Ellen Wright Clayton

MedicineBiochemistry, Genetics and Molecular Biology

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 4%percentile

0.849Author DataRank

Indexed papers

3in pilot corpus

datarank_citation_only_1hop_v6· scope data_onlyMethodology

Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 3 indexed papers attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Managing re-identification risks while providing access to the All of Us research program

Journal of the American Medical Informatics Association(2023)10.1093/jamia/ocad021

Top 31%

0.641DataRank

Top 31%14 citations

Melissa Basford, Robert J. Carroll, Ellen Wright Clayton, Paul A. Harris, Murat Kantacioglu +6 more

Papers

Driven by 37 papers — median percentile 22. Top paper: “Returning integrated genomic risk and clinical recommendations: The eMERGE study”.

Returning integrated genomic risk and clinical recommendations: The eMERGE study

Genetics in Medicine(2023)10.1016/j.gim.2023.100006

N/A

2.6DataRank · unranked

121 citations

Aimee Allworth, Harris T. Bland, Pedro J. Caraballo, Rex L. Chisholm, Ellen Wright Clayton +95 more

Managing re-identification risks while providing access to the All of Us research program

Journal of the American Medical Informatics Association(2023)10.1093/jamia/ocad021

Top 31%

0.641DataRank

Top 31%14 citations

Melissa Basford, Robert J. Carroll, Ellen Wright Clayton, Paul A. Harris, Murat Kantacioglu +6 more

Biomedical data repositories require governance for artificial intelligence/machine learning applications at every step

JAMIA Open(2025)10.1093/jamiaopen/ooaf134

Top 78%

0.104DataRank

Top 78%1 citations

Susannah Rose, Camille Nebecker, Laurie L. Novak, Yaël Bensoussan, You Chen +19 more

Computational strategic recruitment for representation and coverage studied in the All of Us Research Program

npj Digital Medicine(2025)10.1038/s41746-025-01804-x

Top 78%

0.104DataRank

Top 78%1 citations

Qingxia Chen, Ellen Wright Clayton, Murat Kantarcıoğlu, Lina Sulieman, Yevgeniy Vorobeychik +2 more

Return of Genomic Results to Research Participants: The Floor, the Ceiling, and the Choices In Between

UNC Libraries(2020)10.17615/rpzn-a165

N/A

0DataRank · unranked

0 citations

Gail P. Jarvik, Nanibaa’ A. Garrison, Wylie Burke, Jonathan S. Berg, John F. Connolly +27 more

Direct-to-consumer genetic testing: Prospective users’ attitudes toward information about ancestry and biological relationships

PLoS ONE(2021)10.1371/journal.pone.0260340

N/A

0DataRank · unranked

26 citations

Catherine M. Hammack‐Aviran, Kathleen M. Brelsford, Bradley Malin, Laura M. Beskow, Ellen Wright Clayton +1 more

Sociotechnical safeguards for genomic data privacy

Nature Reviews Genetics(2022)10.1038/s41576-022-00455-y

N/A

0DataRank · unranked

135 citations

James W. Hazel, Ellen Wright Clayton, Yevgeniy Vorobeychik, Murat Kantarcıoğlu, Bradley Malin +1 more

Dobbs and the future of health data privacy for patients and healthcare organizations

Journal of the American Medical Informatics Association(2022)10.1093/jamia/ocac155

N/A

0DataRank · unranked

57 citations

Peter J. Embí, Bradley Malin, Ellen Wright Clayton

LGBTQ+ Perspectives on Conducting Genomic Research on Sexual Orientation and Gender Identity

Behavior Genetics(2022)10.1007/s10519-022-10105-y

N/A

0DataRank · unranked

21 citations

Ayden Eilmus, Carolyn H. Diehl, Keanan Gabriel Gottlieb, Gilbert Gonzales, Lea K. Davis +2 more

Mapping parents’ journey following prenatal diagnosis of CHD: a qualitative study

Cardiology in the Young(2022)10.1017/s1047951122002505

N/A

0DataRank · unranked

14 citations

Catherine M. Hammack‐Aviran, Kathleen M. Brelsford, Ann Kavanaugh‐McHugh, Ellen Wright Clayton, Kelly W. Harris

The Public Perception of the #GeneEditedBabies Event Across Multiple Social Media Platforms: Observational Study

Journal of Medical Internet Research(2022)10.2196/31687

N/A

0DataRank · unranked

16 citations

Zhiyu Wan, Chao Yan, Yongtai Liu, Ellen Wright Clayton, Bradley Malin +2 more

Implicit Incentives Among Reddit Users to Prioritize Attention Over Privacy and Reveal Their Faces When Discussing Direct-to-Consumer Genetic Test Results: Topic and Attention Analysis

