Kathleen J. Ramos

Also affiliated with Seattle Children's Hospital

Medicine

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 7%percentile

0.143Author DataRank

Indexed papers

1in pilot corpus

datarank_citation_only_1hop_v6· scope data_onlyMethodology

Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 1 indexed paper attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Linkage of the CF Foundation Patient Registry with the Scientific Registry of Transplant Recipients database

Journal of Cystic Fibrosis(2024)10.1016/j.jcf.2024.09.015

Top 70%

0.143DataRank

Top 70%1 citations

Yoon Son Ahn, Patrick J Johnson, Kathleen J. Ramos, A. Jay Freeman, Albert Faro +2 more

Papers

Driven by 44 papers — median percentile 30. Top paper: “The lung allocation score and other available models lack predictive accuracy for post-lung transplant survival”.

The lung allocation score and other available models lack predictive accuracy for post-lung transplant survival

The Journal of Heart and Lung Transplantation(2022)10.1016/j.healun.2022.05.008

N/A

0.483DataRank · unranked

24 citations

Travis Hee Wai, Christopher H. Goss, Erika D. Lease, Christian A. Merlo, Siddhartha G. Kapnadak +2 more

Historic Use of Race-Based Spirometry Values Lowered Transplant Priority for Black Patients

CHEST Journal(2023)10.1016/j.chest.2023.10.009

N/A

0.373DataRank · unranked

11 citations

Kathleen J. Ramos, Emily A. Harlan, Fernando Holguín, Erick Forno, Daniel J. Weiner +2 more

Linkage of the CF Foundation Patient Registry with the Scientific Registry of Transplant Recipients database

Journal of Cystic Fibrosis(2024)10.1016/j.jcf.2024.09.015

Top 70%

0.143DataRank

Top 70%1 citations

Yoon Son Ahn, Patrick J Johnson, Kathleen J. Ramos, A. Jay Freeman, Albert Faro +2 more

Detection of SARS-CoV-2 by bronchoscopy after negative nasopharyngeal testing: Stay vigilant for COVID-19

Respiratory Medicine Case Reports(2020)10.1016/j.rmcr.2020.101120

N/A

0DataRank · unranked

30 citations

Siddhartha G. Kapnadak, Bridget F. Collins, Paul S. Pottinger, Richard J. Wall, James A. Mays +7 more

Consensus document for the selection of lung transplant candidates: An update from the International Society for Heart and Lung Transplantation

The Journal of Heart and Lung Transplantation(2021)10.1016/j.healun.2021.07.005

N/A

0DataRank · unranked

763 citations

Are Martin Holm, Maryam Valapour, Allan R. Glanville, Sandeep Attawar, Meghan Aversa +19 more

Challenges in the use of highly effective modulator treatment for cystic fibrosis

Journal of Cystic Fibrosis(2021)10.1016/j.jcf.2021.01.007

N/A

0DataRank · unranked

36 citations

Joseph M. Pilewski, Jennifer L. Taylor‐Cousar, Kathleen J. Ramos

Survival and Lung Transplant Outcomes for Individuals With Advanced Cystic Fibrosis Lung Disease Living in the United States and Canada

CHEST Journal(2021)10.1016/j.chest.2021.04.010

N/A

0DataRank · unranked

24 citations

Jenna Sykes, Sanja Stanojevic, Xiayi Ma, Joshua S. Ostrenga, Aliza K. Fink +8 more

A Framework for Using Real-World Data and Health Outcomes Modeling to Evaluate Machine Learning–Based Risk Prediction Models

Value in Health(2021)10.1016/j.jval.2021.11.1360

N/A

0DataRank · unranked

10 citations

David L. Veenstra, Patrick J. Heagerty, Christopher H. Goss, Kathleen J. Ramos, Aasthaa Bansal +1 more

Variability in azithromycin practices among lung transplant providers in the International Society for Heart and Lung Transplantation Community

The Journal of Heart and Lung Transplantation(2021)10.1016/j.healun.2021.10.008

N/A

0DataRank · unranked

6 citations

Eric D. Morrell, Travis Hee Wai, Christopher H. Goss, Pali D. Shah, Christian A. Merlo +3 more

