Benjamin S. Wilfond

Also affiliated with University of Washington, Seattle Children's Hospital

MedicineBiochemistry, Genetics and Molecular BiologyHealth Professions

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 100%percentile

0Author DataRank

Indexed papers

0in pilot corpus

datarank_citation_only_1hop_v6· scope data_onlyMethodology

Papers

Driven by 50 papers. Top paper: “Evaluation of cognitive function in the Dog Aging Project: associations with baseline canine characteristics”.

Evaluation of cognitive function in the Dog Aging Project: associations with baseline canine characteristics

Scientific Reports(2022)10.1038/s41598-022-15837-9

N/A

0.524DataRank · unranked

32 citations

Annette L. Fitzpatrick, Stephen M. Schwartz, Kate E. Creevy, Audrey Ruple, Vanessa Wilkins +23 more

Age and Physical Activity Levels in Companion Dogs: Results From the Dog Aging Project

The Journals of Gerontology Series A(2022)10.1093/gerona/glac099

N/A

0.520DataRank · unranked

31 citations

Devin Collins, Kate E. Creevy, Daniel E.L. Promislow, Joshua M. Akey, Brooke Benton +23 more

Hyperhydration to Improve Kidney Outcomes in Children with Shiga Toxin-Producing E. coli Infection: a multinational embedded cluster crossover randomized trial (the HIKO STEC trial)

Trials(2023)10.1186/s13063-023-07379-w

N/A

0.485DataRank · unranked

12 citations

David Schnadower, Myka L. Estes, T. Charles Casper, Stuart L. Goldstein, Silviu Grisaru +7 more

Development and early implementation of an Accessible, Relational, Inclusive and Actionable approach to genetic counseling: The ARIA model

Patient Education and Counseling(2020)10.1016/j.pec.2020.12.017

N/A

0.477DataRank · unranked

23 citations

Laura M. Amendola, Marian J. Gilmore, Cláudia Guerra, Barbara B. Biesecker, Tia L. Kauffman +9 more

Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews

Hereditary Cancer in Clinical Practice(2022)10.1186/s13053-022-00231-3

N/A

0.395DataRank · unranked

10 citations

Hannah Lewis, Devan M. Duenas, Donna J. Eubanks, Marian J. Gilmore, Katrina A.B. Goddard +12 more

Banking on a new understanding: translational opportunities from veterinary biobanks

GeroScience(2023)10.1007/s11357-023-00763-z

N/A

0.312DataRank · unranked

7 citations

Lara Mouttham, Joshua M. Akey, Brooke Benton, Elhanan Borenstein, Amanda E. Coleman +23 more

Perspectives of Hispanic and Latinx Community Members on AI-Enabled mHealth Tools: Qualitative Focus Group Study

Journal of Medical Internet Research(2024)10.2196/59817

N/A

0.208DataRank · unranked

3 citations

Shaan Chopra, Miriana C. Duran, Janet Rojina, A. Beretta, Katherine I López +6 more

Conceptualization of utility in translational clinical genomics research

The American Journal of Human Genetics(2021)10.1016/j.ajhg.2021.08.013

N/A

0DataRank · unranked

30 citations

Kyle B. Brothers, Sara J. Knight, Sara Ackerman, Christine Rini, David L. Veenstra +4 more

An ethics framework for consolidating and prioritizing COVID-19 clinical trials

Clinical Trials(2021)10.1177/1740774520988669

N/A

0DataRank · unranked

25 citations

Luke Gelinas, Barbara E. Bierer, Sara Chandros Hull, Steven Joffe, David Magnus +7 more

Patient perspectives on how to demonstrate respect: Implications for clinicians and healthcare organizations

PLoS ONE(2021)10.1371/journal.pone.0250999

N/A

0DataRank · unranked

17 citations

Devan M. Duenas, Hannah Lewis, Katherine Anderson, Douglas J. Opel, Benjamin S. Wilfond +2 more

Ethical, legal and social implications of human genome studies in radiation research: a workshop report for studies on atomic bomb survivors at the Radiation Effects Research Foundation

Journal of Radiation Research(2021)10.1093/jrr/rrab043

N/A

0DataRank · unranked

5 citations

Kazuto Kato, Chieko Tamura, Leslie G. Biesecker, Misa Imaizumi, Yusuke Inoue +6 more

Creating a Research Ethics Consultation Service: Issues to Consider

Ethics & Human Research(2021)10.1002/eahr.500101

N/A

0DataRank · unranked

5 citations

Kathryn M. Porter, Erin Paquette, Jennifer B. McCormick, Emma Tumilty, Jason F. Arnold +7 more

