a Large International Inception Cohort: Vitamin D 25(OH)D and CVD in SLE Patients

UNC Libraries(2020)10.17615/a477-ed81
N/A
0DataRank · unranked
0 citations

Gunnar Sturfelt, Kenneth Kalunian, Thomas Stoll, Alan R. Dyer, Anisur Rahman +24 more

Evaluating the Construct of Damage in Systemic Lupus Erythematosus

Arthritis Care & Research(2021)10.1002/acr.24849
N/A
0DataRank · unranked
27 citations

Dafna D. Gladman, Hermine I. Brunner, David Isenberg, Ann E. Clarke, Megan R.W. Barber +42 more

Neuropsychiatric Events in Systemic Lupus Erythematosus: Predictors of Occurrence and Resolution in a Longitudinal Analysis of an International Inception Cohort

Arthritis & Rheumatology(2021)10.1002/art.41876
N/A
0DataRank · unranked
25 citations

Caroline Gordon, Sang‐Cheol Bae, Juanita Romero‐Díaz, Jorge Sánchez‐Guerrero, Sasha Bernatsky +29 more