Low body mass index as a barrier to lung transplant in cystic fibrosis

Journal of Cystic Fibrosis(2021)10.1016/j.jcf.2021.12.001

N/A

0DataRank · unranked

12 citations

Joseph B. Pryor, Travis Y. Hee Wai, Siddhartha G. Kapnadak, Moira L. Aitken, Christopher H. Goss +2 more

Validation of the French 3-year prognostic score for death or lung transplant in the United States cystic fibrosis population

Journal of Cystic Fibrosis(2021)10.1016/j.jcf.2021.08.008

N/A

0DataRank · unranked

9 citations

Travis Hee Wai, Jenna Sykes, Xiayi Ma, Anne L. Stephenson, Ann L. Jennerich +4 more

Use of elexacaftor/tezacaftor/ivacaftor among cystic fibrosis lung transplant recipients

Journal of Cystic Fibrosis(2022)10.1016/j.jcf.2022.04.009

N/A

0DataRank · unranked

47 citations

Jennifer S. Guimbellot, Maryam Valapour, Lauren Bartlett, Travis Hee Wai, Christopher H. Goss +4 more

Contemporary cystic fibrosis incidence rates in Canada and the United States

Journal of Cystic Fibrosis(2022)10.1016/j.jcf.2022.10.008

N/A

0DataRank · unranked

30 citations

Sana Swaleh, Jenna Sykes, Sanja Stanojevic, Xiayi Ma, Bradley S. Quon +9 more

Take on transplant: human-centered design of a patient education tool to facilitate informed discussions about lung transplant among people with cystic fibrosis

Journal of the American Medical Informatics Association(2022)10.1093/jamia/ocac176

N/A

0DataRank · unranked

9 citations

Lauren Bartlett, Mara R. Hobler, Nick Reid, Joseph B. Pryor, Siddhartha G. Kapnadak +15 more

Development and Internal Validation of a Prognostic Model of the Probability of Death or Lung Transplantation Within 2 Years for Patients With Cystic Fibrosis and FEV1 ≤ 50% Predicted

CHEST Journal(2022)10.1016/j.chest.2022.05.021

N/A

0DataRank · unranked

8 citations

Travis Hee Wai, Anne L. Stephenson, Jenna Sykes, Sanja Stanojevic, Patricia J Rodriguez +5 more

Hemoptysis and the Risk for Lung Transplant or Death without Transplant in Individuals with Cystic Fibrosis in the United States

Annals of the American Thoracic Society(2022)10.1513/annalsats.202202-110oc

N/A

0DataRank · unranked

6 citations

Kathleen J. Ramos, Travis Hee Wai, Siddhartha G. Kapnadak, Eric D. Morrell, J. Treadway Nomitch +6 more

Response to selection of lung transplant candidates: A pediatric perspective on the ISHLT consensus document

The Journal of Heart and Lung Transplantation(2022)10.1016/j.healun.2022.03.025

N/A

0DataRank · unranked

4 citations

Brigitte W.M. Willemse, Kathleen J. Ramos, Lorriana E. Leard, Melinda Solomon

Improving lung transplant outcomes in France: the high emergency lung transplantation programme

European Respiratory Journal(2022)10.1183/13993003.02209-2021

N/A

0DataRank · unranked

2 citations

Kathleen J. Ramos, Christopher H. Goss, Omar Bayomy

Survival difference between high-risk and low-risk CFTR genotypes after lung transplant

The Journal of Heart and Lung Transplantation(2022)10.1016/j.healun.2022.04.009

N/A

0DataRank · unranked

5 citations

Jeremy M. Weber, Megan L. Neely, Kathleen J. Ramos, Laurie D. Snyder, Emily Clausen

The impact of elexacaftor/tezacaftor/ivacaftor on fat-soluble vitamin levels in people with cystic fibrosis

Journal of Cystic Fibrosis(2023)10.1016/j.jcf.2023.08.002

N/A

0DataRank · unranked

30 citations

Anna Faino, Gracia Bridges, Lauren Bartlett, Jonathan D. Cogen, Nicole Green +4 more

Cystic fibrosis survival outcomes following second lung transplant: The north American experience

Clinical Transplantation(2023)10.1111/ctr.15097

N/A

0DataRank · unranked

9 citations

Kathleen J. Ramos, Jenna Sykes, Xiayi Ma, Sanja Stanojevic, Bradley S. Quon +10 more