An accessible, relational, inclusive, and actionable (ARIA) model of genetic counseling compared with usual care: Results of a randomized controlled trial

Genetics in Medicine(2022)10.1016/j.gim.2022.07.025

N/A

0DataRank · unranked

13 citations

Michael C. Leo, Leslie Riddle, Cláudia Guerra, Laura M. Amendola, Marian J. Gilmore +16 more

Ethical and epistemic issues in the design and conduct of pragmatic stepped-wedge cluster randomized clinical trials

Contemporary Clinical Trials(2022)10.1016/j.cct.2022.106703

N/A

0DataRank · unranked

12 citations

Patrick J. Heagerty, John D. Lantos, P. Pearl O’Rourke, Vasiliki Rahimzadeh, Jeremy Sugarman +5 more

Laboratory-related outcomes from integrating an accessible delivery model for hereditary cancer risk assessment and genetic testing in populations with barriers to access

Genetics in Medicine(2022)10.1016/j.gim.2022.02.006

N/A

0DataRank · unranked

11 citations

Elizabeth Shuster, Michael C. Leo, Michael O. Dorschner, Bradley A. Rolf, Brian H. Shirts +73 more

Lessons learned about publication of results of community surveys when regulatory oversight has not occurred

SSM - Qualitative Research in Health(2022)10.1016/j.ssmqr.2022.100091

N/A

0DataRank · unranked

3 citations

Alexandra C. H. Nowakowski, Julie Lazzara, E. Aliaj, Kathryn M. Porter, Stephanie A. Kraft +4 more

Social determinants of health and disease in companion dogs: a cohort study from the Dog Aging Project

Evolution Medicine and Public Health(2023)10.1093/emph/eoad011

N/A

0DataRank · unranked

26 citations

Layla Brassington, Kelly Jin, Greer Dolby, Sandi Shrager, Devin Collins +26 more

Most people share genetic test results with relatives even if the findings are normal: Family communication in a diverse population

Genetics in Medicine(2023)10.1016/j.gim.2023.100923

N/A

0DataRank · unranked

15 citations

Leslie Riddle, Galen Joseph, Laura M. Amendola, Marian J. Gilmore, Jamilyn M. Zepp +73 more

Experiences and preferences for learning about neonatal research: insights from parent interviews

Journal of Perinatology(2023)10.1038/s41372-023-01790-6

N/A

0DataRank · unranked

13 citations

Kathryn M. Porter, Ellie Oslin, Mihai Puia‐Dumitrescu, Pamela Donohue, Stephanie L. Merhar +4 more

Medical interpreter‐mediated genetic counseling for Spanish preferring adults at risk for a hereditary cancer syndrome

Journal of Genetic Counseling(2023)10.1002/jgc4.1695

N/A

0DataRank · unranked

11 citations

Nangel M. Lindberg, Cláudia Guerra, Cindy Hernandez, Leah Karliner, Marian J. Gilmore +8 more

Longitudinal adherence to breast cancer surveillance following cancer genetic testing in an integrated health care system

Breast Cancer Research and Treatment(2023)10.1007/s10549-023-07007-w

N/A

0DataRank · unranked

7 citations

Boya Guo, Karen J. Wernli, Kathleen F. Mittendorf, Heather Spencer Feigelson, Marian J. Gilmore +13 more

Promoting equity, inclusion, and efficiency: A team science approach to the development of authorship guidelines for a multi-disciplinary research team

Journal of Clinical and Translational Science(2023)10.1017/cts.2023.685

N/A

0DataRank · unranked

4 citations

Barbara B. Biesecker, Sandra Soo‐Jin Lee, Katherine Anderson, Galen Joseph, Charisma L. Jenkins +5 more

Incentives in Pediatric Research in Developing Countries: When Are They Too Much?

PEDIATRICS(2023)10.1542/peds.2021-055702

N/A

0DataRank · unranked

3 citations

Devan M. Duenas, Benjamin S. Wilfond, Luke Gelinas, Armand H. Matheny Antommaria, Erwin Jiayuan Khoo

Measuring high‐risk parents' opinions about direct‐to‐consumer genetic testing for adult‐onset inherited cancer syndromes in their adolescent and young adult children

Journal of Genetic Counseling(2023)10.1002/jgc4.1685

N/A

0DataRank · unranked

3 citations

Beth N. Peshkin, Jada G. Hamilton, Jamie Brower, Hannah Ovadia, Lainie Friedman Ross +10 more

Research recruitment through the patient portal: perspectives of community focus groups in Seattle and Atlanta

JAMIA Open(2023)10.1093/jamiaopen/ooad004

N/A

0DataRank · unranked

3 citations

Stephanie A. Kraft, Candace D. Speight, Devan M. Duenas, Nyiramugisha Niyibizi, Andrea R. Mitchell +7 more

Pediatric oncologist referral practices for CAR T-cell therapy: A mixed methods study.

