🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Clair A. Francomano

Indiana University – Purdue University Indianapolis

ORCID: 0000-0002-4032-7425

Also affiliated with Indiana University

Biochemistry, Genetics and Molecular BiologyMedicine

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 5%percentile
0.466Author DataRank

Indexed papers

1in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 1 indexed paper attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Longitudinal analysis of symptoms in the Ehlers‐Danlos syndromes

American Journal of Medical Genetics Part A(2022)10.1002/ajmg.a.62640
Top 41%
0.466DataRank
Top 41%8 citations

Susan E. Mills, Élise Schaefer, Rebecca Bascom, Clair A. Francomano, Jane R. Schubart

Papers

Driven by 18 papers — median percentile 59. Top paper: “Longitudinal analysis of symptoms in the Ehlers‐Danlos syndromes”.

Longitudinal analysis of symptoms in the Ehlers‐Danlos syndromes

American Journal of Medical Genetics Part A(2022)10.1002/ajmg.a.62640
Top 41%
0.466DataRank
Top 41%8 citations

Susan E. Mills, Élise Schaefer, Rebecca Bascom, Clair A. Francomano, Jane R. Schubart

Respiratory manifestations in the Ehlers–Danlos syndromes

American Journal of Medical Genetics Part C Seminars in Medical Genetics(2021)10.1002/ajmg.c.31953
N/A
0DataRank · unranked
19 citations

Radha Dhingra, Clair A. Francomano, Rebecca Bascom

Combination of common mtDNA variants results in mitochondrial dysfunction and a connective tissue dysregulation

Proceedings of the National Academy of Sciences(2022)10.1073/pnas.2212417119
N/A
0DataRank · unranked
22 citations

Leonardo Scherer Alves, Maria Lvova, Jessica Huang, Komal S. Rathi, Kevin A. Janssen +11 more

Hereditary alpha-tryptasemia modifies clinical phenotypes among individuals with congenital hypermobility disorders

Human Genetics and Genomics Advances(2022)10.1016/j.xhgg.2022.100094
N/A
0DataRank · unranked
12 citations

Jack Chovanec, Ji‐Won Kim, Thomas DiMaggio, Joshua D. Milner, Clair A. Francomano +5 more

Evolving Attitudes Toward Numeric Pain Assessment Among Patients with Hypermobile Ehlers-Danlos Syndrome: A Qualitative Interview Study

Pain Medicine(2022)10.1093/pm/pnac167
N/A
0DataRank · unranked
10 citations

Kurt Kroenke, Heather L. Penwell, Clair A. Francomano, Colin Halverson

Novel mtDNA Imparts the Connective Tissue Disorder of a Tourette Pedigree

bioRxiv (Cold Spring Harbor Laboratory)(2022)10.1101/2022.02.25.481696
N/A
0DataRank · unranked
0 citations

Leonardo Scherer Alves, Maria Lvova, Jessica Huang, Komal S. Rathi, Kevin A. Janssen +9 more

Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes

SSM - Qualitative Research in Health(2023)10.1016/j.ssmqr.2023.100237
N/A
0DataRank · unranked
49 citations

Heather L. Penwell, Clair A. Francomano, Colin Halverson

Comorbidity, misdiagnoses, and the diagnostic odyssey in patients with hypermobile Ehlers-Danlos syndrome

Genetics in Medicine Open(2023)10.1016/j.gimo.2023.100812
N/A
0DataRank · unranked
45 citations

Sha Cao, Susan M. Perkins, Clair A. Francomano, Colin Halverson

Patient Interest in the Development of a Center for Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorder in the Chicagoland Region

Research Square(2023)10.21203/rs.3.rs-3034682/v1
N/A
0DataRank · unranked
2 citations

Tom Doyle, Clair A. Francomano, Dacre Knight, Colin Halverson, Wendy Wagner

Mast cell activation syndrome: Current understanding and research needs

Journal of Allergy and Clinical Immunology(2024)10.1016/j.jaci.2024.05.025
N/A
0DataRank · unranked
33 citations

Matthew P. Giannetti, Matthew J. Hamilton, Péter Novák, Olga Pozdnyakova, Jennifer Nicoloro‐SantaBarbara +19 more

Assessment of gait mechanics and muscle strength in hypermobile Ehlers Danlos Syndrome

Clinical Biomechanics(2024)10.1016/j.clinbiomech.2024.106210
N/A
0DataRank · unranked
8 citations

Mariana V. Jacobs, Christopher J. McLouth, Jody L. Clasey, Clair A. Francomano, Mary B. Sheppard +2 more

The Financial Impact of Ehlers-Danlos Syndromes on Patients in the United States in 2022

Mayo Clinic Proceedings Innovations Quality & Outcomes(2024)10.1016/j.mayocpiqo.2024.11.003
N/A
0DataRank · unranked
2 citations

Élise Schaefer, Susan E. Mills, Dacre Knight, Chan Shen, Clair A. Francomano +1 more

Patient interest in the development of a center for Ehlers-Danlos syndrome/hypermobility spectrum disorder in the Chicagoland region

Orphanet Journal of Rare Diseases(2024)10.1186/s13023-024-03109-w
N/A
0DataRank · unranked
3 citations

Tom A. Doyle, Clair A. Francomano, Dacre Knight, Colin Halverson, Wendy Wagner

Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome

Research Square(2024)10.21203/rs.3.rs-4547888/v1
N/A
0DataRank · unranked
4 citations

Tyler Beck, Lilong Guo, Taylor Petrucci, Jordan E. Morningstar, Isabelle Kornblau +51 more

Physical and Psychosocial Outcomes of a Weekend Retreat for People Living with Hypermobile Ehlers-Danlos Syndrome

ASEAN Journal of Psychiatry(2024)10.54615/2231-7805.10.4.156
N/A
0DataRank · unranked
0 citations

Clair A. Francomano, Ryan H Wood, Forefront Therapy, Evansville, Indiana, USA, Colin ME Halverson, Sarah K Book

KLK15 alters connective tissues in hypermobile Ehlers-Danlos syndrome

iScience(2025)10.1016/j.isci.2025.113343
N/A
0DataRank · unranked
8 citations

Taylor Petrucci, Tyler Beck, Victoria Daylor, Molly Griggs, Charlotte Griggs +52 more

Prevalence of hypermobile Ehlers-Danlos syndrome in postural orthostatic tachycardia syndrome

Autonomic Neuroscience(2020)10.1016/j.autneu.2020.102637
N/A
0DataRank · unranked
97 citations

Lauren E. Stiles, Timothy Sheehan, Rebecca Bascom, Howard P. Levy, Clair A. Francomano +2 more

Sources and consequences of self-doubt in patients with Ehlers-Danlos syndrome: a qualitative study in Europe and North America

BMJ Open(2025)10.1136/bmjopen-2025-109681
N/A
0DataRank · unranked
0 citations

Samantha L Vershaw, Clair A. Francomano, Tom Doyle, Colin Halverson