🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Kristl G. Claeys

Allen Institute for Brain Science

ORCID: 0000-0001-9937-443X

Also affiliated with VIB-KU Leuven Center for Brain & Disease Research, KU Leuven

Biochemistry, Genetics and Molecular BiologyNeuroscienceMedicine

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 3%percentile
1.2Author DataRank

Indexed papers

1in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 1 indexed paper attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders

Orphanet Journal of Rare Diseases(2024)10.1186/s13023-024-03059-3
Top 17%
1.2DataRank
Top 17%22 citations

Dagmar Wandrei, Nawel Lalout, Rachel Thompson, Adrian Tassoni, Dimitrios Athanasiou +37 more

Papers

Driven by 7 papers — median percentile 83. Top paper: “EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders”.

EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders

Orphanet Journal of Rare Diseases(2024)10.1186/s13023-024-03059-3
Top 17%
1.2DataRank
Top 17%22 citations

Dagmar Wandrei, Nawel Lalout, Rachel Thompson, Adrian Tassoni, Dimitrios Athanasiou +37 more

FLT3L governs the development of partially overlapping hematopoietic lineages in humans and mice

Cell(2024)10.1016/j.cell.2024.04.009
N/A
1.0DataRank · unranked
62 citations

Romain Lévy, Steicy Sobrino, Jingwei Li, Chantal Lagresle‐Peyrou, Hossein Esmaeilzadeh +68 more

104-week efficacy and safety of cipaglucosidase alfa plus miglustat in adults with late-onset Pompe disease: a phase III open-label extension study (ATB200-07)

Journal of Neurology(2024)10.1007/s00415-024-12236-0
N/A
0.803DataRank · unranked
28 citations

Priya S. Kishnani, Drago Bratkovic, Barry J. Byrne, Kristl G. Claeys, Jordi Díaz‐Manera +79 more

POGLUT1 biallelic mutations cause myopathy with reduced satellite cells, α-dystroglycan hypoglycosylation and a distinctive radiological pattern

Acta Neuropathologica(2020)10.1007/s00401-019-02117-6
N/A
0.553DataRank · unranked
39 citations

Macarena Cabrera‐Serrano, Katherine Johnson, Ashutosh Pandey, Atsuko Ito, Eloy Rivas +22 more

Digenic Inheritance Involving a Muscle Specific Protein Kinase and the Giant Titin Protein Causes a Skeletal Muscle Myopathy

SSRN Electronic Journal(2021)10.2139/ssrn.3801723
N/A
0DataRank · unranked
2 citations

Irina Zaharieva, Valeria Di Leo, Anna Vihola, Neha Wali, Marco Savarese +60 more

Digenic inheritance involving a muscle-specific protein kinase and the giant titin protein causes a skeletal muscle myopathy

Nature Genetics(2024)10.1038/s41588-023-01651-0
N/A
0DataRank · unranked
33 citations

Dan Cox, Irina Zaharieva, Valeria Di Leo, J. Sarparanta, Per Harald Jonson +80 more

A study concept of expeditious clinical enrollment for genetic modifier studies in Charcot–Marie–Tooth neuropathy 1A

Journal of the Peripheral Nervous System(2024)10.1111/jns.12621
N/A
0DataRank · unranked
1 citations

Matt C. Danzi, Ariel Ruiz, Jacquelyn Raposo, Yeisha Arcia de Jesus, Mary M. Reilly +16 more