Journal of Clinical Oncology(2023)10.1200/jco.2023.41.16_suppl.10026

N/A

0DataRank · unranked

1 citations

Devan M. Duenas, Jenna Voutsinas, Vicky Wu, Adam J. Lamble, Benjamin S. Wilfond +4 more

Advancing genomics to improve health equity

Nature Genetics(2024)10.1038/s41588-024-01711-z

N/A

0DataRank · unranked

53 citations

Lucia A. Hindorff, Vence L. Bonham, Tabia Henry Akintobi, Esteban G. Burchard, Kellan Baker +32 more

Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing

Genetics in Medicine(2024)10.1016/j.gim.2024.101146

N/A

0DataRank · unranked

17 citations

Caryn Kseniya Rubanovich, Jill O. Robinson, Ariel Levchenko, Sarah A Classen, Janet Malek +8 more

Motivations for and against Participation in Neonatal Research: Insights from Interviews of Diverse Parents Approached for Neonatal Research in the United States

The Journal of Pediatrics(2024)10.1016/j.jpeds.2024.113923

N/A

0DataRank · unranked

13 citations

Pamela Donohue, Susan H. Wootton, Emily Stevens, Stephanie L. Merhar, Mihai Puia‐Dumitrescu +5 more

Characterizing dog cognitive aging using spontaneous problem-solving measures: development of a battery of tests from the Dog Aging Project

GeroScience(2024)10.1007/s11357-024-01278-x

N/A

0DataRank · unranked

10 citations

Emily E. Bray, Stephanie McGrath, Gene E. Alexander, Theadora A. Block, Naomi Chao +38 more

Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening

Genetics in Medicine(2024)10.1016/j.gim.2024.101240

N/A

0DataRank · unranked

10 citations

Caryn Kseniya Rubanovich, Jill O. Robinson, Ariel Levchenko, Sarah A Classen, Janet Malek +9 more

Parent attitudes towards predictive testing for autism in the first year of life

Journal of Neurodevelopmental Disorders(2024)10.1186/s11689-024-09561-w

N/A

0DataRank · unranked

7 citations

Amanda H. Mercer, Catherine A. Burrows, Stephen R. Dager, Jed T. Elison, Annette Estes +10 more

Ethical considerations for sharing aggregate results from pragmatic clinical trials

Clinical Trials(2024)10.1177/17407745241290782

N/A

0DataRank · unranked

4 citations

Abigail Brickler, Joseph Ali, P. Pearl O’Rourke, Kayte Spector‐Bagdady, Benjamin S. Wilfond +5 more

Perspectives of pediatric oncologists on referral for CAR-T therapy: a mixed methods pilot study

JNCI Cancer Spectrum(2024)10.1093/jncics/pkae063

N/A

0DataRank · unranked

2 citations

Devan M. Duenas, Jenna Voutsinas, Qian Wu, Adam J. Lamble, Elizabeth Gruber +5 more

Evaluation of mailed results versus telephone disclosure of normal cancer genetic test results in a low-risk underserved population

Translational Behavioral Medicine(2024)10.1093/tbm/ibad084

N/A

0DataRank · unranked

1 citations

Michael C. Leo, Laura M. Amendola, Katrina A.B. Goddard, Jessica Ezzell Hunter, Galen Joseph +7 more

Feasibility of an electronic patient-facing cancer family history tool in medically underserved populations

Genetics in Medicine Open(2024)10.1016/j.gimo.2024.101860

N/A

0DataRank · unranked

0 citations

Kathleen F. Mittendorf, Sonia Okuyama, Kathryn M. Porter, Joanna E. Bulkley, Elizabeth Shuster +12 more

PRenatal mOdulator treatment to PrEvent CF complicaTions (PROTECT) workshop report

Journal of Cystic Fibrosis(2025)10.1016/j.jcf.2025.07.015

N/A

0DataRank · unranked

17 citations

Dara Riva, Yair J. Blumenfeld, John F. Engelhardt, Carmen Luna‐Paredes, Carlos Milla +17 more