A longitudinal analysis of respiratory symptoms in people with cystic fibrosis with advanced lung disease on and off ETI

Journal of Cystic Fibrosis(2023)10.1016/j.jcf.2023.11.008

N/A

0DataRank · unranked

5 citations

Lauren Bartlett, T. Milinic, Nora Burdis, Joseph M. Pilewski, Jordan Dunitz +4 more

Lung function decline is mitigated following liver transplantation in people with cystic fibrosis: A retrospective cohort study

Liver Transplantation(2023)10.1097/lvt.0000000000000232

N/A

0DataRank · unranked

4 citations

Kathleen J. Ramos, Jenna Sykes, Sanja Stanojevic, Xiayi Ma, Bradley S. Quon +8 more

Patient perspectives on elexacaftor/tezacaftor/ivacaftor after lung transplant

Journal of Cystic Fibrosis(2023)10.1016/j.jcf.2023.09.017

N/A

0DataRank · unranked

2 citations

Lauren Bartlett, Jennifer S. Guimbellot, T. Milinic, Nora Burdis, Eliana R Gill +5 more

727 Longitudinal analysis of respiratory symptoms in people with cystic fibrosis with advanced lung disease on and off ETI

Journal of Cystic Fibrosis(2023)10.1016/s1569-1993(23)01648-x

N/A

0DataRank · unranked

2 citations

L. Bartlett, T. Milinic, Joseph M. Pilewski, Jordan Dunitz, Christopher H. Goss +2 more

Palliative Care Consultation and Family-Centered Outcomes in Patients With Unplanned Intensive Care Unit Admissions

Journal of Palliative Medicine(2023)10.1089/jpm.2023.0436

N/A

0DataRank · unranked

1 citations

Lois Downey, Lauren R. Pollack, Omar Bayomy, Kathleen J. Ramos, Erin K. Kross +2 more

Potential implicit bias in attribution of adverse events in randomized controlled trials in cystic fibrosis

Journal of Cystic Fibrosis(2023)10.1016/j.jcf.2023.05.014

N/A

0DataRank · unranked

1 citations

Madeline Wessels, T. Milinic, Kathleen J. Ramos, Nicole Mayer-Hamblett, Bonnie W. Ramsey +4 more

736 Preparing people with CF for lung transplant discussions and decisions: qualitative outcomes in a pilot randomized controlled trial of a CFspecific educational website

Journal of Cystic Fibrosis(2023)10.1016/s1569-1993(23)01657-0

N/A

0DataRank · unranked

0 citations

N. Reid, Siddhartha G. Kapnadak, Donna L. Berry, A. Hartzler, M. Basile +2 more

Lung Allocation Score Exceptions in Persons with Cystic Fibrosis Undergoing Lung Transplant

Annals of the American Thoracic Society(2023)10.1513/annalsats.202306-509oc

N/A

0DataRank · unranked

0 citations

Miranda C. Bradford, T. Milinic, Siddhartha G. Kapnadak, Eric D. Morrell, Erika D. Lease +3 more

A Dramatic Decline in Lung Transplantation for Cystic Fibrosis in the United States

CHEST Pulmonary(2024)10.1016/j.chpulm.2024.100077

N/A

0DataRank · unranked

7 citations

Kathleen J. Ramos, Eliana R Gill, Nora Burdis, Christopher H. Goss, Siddhartha G. Kapnadak +1 more

Attitudes toward and preparedness for lung transplantation among individuals with cystic fibrosis in the era of highly effective modulators

BMC Pulmonary Medicine(2024)10.1186/s12890-024-03163-x

N/A

0DataRank · unranked

4 citations

Siddhartha G. Kapnadak, Lauren Bartlett, Oliver J. McElvaney, T. Milinic, Travis Hee Wai +10 more

A survey of cystic fibrosis physicians' views on lung transplant referral in the era of elexacaftor/tezacaftor/ivacaftor

Pediatric Pulmonology(2024)10.1002/ppul.27273

N/A

0DataRank · unranked

3 citations

T. Milinic, Lauren Bartlett, Louisa B. Goss, Erin Tallarico, A. Boyle +8 more

Uncertainty and Communication Preferences Among Patients Undergoing Lung Transplant Evaluation: A Mixed‐Methods Study

