🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Alicia Casey

Boston Children's Hospital

ORCID: 0000-0002-3566-9690

Also affiliated with Harvard University, University Hospital Galway, St. Vincent's University Hospital, Boston Children's Museum

Medicine

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 4%percentile
0.723Author DataRank

Indexed papers

1in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 1 indexed paper attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

The U.S. National Registry for Childhood Interstitial and Diffuse Lung Disease: Report of Study Design and Initial Enrollment Cohort

(2023)10.22541/au.167985552.21776673/v1
Top 28%
0.723DataRank
Top 28%11 citations

Gail Deutsch, Daniel Craven, Robin R. Deterding, Martha P. Fishman, Jennifer Wambach +30 more

Papers

Driven by 9 papers — median percentile 72. Top paper: “Discontinuation versus continuation of hypertonic saline or dornase alfa in modulator treated people with cystic fibrosis (SIMPLIFY): results from two parallel, multicentre, open-label, randomised, controlled, non-inferiority trials”.

Discontinuation versus continuation of hypertonic saline or dornase alfa in modulator treated people with cystic fibrosis (SIMPLIFY): results from two parallel, multicentre, open-label, randomised, controlled, non-inferiority trials

The Lancet Respiratory Medicine(2022)10.1016/s2213-2600(22)00434-9
N/A
3.9DataRank · unranked
127 citations

Félix Ratjen, Renee Russell, Scott H. Donaldson, Kristin A. Riekert, Gregory S. Sawicki +91 more

The U.S. National Registry for Childhood Interstitial and Diffuse Lung Disease: Report of Study Design and Initial Enrollment Cohort

(2023)10.22541/au.167985552.21776673/v1
Top 28%
0.723DataRank
Top 28%11 citations

Gail Deutsch, Daniel Craven, Robin R. Deterding, Martha P. Fishman, Jennifer Wambach +30 more

A homozygous stop-gain variant in ARHGAP42 is associated with childhood interstitial lung disease, systemic hypertension, and immunological findings

PLoS Genetics(2021)10.1371/journal.pgen.1009639
N/A
0DataRank · unranked
7 citations

Michal Dibus, Alicia Casey, Christina Yee, Sara O. Vargas, Shiyu Luo +15 more

Diagnosis of Post-Hematopoietic Stem Cell Transplantation Bronchiolitis Obliterans Syndrome in Children: Time for a Rethink?

Transplantation and Cellular Therapy(2024)10.1016/j.jtct.2024.05.012
N/A
0DataRank · unranked
11 citations

William A. Gower, Kenneth R. Cooke, Anne Bergeron, Kirk R. Schultz, Amisha V. Barochia +23 more

Innovations in Childhood Interstitial and Diffuse Lung Disease

Clinics in Chest Medicine(2024)10.1016/j.ccm.2024.04.002
N/A
0DataRank · unranked
4 citations

Elizabeth K. Fiorino, Jennifer Wambach, Alicia Casey

Severe Features of Systemic Juvenile Idiopathic Arthritis in Patients With Congenital Heart Disease

The Journal of Rheumatology(2024)10.3899/jrheum.2024-0180
N/A
0DataRank · unranked
2 citations

Holly Wobma, Aaida Samad, Mia T. Chandler, Margaret H. Chang, Fatma Dedeoğlu +11 more

Vaping and e-cigarette use. Mysterious lung manifestations and an epidemic

Current Opinion in Immunology(2020)10.1016/j.coi.2020.10.003
N/A
0DataRank · unranked
43 citations

Eleanor D. Muise, Laura E. Crotty Alexander, Alicia Casey

Genetic Testing Utilization in the U.S. Registry for Childhood Interstitial and Diffuse Lung Diseases

Pediatric Pulmonology(2025)10.1002/ppul.71073
N/A
0DataRank · unranked
5 citations

Rebekah J. Nevel, Jennifer Wambach, Lawrence M. Nogee, Robin R. Deterding, Alicia Casey +19 more

Severe delayed hypersensitivity reactions to IL-1 and IL-6 inhibitors link to common HLA-DRB1*15 alleles

Annals of the Rheumatic Diseases(2021)10.1136/annrheumdis-2021-220578
N/A
0DataRank · unranked
107 citations

Michael J. Ombrello, Adriana H. Tremoulet, Gonzalo Montero-Martín, Sampath Prahalad, Scott Canna +89 more