🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Doris G. Leung

Kennedy Krieger Institute

ORCID: 0000-0002-2558-7798

Also affiliated with Johns Hopkins University

Biochemistry, Genetics and Molecular BiologyNeuroscienceMedicine

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 4%percentile
0.575Author DataRank

Indexed papers

2in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 2 indexed papers attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

A comprehensive study of skeletal muscle imaging in FHL1‐related reducing body myopathy

Annals of Clinical and Translational Neurology(2023)10.1002/acn3.51834
Top 49%
0.367DataRank
Top 49%6 citations

Pomi Yun, Safoora Syeda, Abhinandan Batra, Andrew J. Bradley, Sandra Donkervoort +17 more

Papers

Driven by 10 papers — median percentile 43. Top paper: “Study of Tofacitinib in Refractory Dermatomyositis: An Open‐Label Pilot Study of Ten Patients”.

Study of Tofacitinib in Refractory Dermatomyositis: An Open‐Label Pilot Study of Ten Patients

Arthritis & Rheumatology(2020)10.1002/art.41602
N/A
6.9DataRank · unranked
155 citations

Livia Casciola‐Rosen, Joseph Shin, Jemima Albayda, Eleni Tiniakou, Doris G. Leung +9 more

Antisense oligonucleotide targeting DMPK in patients with myotonic dystrophy type 1: a multicentre, randomised, dose-escalation, placebo-controlled, phase 1/2a trial

The Lancet Neurology(2023)10.1016/s1474-4422(23)00001-7
N/A
1.7DataRank · unranked
60 citations

Richard T. Moxley, Katy Eichinger, Chad Heatwole, Laurence Mignon, W. David Arnold +22 more

A comprehensive study of skeletal muscle imaging in FHL1‐related reducing body myopathy

Annals of Clinical and Translational Neurology(2023)10.1002/acn3.51834
Top 49%
0.367DataRank
Top 49%6 citations

Pomi Yun, Safoora Syeda, Abhinandan Batra, Andrew J. Bradley, Sandra Donkervoort +17 more

Clinical Trial Readiness in Limb Girdle Muscular Dystrophy R1 (LGMDR1): A GRASP Consortium Study

Annals of Clinical and Translational Neurology(2025)10.1002/acn3.70049
Top 65%
0.208DataRank
Top 65%3 citations

Lindsay N. Alfano, Aileen Jones, Amanda Butler, Linda Lowes, M. Iammarino +24 more

Broadening learning communities during COVID-19: developing a curricular framework for telemedicine education in neurology

BMC Medical Education(2021)10.1186/s12909-021-02979-z
N/A
0DataRank · unranked
14 citations

Brian D. Lo, Kori A. Porosnicu Rodriguez, Zoe L. Cosner, Dylan Hardenbergh, Diana M. Bongiorno +7 more

Long‐term extension study of tofacitinib in refractory dermatomyositis

Arthritis & Rheumatology(2021)10.1002/art.41944
N/A
0DataRank · unranked
27 citations

Matthew Shneyderman, Laura Gutierrez‐Alamillo, Jemima Albayda, Eleni Tiniakou, Jamie Perin +7 more

Meeting report: The 2022 FSHD International Research Congress

Neuromuscular Disorders(2022)10.1016/j.nmd.2022.12.005
N/A
0DataRank · unranked
1 citations

June Kinoshita, Jamshid Arjomand, Julie Dumonceaux, Russell J. Butterfield, Amy E. Campbell +7 more

Natural History, Phenotype Spectrum and Clinical Outcomes of Desmin ( DES )-Associated Cardiomyopathy

medRxiv(2024)10.1101/2024.08.24.24311904
N/A
0DataRank · unranked
1 citations

Marina Rieder, Brittney Murray, Steven A. Muller, Crystal Tichnell, Alessio Gasperetti +9 more

Strength and functional correlates of reachable workspace in facioscapulohumeral muscular dystrophy

Neuromuscular Disorders(2025)10.1016/j.nmd.2025.105279
N/A
0DataRank · unranked
2 citations

Maya N. Hatch, Michael P. McDermott, William B. Martens, Katy Eichinger, Leann Lewis +14 more

AI driven analysis of MRI to measure health and disease progression in FSHD

Scientific Reports(2024)10.1038/s41598-024-65802-x
N/A
0DataRank · unranked
17 citations

Olivia DuCharme, Matthew Cousins, Xue Feng, Allison Kenney, Jacob Morris +12 more