🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Valeria Sansone

University of Milan

ORCID: 0000-0002-1354-3800

Also affiliated with Azienda Socio Sanitaria Territoriale Grande Ospedale Metropolitano Niguarda, Centro Clinico Nemo

MedicineNeuroscienceBiochemistry, Genetics and Molecular Biology

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 2%percentile
2.2Author DataRank

Indexed papers

2in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 2 indexed papers attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Respiratory Trajectories in Type 2 and 3 Spinal Muscular Atrophy in the iSMAC Cohort Study

Neurology(2020)10.1212/wnl.0000000000011051
Top 10%
2.2DataRank
Top 10%82 citations

Deborah Ridout, Mariacristina Scoto, Giorgia Coratti, Marion Main, R. Muni Lofra +25 more

Papers

Driven by 12 papers — median percentile 45. Top paper: “Respiratory Trajectories in Type 2 and 3 Spinal Muscular Atrophy in the iSMAC Cohort Study”.

Respiratory Trajectories in Type 2 and 3 Spinal Muscular Atrophy in the iSMAC Cohort Study

Neurology(2020)10.1212/wnl.0000000000011051
Top 10%
2.2DataRank
Top 10%82 citations

Deborah Ridout, Mariacristina Scoto, Giorgia Coratti, Marion Main, R. Muni Lofra +25 more

Confirmation of the Type 2 Myotonic Dystrophy (CCTG)n Expansion Mutation in Patients with Proximal Myotonic Myopathy/Proximal Myotonic Dystrophy of Different European Origins: A Single Shared Haplotype Indicates an Ancestral Founder Effect

UNC Libraries(2020)10.17615/gzep-km85
N/A
0.547DataRank · unranked
9 citations

Bjarne Udd, Richard T. Moxley, Fred A. Wright, B. Eymard, Armand Bottani +18 more

Long‐Term Evaluation of Givinostat in Duchenne Muscular Dystrophy, and Natural History Comparisons

Annals of Clinical and Translational Neurology(2025)10.1002/acn3.70165
N/A
0.363DataRank · unranked
10 citations

Michela Guglieri, Dragana Vučinić, Gyula Acsádi, John F. Brandsema, Claudio Bruno +22 more

The IAAM LTBP4 Haplotype is Protective Against Dystrophin-Deficient Cardiomyopathy

Journal of Neuromuscular Diseases(2024)10.3233/jnd-230129
N/A
0.241DataRank · unranked
4 citations

Daniele Sabbatini, Aurora Fusto, Domenico Gorgoglione, Giovanni Umberto Borin, Martina Penzo +34 more

Strength and functional correlates of reachable workspace in facioscapulohumeral muscular dystrophy

Neuromuscular Disorders(2025)10.1016/j.nmd.2025.105279
N/A
0.165DataRank · unranked
2 citations

Maya N. Hatch, Michael P. McDermott, William B. Martens, Katy Eichinger, Leann Lewis +14 more

Therapeutic Role of Nusinersen on Respiratory Progression in Pediatric Patients With Spinal Muscular Atrophy Type 2 and Nonambulant Type 3

Neurology Clinical Practice(2024)10.1212/cpj.0000000000200298
N/A
0DataRank · unranked
14 citations

Deborah Ridout, Harriet Weststrate, Mariacristina Scoto, Annemarie Rohwer, Giorgia Coratti +32 more

Disease Trajectories in the Revised Hammersmith Scale in a Cohort of Untreated Patients with Spinal Muscular Atrophy types 2 and 3

Journal of Neuromuscular Diseases(2024)10.3233/jnd-230211
N/A
0DataRank · unranked
13 citations

Georgia Stimpson, Danielle Ramsey, Giorgia Coratti, Sally Dunaway Young, Anna Mayhew +29 more

Parental diagnostic delay and developmental outcomes in congenital and childhood‐onset myotonic dystrophy type 1

Developmental Medicine & Child Neurology(2024)10.1111/dmcn.16079
N/A
0DataRank · unranked
8 citations

Emilio Albamonte, Marika Pane, Federica Ricci, Adele D’Amico, Guja Astrea +8 more

A multicenter, prospective, cross-sectional, genotype-phenotype and longitudinal natural history study of Andersen-Tawil syndrome

medRxiv(2022)10.1101/2022.05.26.22275429
Top 100%
0DataRank
Top 100%0 citations

Martin Tristani‐Firouzi, Reza Sadjadi, James Cleland, Rabi Tawil, G. Meola +6 more

Upper limb function changes over 12 months in untreated SMA II and III individuals: an item-level analysis using the Revised Upper Limb Module

Neuromuscular Disorders(2024)10.1016/j.nmd.2024.08.006
N/A
0DataRank · unranked
4 citations

Matthew Civitello, Annemarie Rohwer, Emilio Albamonte, Jacqueline Montes, Allan M. Glanzman +28 more

Meeting report: The 2022 FSHD International Research Congress

Neuromuscular Disorders(2022)10.1016/j.nmd.2022.12.005
N/A
0DataRank · unranked
1 citations

June Kinoshita, Jamshid Arjomand, Julie Dumonceaux, Russell J. Butterfield, Amy E. Campbell +7 more

Genetic modifiers of respiratory function in Duchenne muscular dystrophy

Annals of Clinical and Translational Neurology(2020)10.1002/acn3.51046
N/A
0DataRank · unranked
45 citations

Maria Grazia D’Angelo, Matteo Villa, Aurora Fusto, Sara Vianello, Beatrice Merlo +36 more