🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Marion Main

Carle Foundation Hospital

ORCID: 0000-0002-8407-946X

Also affiliated with Great Ormond Street Hospital, University College London

MedicineBiochemistry, Genetics and Molecular Biology

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 2%percentile
2.2Author DataRank

Indexed papers

2in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 2 indexed papers attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Respiratory Trajectories in Type 2 and 3 Spinal Muscular Atrophy in the iSMAC Cohort Study

Neurology(2020)10.1212/wnl.0000000000011051
Top 10%
2.2DataRank
Top 10%82 citations

Deborah Ridout, Mariacristina Scoto, Giorgia Coratti, Marion Main, R. Muni Lofra +25 more

Papers

Driven by 6 papers — median percentile 90. Top paper: “Respiratory Trajectories in Type 2 and 3 Spinal Muscular Atrophy in the iSMAC Cohort Study”.

Respiratory Trajectories in Type 2 and 3 Spinal Muscular Atrophy in the iSMAC Cohort Study

Neurology(2020)10.1212/wnl.0000000000011051
Top 10%
2.2DataRank
Top 10%82 citations

Deborah Ridout, Mariacristina Scoto, Giorgia Coratti, Marion Main, R. Muni Lofra +25 more

Efficacy and Safety of Vamorolone in Duchenne Muscular Dystrophy

JAMA Network Open(2022)10.1001/jamanetworkopen.2021.44178
N/A
2.0DataRank · unranked
89 citations

Paula R. Clemens, Michela Guglieri, Edward C. Smith, Richard S. Finkel, M. Tulinius +92 more

Long-term Natural History of Pediatric Dominant and Recessive RYR1 -Related Myopathy

Neurology(2023)10.1212/wnl.0000000000207723
N/A
0.406DataRank · unranked
14 citations

Mario Sa, Deborah Ridout, Miguel Angel Fernandez-Garcia, Maria Grazia Distefano, Marion Main +14 more

P148 Analysis of upper limb functional outcomes in a single centre paediatric cohort of non-ambulatory patients with Duchenne muscular dystrophy

Neuromuscular Disorders(2023)10.1016/j.nmd.2023.07.083
N/A
0DataRank · unranked
0 citations

Deborah Ridout, V. Crook, S. Robb, Alberto A. Zambon, Rosaline C. M. Quinlivan +5 more

Therapeutic Role of Nusinersen on Respiratory Progression in Pediatric Patients With Spinal Muscular Atrophy Type 2 and Nonambulant Type 3

Neurology Clinical Practice(2024)10.1212/cpj.0000000000200298
N/A
0DataRank · unranked
14 citations

Deborah Ridout, Harriet Weststrate, Mariacristina Scoto, Annemarie Rohwer, Giorgia Coratti +32 more

Disease Trajectories in the Revised Hammersmith Scale in a Cohort of Untreated Patients with Spinal Muscular Atrophy types 2 and 3

Journal of Neuromuscular Diseases(2024)10.3233/jnd-230211
N/A
0DataRank · unranked
13 citations

Georgia Stimpson, Danielle Ramsey, Giorgia Coratti, Sally Dunaway Young, Anna Mayhew +29 more