JMIR Infodemiology(2022)10.2196/35702

N/A

0DataRank · unranked

3 citations

Zhijun Yin, Zhiyu Wan, Chao Yan, Weiyi Xia, Congning Ni +5 more

When to Share Your Genome to an Online Community: A Game Theoretic Approach to Balance Privacy Risks and Familial Benefits

Research Square(2022)10.21203/rs.3.rs-1784480/v1

N/A

0DataRank · unranked

0 citations

Ellen Wright Clayton, Murat Kantarcıoğlu, Yevgeniy Vorobeychik, Myrna Wooders, Zhiyu Wan +3 more

Human-Centered Design to Address Biases in Artificial Intelligence

Journal of Medical Internet Research(2023)10.2196/43251

N/A

0DataRank · unranked

187 citations

Ellen Wright Clayton, Laurie L. Novak, Shilo Anders, Bradley Malin, You Chen

Developing Ethics and Equity Principles, Terms, and Engagement Tools to Advance Health Equity and Researcher Diversity in AI and Machine Learning: Modified Delphi Approach

JMIR AI(2023)10.2196/52888

N/A

0DataRank · unranked

35 citations

Malaika Simmons, Shilo Anders, Kammarauche Aneni, Ellen Wright Clayton, Joseph Coco +16 more

Practical considerations for reinterpretation of individual genetic variants

Genetics in Medicine(2023)10.1016/j.gim.2023.100801

N/A

0DataRank · unranked

24 citations

Sara M. Berger, Elly Brokamp, H. Shelton Brown, Wylie Burke, Ellen Wright Clayton +14 more

A game theoretic approach to balance privacy risks and familial benefits

Scientific Reports(2023)10.1038/s41598-023-33177-0

N/A

0DataRank · unranked

4 citations

Ellen Wright Clayton, Murat Kantarcıoğlu, Yevgeniy Vorobeychik, Myrna Wooders, Zhiyu Wan +3 more

Avoiding Liability and Other Legal Land Mines in the Evolving Genomics Landscape

Annual Review of Genomics and Human Genetics(2023)10.1146/annurev-genom-100722-021725

N/A

0DataRank · unranked

3 citations

Alex M. Tritell, Adrian Thorogood, Ellen Wright Clayton

Selection, optimization, and validation of ten chronic disease polygenic risk scores for clinical implementation in diverse populations

medRxiv(2023)10.1101/2023.05.25.23290535

N/A

0DataRank · unranked

7 citations

Leah C. Kottyan, Christopher Kachulis, Noura S. Abul‐Husn, Josh Arias, Gillian M. Belbin +71 more

Developing Ethics and Equity Principles, Terms, and Engagement Tools to Advance Health Equity and Researcher Diversity in AI and Machine Learning: Modified Delphi Approach (Preprint)

Maryland Shared Open Access Repository (USMAI Consortium)(2023)10.2196/preprints.52888

N/A

0DataRank · unranked

0 citations

Malaika Simmons, Shilo Anders, Kammarauche Aneni, Ellen Wright Clayton, Joseph Coco +16 more

Selection, optimization and validation of ten chronic disease polygenic risk scores for clinical implementation in diverse US populations

Nature Medicine(2024)10.1038/s41591-024-02796-z

N/A

0DataRank · unranked

196 citations

Leah C. Kottyan, Christopher Kachulis, Noura S. Abul‐Husn, Joshua Arias, Gillian M. Belbin +73 more

Applications and Concerns of ChatGPT and Other Conversational Large Language Models in Health Care: Systematic Review

Journal of Medical Internet Research(2024)10.2196/22769

N/A

0DataRank · unranked

130 citations

Zhiyu Wan, Congning Ni, Qingyuan Song, Yang Li, Ellen Wright Clayton +3 more

Addressing ethical issues in healthcare artificial intelligence using a lifecycle-informed process

JAMIA Open(2024)10.1093/jamiaopen/ooae108

N/A

0DataRank · unranked

18 citations

Jean‐Christophe Bélisle‐Pipon, Barbara J. Evans, Kadija Ferryman, Xiaoqian Jiang, Camille Nebeker +12 more

Health care utilization and behavior changes after workplace genetic testing at a large US health care system

Genetics in Medicine(2024)10.1016/j.gim.2024.101160

N/A

0DataRank · unranked

8 citations

Subhamoy Pal, Jonathan M. Reader, Wendy R. Uhlmann, Sarah McCain, Kunal Sanghavi +30 more