Towards better enrollment decision-making for perinatal clinical research: Reconsidering recruitment and consent processes to support family values and preferences

Seminars in Perinatology(2025)10.1016/j.semperi.2025.152055

N/A

0DataRank · unranked

5 citations

Benjamin S. Wilfond, Stephanie A. Kraft, Elliott Mark Weiss

When families bridge the research-clinical divide: An exploration of values regarding cascade screening in genomic research

Genetics in Medicine Open(2025)10.1016/j.gimo.2025.103440

N/A

0DataRank · unranked

1 citations

Lauren Desrosiers, Ann Katherine M. Foreman, Nuriye Sahin‐Hodoglugil, Mary A. Majumder, Candice R. Finnila +9 more

Parental Communication With their Children about Cancer Risk and DTC Cascade Genetic Testing: Implications for Genetic Education and Counseling

American Journal of Medical Genetics Part A(2025)10.1002/ajmg.a.64115

N/A

0DataRank · unranked

2 citations

Talia Zamir, Beth N. Peshkin, Jada G. Hamilton, Mingqian Liu, Mary Rose Yockel +10 more

Pediatric DTC Genetic Testing for Adult-Onset Inherited Cancer Risk: The Perspectives of High-Risk Parents

Public Health Genomics(2025)10.1159/000543913

N/A

0DataRank · unranked

1 citations

Beth N. Peshkin, Jada G. Hamilton, Jamie Brower, Hannah Ovadia, Lainie Friedman Ross +12 more

Anticipation of a therapeutic odyssey following predictive testing for autism

Scientific Reports(2025)10.1038/s41598-025-23197-3

N/A

0DataRank · unranked

1 citations

Aurora M. Washington, Catherine A. Burrows, Stephen R. Dager, Jed T. Elison, Annette Estes +9 more

WITHDRAWN: Towards better enrollment decision-making for perinatal clinical research: reconsidering recruitment and consent processes to support family values and preferences

Seminars in Perinatology(2025)10.1016/j.semperi.2025.152027

N/A

0DataRank · unranked

0 citations

Benjamin S. Wilfond, Stephanie A. Kraft, Elliott Mark Weiss

“Now I have to act on that”: Parent anticipation of a therapeutic odyssey following predictive testing for autism

Research Square(2025)10.21203/rs.3.rs-7123259/v1

N/A

0DataRank · unranked

0 citations

Aurora M. Washington, Catherine A. Burrows, Stephen R. Dager, Jed T. Elison, Annette Estes +9 more

Protection Versus Progress: The Challenge of Research on Cannabis Use During Pregnancy

PEDIATRICS(2020)10.1542/peds.2020-0818r

N/A

0DataRank · unranked

9 citations

Natalia M. Kleinhans, Kaeley Stout, Benjamin S. Wilfond, Katherine E. MacDuffie

Assessing Parent Decisions About Child Participation in a Behavioral Health Intervention Study and Utility of Informed Consent Forms

JAMA Network Open(2020)10.1001/jamanetworkopen.2020.9296

N/A

0DataRank · unranked

3 citations

Kathryn M. Porter, Devan M. Duenas, Erin Sullivan, Maya G Rowland, Brian E. Saelens +3 more

Recommendations for ethical approaches to genotype-driven research recruitment

UNC Libraries(2020)10.17615/4ftw-cg79

N/A

0DataRank · unranked

0 citations

Laura M. Beskow, Benjamin S. Wilfond, Arlene M. Davis, Stephanie M. Fullerton, Emily Namey +1 more

The Invisible Hand in Clinical Research: The Study Coordinator's Critical Role in Human Subjects Protection

PubMed Central(2020)10.17615/8mj3-xe65

N/A

0DataRank · unranked

0 citations

Gail E. Henderson, Christine Grady, Benjamin S. Wilfond, Sara Chandros Hull, Arlene M. Davis

Research Participants' Perspectives on Genotype-Driven Research Recruitment

UNC Libraries(2020)10.17615/d8yt-vx96

N/A

0DataRank · unranked

0 citations

Laura M. Beskow, Julia M. Crouch, Daniel K. Nelson, Benjamin S. Wilfond, Tracy Brazg +3 more

Informed consent: Old and new challenges in the context of the COVID-19 pandemic

Journal of Clinical and Translational Science(2021)10.1017/cts.2021.401

N/A

0DataRank · unranked

38 citations

Donna Brassil, Marietta Barton-Baxter, Kimberly A. Brownley, Neal W. Dickert, Daniel E. Ford +4 more