🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Emma Ciafaloni

University of Rochester Medicine

ORCID: 0000-0002-3925-3289

Also affiliated with University of Rochester

Biochemistry, Genetics and Molecular BiologyMedicineNeuroscience

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 3%percentile
1.6Author DataRank

Indexed papers

2in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 2 indexed papers attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Association of genetic mutations and loss of ambulation in childhood‐onset dystrophinopathy

Muscle & Nerve(2020)10.1002/mus.27113
Top 21%
0.970DataRank
Top 21%20 citations

Kristin M. Conway, Pangaja Paramsothy, Anindya Roy, Hobart Rogers, Ling Xiang +17 more

Papers

Driven by 12 papers — median percentile 74. Top paper: “Phase 2 Trial of Rituximab in Acetylcholine Receptor Antibody-Positive Generalized Myasthenia Gravis”.

Phase 2 Trial of Rituximab in Acetylcholine Receptor Antibody-Positive Generalized Myasthenia Gravis

Neurology(2021)10.1212/wnl.0000000000013121
N/A
4.5DataRank · unranked
137 citations

Christopher S. Coffey, Jonathan M. Goldstein, Mazen M. Dimachkie, Michael Benatar, John T. Kissel +25 more

Association of genetic mutations and loss of ambulation in childhood‐onset dystrophinopathy

Muscle & Nerve(2020)10.1002/mus.27113
Top 21%
0.970DataRank
Top 21%20 citations

Kristin M. Conway, Pangaja Paramsothy, Anindya Roy, Hobart Rogers, Ling Xiang +17 more

Safety and efficacy of arimoclomol for inclusion body myositis: a multicentre, randomised, double-blind, placebo-controlled trial

The Lancet Neurology(2023)10.1016/s1474-4422(23)00275-2
N/A
0.867DataRank · unranked
34 citations

Michael McDermott, Thomas Blaettler, Claus Sundgreen, Anthony A. Amato, Emma Ciafaloni +74 more

Racial and Ethnic Differences in Timing of Diagnosis and Clinical Services Received in Duchenne Muscular Dystrophy

Neuroepidemiology(2023)10.1159/000528962
Top 30%
0.653DataRank
Top 30%16 citations

Yanan Zhang, Suzanne McDermott, Yinding Wang, Bo Cai, Kristin M. Conway +7 more

Selected clinical and demographic factors and all-cause mortality among individuals with Duchenne muscular dystrophy in the Muscular Dystrophy Surveillance, Tracking, and Research Network

Neuromuscular Disorders(2022)10.1016/j.nmd.2022.04.008
N/A
0.385DataRank · unranked
12 citations

Yinding Wang, Bo Cai, Kristin M. Conway, Nicholas E. Johnson, Shree Pandya +6 more

Differentiation of Pediatric-Onset Duchenne and Becker Muscular Dystrophy Subphenotypes Using Data from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet)

Journal of Neuromuscular Diseases(2021)10.3233/jnd-210739
N/A
0.269DataRank · unranked
5 citations

the MD STARnet, Molly M. Lamb, Kristin M. Conway, Natalie Street, Christina Westfield +4 more

Circulating protein biomarkers identified in two independent clinical trial cohorts of glucocorticoid-naive Duchenne muscular dystrophy patients.

Scientific Reports(2025)10.1038/s41598-025-23758-6
N/A
0DataRank · unranked
3 citations

Rebecca Tobin, C. Degan, Ahmed Naveed, Michela Guglieri, Albert Jiménez-Requena +88 more

Myasthenia gravis patient and physician opinions about immunosuppressant reduction

Muscle & Nerve(2020)10.1002/mus.26850
N/A
0DataRank · unranked
9 citations

Anna Rostedt Punga, Emma Ciafaloni, Michael K. Hehir

Left ventricular dysfunction in Duchenne muscular dystrophy

Cardiology in the Young(2020)10.1017/s1047951119002610
N/A
0DataRank · unranked
25 citations

Jane Gralla, Leslie Ridall, N. ThuyQuynh, Angela S. Czaja, Peter M. Mourani +9 more

Health related quality of life in young, steroid-naïve boys with Duchenne muscular dystrophy

Neuromuscular Disorders(2021)10.1016/j.nmd.2021.06.001
N/A
0DataRank · unranked
8 citations

Elaine McColl, Michael McDermott, William B. Martens, Michela Guglieri, Robert C. Griggs +42 more

Health Profile of Preterm Males With Duchenne Muscular Dystrophy

Journal of Child Neurology(2021)10.1177/08830738211047019
N/A
0DataRank · unranked
2 citations

Bailey Wallace, Nedra Whitehead, M.G.H. Smith, Joshua R. Mann, Shiny Thomas +2 more

Time to diagnosis of Duchenne muscular dystrophy remains unchanged: Findings from the Muscular Dystrophy Surveillance, Tracking, and Research Network, 2000‐2015

Muscle & Nerve(2022)10.1002/mus.27532
N/A
0DataRank · unranked
62 citations

Kristin M. Conway, Olushola Fapo, Natalie Street, Katherine D. Mathews, Joshua R. Mann +6 more