🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Andrea Lowden

The University of Texas Southwestern Medical Center

ORCID: 0000-0002-3204-0790
MedicineNeuroscience

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 6%percentile
0.280Author DataRank

Indexed papers

1in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 1 indexed paper attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Neuronal ceroid lipofuscinoses type 7 (CLN7): a case series reporting cross sectional and retrospective clinical data to evaluate validity of standardized tools to assess disease progression, quality of life, and adaptive skills

Orphanet Journal of Rare Diseases(2024)10.1186/s13023-024-03448-8
Top 57%
0.280DataRank
Top 57%5 citations

Veronica BordesEdgar, Andrea Lowden, Emily R. Nettesheim, Hamza Dahshi, Souad Messahel +3 more

Papers

Driven by 3 papers — median percentile 43. Top paper: “Neuronal ceroid lipofuscinoses type 7 (CLN7): a case series reporting cross sectional and retrospective clinical data to evaluate validity of standardized tools to assess disease progression, quality of life, and adaptive skills”.

Neuronal ceroid lipofuscinoses type 7 (CLN7): a case series reporting cross sectional and retrospective clinical data to evaluate validity of standardized tools to assess disease progression, quality of life, and adaptive skills

Orphanet Journal of Rare Diseases(2024)10.1186/s13023-024-03448-8
Top 57%
0.280DataRank
Top 57%5 citations

Veronica BordesEdgar, Andrea Lowden, Emily R. Nettesheim, Hamza Dahshi, Souad Messahel +3 more

Neuronal Ceroid Lipofuscinoses Type 7 (CLN7)- A Case Series Reporting Cross Sectional and Retrospective Clinical Data to Evaluate Validity of Standardized Tools to Assess Disease Progression, Quality of Life, and Adaptive Skills

Research Square(2024)10.21203/rs.3.rs-3983366/v1
N/A
0DataRank · unranked
0 citations

Veronica Bordes Edgar, Andrea Lowden, Emily R. Nettesheim, Hamza Dahshi, Souad Messahel +3 more

First-in-human high dose AAV9 intrathecal gene therapy for paediatric CLN7 disease: a phase 1, open-label, single ascending dose, non-randomised clinical trial

EBioMedicine(2025)10.1016/j.ebiom.2025.106044
N/A
0DataRank · unranked
1 citations

Berge A. Minassian, Souad Messahel, Veronica Bordes Edgar, Andrea Lowden, Hamza Dahshi +10 more