Clinical Transplantation(2024)10.1111/ctr.15406

N/A

0DataRank · unranked

1 citations

Anuj Mehta, Kathleen J. Ramos, Eric G. Campbell, Alice Gray, Caroline Tietbohl +3 more

The prognostic value of single and repeated ≥10% FEV1 declines for chronic lung allograft dysfunction

The Journal of Heart and Lung Transplantation(2024)10.1016/j.healun.2024.11.031

N/A

0DataRank · unranked

1 citations

Miranda C. Bradford, Xuanshuang Wang, Ted Liu, Chelsea Schmitz, Erika D. Lease +5 more

Qualitative Analysis of Perspectives on Lung Transplant among People with Cystic Fibrosis

Annals of the American Thoracic Society(2024)10.1513/annalsats.202307-625oc

N/A

0DataRank · unranked

3 citations

Mara R. Hobler, Lauren Bartlett, Eliana R Gill, Nora Burdis, Ruth A. Engelberg +8 more

The association between cystic fibrosis-related diabetes and periodontitis in adults: A pilot cross-sectional study

PLoS ONE(2024)10.1371/journal.pone.0305975

N/A

0DataRank · unranked

1 citations

Lloyd Mancl, Kathleen J. Ramos, Marilynn Rothen, Georgios A. Kotsakis, Dace Trence +2 more

Lung re-transplantation for recipients with cystic fibrosis: Procedure choice and other considerations

The Journal of Heart and Lung Transplantation(2024)10.1016/j.healun.2024.10.004

N/A

0DataRank · unranked

0 citations

T. Milinic, Kathleen J. Ramos, Siddhartha G. Kapnadak

Research coordinators’ perspectives on recruitment of minoritized people with cystic fibrosis into clinical trials

BMC Pulmonary Medicine(2025)10.1186/s12890-025-03707-9

N/A

0DataRank · unranked

2 citations

Nora Burdis, Eliana R Gill, Patricia Burks, M Jarosz, Amy J. Hoffman +4 more

Personal narratives to support learning about lung transplant for people with cystic fibrosis

Patient Education and Counseling(2025)10.1016/j.pec.2025.108822

N/A

0DataRank · unranked

0 citations

Lauren Bartlett, Nick Reid, Andrea L. Hartzler, Miranda C. Bradford, Christopher H. Goss +8 more

Airway complications after lung transplantation: Perioperative risk factors and clinical outcomes

JHLT Open(2025)10.1016/j.jhlto.2025.100315

N/A

0DataRank · unranked

0 citations

Kathleen J. Ramos, Rachel Flodin, Sanaa Mansoor, Kyle S. Bilodeau, Peter Beidler +6 more

Incorporating patient and caregiver feedback into lung transplant referral guidelines for individuals with cystic fibrosis—Preliminary findings from a novel paradigm

Clinical Transplantation(2020)10.1111/ctr.14038

N/A

0DataRank · unranked

16 citations

Jordan Dunitz, Amy Lucy, Sarah E. Hempstead, Erin Tallarico, Albert Faro +3 more

Elexacaftor/tezacaftor/ivacaftor prescription in lung transplant recipients with cystic fibrosis in the US

Journal of Cystic Fibrosis(2025)10.1016/j.jcf.2025.06.005

N/A

0DataRank · unranked

0 citations

Miranda C. Bradford, Sonya L. Heltshe, T. Milinic, Oliver J. McElvaney, Erika D. Lease +5 more

Underweight Patients With Cystic Fibrosis Have Acceptable Survival Following Lung Transplantation

CHEST Journal(2020)10.1016/j.chest.2019.11.043

N/A

0DataRank · unranked

43 citations

Siddhartha G. Kapnadak, Miranda C. Bradford, Ranjani Somayaji, Eric D. Morrell, Joseph M. Pilewski +6 more

Bridging the survival gap in cystic fibrosis: An investigation of lung transplant outcomes in Canada and the United States

The Journal of Heart and Lung Transplantation(2020)10.1016/j.healun.2020.12.001

N/A

0DataRank · unranked

31 citations

Kathleen J. Ramos, Jenna Sykes, Xiayi Ma, Sanja Stanojevic, Bradley S. Quon +9 more

Kathleen J. Ramos

Indexed papers

Top data-sharing exemplar

Papers