🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Jean K. Mah

University of Calgary

ORCID: 0000-0002-5795-9955

Also affiliated with Alberta Children's Hospital, Alberta Children's Hospital Research Institute

Biochemistry, Genetics and Molecular BiologyMedicineNeuroscience

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 2%percentile
2.2Author DataRank

Indexed papers

2in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 2 indexed papers attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Meta-analyses of ataluren randomized controlled trials in nonsense mutation Duchenne muscular dystrophy

Journal of Comparative Effectiveness Research(2020)10.2217/cer-2020-0095
Top 13%
1.6DataRank
Top 13%63 citations

Richard J. Barohn, Enrico Bertini, B. Chabrol, Giacomo P. Comi, Basil T. Darras +32 more

Papers

Driven by 13 papers — median percentile 77. Top paper: “Efficacy and Safety of Vamorolone in Duchenne Muscular Dystrophy”.

Efficacy and Safety of Vamorolone in Duchenne Muscular Dystrophy

JAMA Network Open(2022)10.1001/jamanetworkopen.2021.44178
N/A
2.0DataRank · unranked
89 citations

Paula R. Clemens, Michela Guglieri, Edward C. Smith, Richard S. Finkel, M. Tulinius +92 more

Meta-analyses of ataluren randomized controlled trials in nonsense mutation Duchenne muscular dystrophy

Journal of Comparative Effectiveness Research(2020)10.2217/cer-2020-0095
Top 13%
1.6DataRank
Top 13%63 citations

Richard J. Barohn, Enrico Bertini, B. Chabrol, Giacomo P. Comi, Basil T. Darras +32 more

Efficacy and Safety of Vamorolone Over 48 Weeks in Boys With Duchenne Muscular Dystrophy

Neurology(2024)10.1212/wnl.0000000000208112
N/A
1.5DataRank · unranked
71 citations

Jesse M. Damsker, Michela Guglieri, Paula R. Clemens, Seth J. Perlman, Edward C. Smith +39 more

Efficacy and safety of vamorolone in Duchenne muscular dystrophy: An 18-month interim analysis of a non-randomized open-label extension study

PLoS Medicine(2020)10.1371/journal.pmed.1003222
N/A
0.729DataRank · unranked
82 citations

Laurie S. Conklin, Eric P. Hoffman, Paula R. Clemens, Jean K. Mah, Richard S. Finkel +22 more

Findings from the Longitudinal CINRG Becker Natural History Study

Journal of Neuromuscular Diseases(2023)10.3233/jnd-230178
Top 32%
0.610DataRank
Top 32%9 citations

Heather Gordish‐Dressman, Gabriela Niizawa, Ksenija Gorni, Michela Guglieri, Anne M. Connolly +15 more

Novel approaches to analysis of the North Star Ambulatory Assessment (NSAA) in Duchenne muscular dystrophy (DMD): Observations from a phase 2 trial

PLoS ONE(2022)10.1371/journal.pone.0272858
N/A
0.473DataRank · unranked
12 citations

Michela Guglieri, Jean K. Mah, Kathryn R. Wagner, John F. Brandsema, Russell J. Butterfield +7 more

Health related quality of life in young, steroid-naïve boys with Duchenne muscular dystrophy

Neuromuscular Disorders(2021)10.1016/j.nmd.2021.06.001
N/A
0DataRank · unranked
8 citations

Elaine McColl, Michael McDermott, William B. Martens, Michela Guglieri, Robert C. Griggs +42 more

Life-Saving Treatments for Spinal Muscular Atrophy

Neurology Clinical Practice(2023)10.1212/cpj.0000000000200224
N/A
0DataRank · unranked
18 citations

Basil T. Darras, Ahmad Abulaban, Ali Alshehri, Nina Barišić, Tawfeg Ben‐Omran +22 more

Rasch Analysis of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales Administered to Patients With Duchenne Muscular Dystrophy

Value in Health(2021)10.1016/j.jval.2021.05.016
N/A
0DataRank · unranked
12 citations

Joel Iff, Erik Henricson, V. Vishwanathan, S. Chidambaranathan, W. Douglas Biggar +33 more

CHRNB1‐associated congenital myasthenia syndrome: Expanding the clinical spectrum

American Journal of Medical Genetics Part A(2020)10.1002/ajmg.a.62011
N/A
0DataRank · unranked
13 citations

Anisha C. Schwarz, Brianna K. Brei, Sarah V. Clowes Candadai, Jenny Thies, Jean K. Mah +5 more

Choroid Plexus Volume in Pediatric-Onset Multiple Sclerosis

Neurology Neuroimmunology & Neuroinflammation(2024)10.1212/nxi.0000000000200319
N/A
0DataRank · unranked
10 citations

Luke Bloy, Phillip Kaplan, Amit Bar‐Or, E. Ann Yeh, Douglas L. Arnold +27 more

Circulating protein biomarkers identified in two independent clinical trial cohorts of glucocorticoid-naive Duchenne muscular dystrophy patients.

Scientific Reports(2025)10.1038/s41598-025-23758-6
N/A
0DataRank · unranked
3 citations

Rebecca Tobin, C. Degan, Ahmed Naveed, Michela Guglieri, Albert Jiménez-Requena +88 more

Exposure-response of serum biomarkers to vamorolone, a dissociative corticosteroidal anti-inflammatory drug, in 4- to <7-year children

Steroids(2025)10.1016/j.steroids.2025.109721
N/A
0DataRank · unranked
0 citations

Utkarsh J. Dang, Michael Ziemba, Yetrib Hathout, Paula R. Clemens, Jesse M. Damsker +17 more