A Systematic Review of ChatGPT and Other Conversational Large Language Models in Healthcare

medRxiv(2024)10.1101/2024.04.26.24306390

N/A

0DataRank · unranked

38 citations

Zhiyu Wan, Congning Ni, Qingyuan Song, Yang Li, Ellen Wright Clayton +3 more

Not the Models You Are Looking For: Traditional ML Outperforms LLMs in Clinical Prediction Tasks

medRxiv(2024)10.1101/2024.12.03.24318400

N/A

0DataRank · unranked

5 citations

Chao Yan, Zhuohang Li, Xinmeng Zhang, Benjamin Collins, You Chen +5 more

Adaptive Recruitment Resource Allocation to Improve Cohort Representativeness in Participatory Biomedical Datasets

PubMed(2024)10.48550/arxiv.2408.01375

N/A

0DataRank · unranked

1 citations

Andrew Estornell, Ellen Wright Clayton, Chien-Ju Ho, Russell L. Rothman, Yevgeniy Vorobeychik +2 more

Large language models are less effective at clinical prediction tasks than locally trained machine learning models

Journal of the American Medical Informatics Association(2025)10.1093/jamia/ocaf038

N/A

0DataRank · unranked

38 citations

Chao Yan, Zhuohang Li, Xinmeng Zhang, Benjamin Collins, You Chen +5 more

Longitudinal investigation of neurobiological changes across pregnancy

Communications Biology(2025)10.1038/s42003-024-07414-9

N/A

0DataRank · unranked

20 citations

Benjamin Conrad, M. Catalina Camacho, Sanjana Ravi, Hannah A. Piersiak, Lauren G. Bailes +9 more

Ethical sourcing in the context of health data supply chain management: a value sensitive design approach

JAMIA Open(2025)10.1093/jamiaopen/ooaf101

N/A

0DataRank · unranked

6 citations

Jean‐Christophe Bélisle‐Pipon, Benjamin Collins, Ashley Cordes, Kadija Ferryman, Brian McInnis +17 more

Role and Use of Race in Artificial Intelligence and Machine Learning Models Related to Health

Journal of Medical Internet Research(2025)10.2196/73996

N/A

0DataRank · unranked

1 citations

Ang Li, Bradley Malin, Zhijun Yin, Joseph Coco, Benjamin Collins +7 more

Genetic counselors’ perspectives and experiences with workplace genetic testing: Results of a national survey

Genetics in Medicine Open(2025)10.1016/j.gimo.2025.103483

N/A

0DataRank · unranked

0 citations

Elizabeth Charnysh, Subhamoy Pal, Jonathan M. Reader, Katherine Hendy, W. Gregory Feero +32 more

What Results Should Be Returned from Opportunistic Screening in Translational Research?

Journal of Personalized Medicine(2020)10.3390/jpm10010013

N/A

0DataRank · unranked

20 citations

Sarah H. Jones, Laurie L. Novak, Christopher Simpson, Digna R. Velez Edwards, Sifang Kathy Zhao +2 more

Identifying and supporting trafficked individuals: provider and community organization perspectives on existing sociotechnical approaches

Journal of the American Medical Informatics Association(2025)10.1093/jamia/ocaf220

N/A

0DataRank · unranked

0 citations

Ellen Wright Clayton, Colin G. Walsh, Kim M. Unertl, Michelle Gomez

OUP accepted manuscript

Journal of the American Medical Informatics Association(2020)10.1093/jamia/ocaa327

N/A

0DataRank · unranked

20 citations

Yongtai Liu, Zhiyu Wan, Yevgeniy Vorobeychik, Murat Kantacioglu, Steve Nyemba +3 more

Balancing Expediency and Scientific Rigor in Severe Acute Respiratory Syndrome Coronavirus 2 Vaccine Development

The Journal of Infectious Diseases(2020)10.1093/infdis/jiaa234

N/A

0DataRank · unranked

17 citations

Sonali Kochhar, Ellen Wright Clayton, Kathryn E Edwards, Kevin W. Graepel

Health and kinship matter: Learning about direct-to-consumer genetic testing user experiences via online discussions

PLoS ONE(2020)10.1371/journal.pone.0238644

N/A

0DataRank · unranked

26 citations

Lijun Song, Ellen Wright Clayton, Bradley Malin, Zhijun Yin

Ellen Wright Clayton

Indexed papers

Top data-sharing exemplar

Papers