Alan K. Percy

University of Alabama at Birmingham Hospital

Also affiliated with University of Alabama at Birmingham, Pediatric Nephrology of Alabama

Biochemistry, Genetics and Molecular BiologyNeurosciencePsychologyMedicine

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 7%percentile

0.104Author DataRank

Indexed papers

1in pilot corpus

datarank_citation_only_1hop_v6· scope data_onlyMethodology

Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 1 indexed paper attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Natural history of epilepsy in FOXG1 Syndrome

Epilepsy Research(2025)10.1016/j.eplepsyres.2025.107644

Top 78%

0.104DataRank

Top 78%1 citations

Benjamin Rees, Holly Dubbs, Mollie Lesser, Lucas E. Morgan, Tim A. Benke +4 more

Papers

Driven by 25 papers — median percentile 22. Top paper: “Trofinetide for the treatment of Rett syndrome: a randomized phase 3 study”.

Trofinetide for the treatment of Rett syndrome: a randomized phase 3 study

Nature Medicine(2023)10.1038/s41591-023-02398-1

N/A

4.2DataRank · unranked

190 citations

Alan K. Percy, Tim A. Benke, Elizabeth Berry‐Kravis, Daniel G. Glaze, Eric D. Marsh +5 more

Top caregiver concerns in Rett syndrome and related disorders: data from the US natural history study

Journal of Neurodevelopmental Disorders(2023)10.1186/s11689-023-09502-z

N/A

1.6DataRank · unranked

57 citations

Tim A. Benke, Eric D. Marsh, Bernhard Suter, Lori Silveira, Cary Fu +12 more

Anxiety-like behavior and anxiolytic treatment in the Rett syndrome natural history study

Journal of Neurodevelopmental Disorders(2022)10.1186/s11689-022-09432-2

N/A

0.897DataRank · unranked

45 citations

Jennifer L. Stallworth, Aubin E. Joy, Rebekah E. Dixon, Alexandra E. Scott, Arthur Beisang +16 more

Natural history of epilepsy in FOXG1 Syndrome

Epilepsy Research(2025)10.1016/j.eplepsyres.2025.107644

Top 78%

0.104DataRank

Top 78%1 citations

Benjamin Rees, Holly Dubbs, Mollie Lesser, Lucas E. Morgan, Tim A. Benke +4 more

Microbial community changes in a female rat model of Rett syndrome

Progress in Neuro-Psychopharmacology and Biological Psychiatry(2021)10.1016/j.pnpbp.2021.110259

N/A

0DataRank · unranked

13 citations

Kelsey Patterson, Abigael R. Weit, William J. Van Der Pol, Laura G. Dubois, Alan K. Percy +4 more

Analysis of X‐inactivation status in a Rett syndrome natural history study cohort

Molecular Genetics & Genomic Medicine(2022)10.1002/mgg3.1917

N/A

0DataRank · unranked

23 citations

Kameryn M. Butler, Fatima Abidi, Jennifer Gass, Arthur Beisang, Timothy Feyma +14 more

Anthropometric Measures Correspond with Functional Motor Outcomes in Females with Rett Syndrome

The Journal of Pediatrics(2022)10.1016/j.jpeds.2022.01.009

N/A

0DataRank · unranked

16 citations

Suzanne Geerts, Fran Annese, Jeffrey L. Neul, Tim A. Benke, Eric D. Marsh +11 more

A review of the Rett Syndrome Behaviour Questionnaire and its utilization in the assessment of symptoms associated with Rett syndrome

Frontiers in Pediatrics(2023)10.3389/fped.2023.1229553

N/A

0DataRank · unranked

31 citations

Jeffrey L. Neul, Tim A. Benke, Eric D. Marsh, Daniel G. Glaze, Alan K. Percy

Distribution of hand function by age in individuals with Rett syndrome

Annals of the Child Neurology Society(2023)10.1002/cns3.20038

N/A

0DataRank · unranked

12 citations

Tim A. Benke, Eric D. Marsh, Jane B. Lane, David N. Lieberman, Steven A. Skinner +11 more

Parental age effects and Rett syndrome

American Journal of Medical Genetics Part A(2023)10.1002/ajmg.a.63396

N/A

0DataRank · unranked

3 citations

Lauren M. Baggett, Raymond Caylor, Alan K. Percy, Jeffrey L. Neul, Jane B. Lane +8 more

Top Caregiver Concerns in Rett syndrome and related disorders: data from the US Natural History Study

Research Square(2023)10.21203/rs.3.rs-2566253/v1

N/A

0DataRank · unranked

14 citations

Tim A. Benke, Eric D. Marsh, Bernhard Suter, Lori Silveira, Cary Fu +4 more

Rett syndrome: The Natural History Study journey

Annals of the Child Neurology Society(2024)10.1002/cns3.20086

N/A

0DataRank · unranked

11 citations

Tim A. Benke, Eric D. Marsh, Jeffrey L. Neul, Alan K. Percy

Burden of illness in Rett syndrome: initial evaluation of a disorder-specific caregiver survey

Orphanet Journal of Rare Diseases(2024)10.1186/s13023-024-03313-8

N/A

0DataRank · unranked

10 citations

Alan K. Percy, Jeffrey L. Neul, Jenny Downs, Helen Leonard, Paige Nues +12 more

Clinical Features and Disease Progression in Older Individuals with Rett Syndrome

Genes(2024)10.3390/genes15081107

N/A

0DataRank · unranked

8 citations

Tim A. Benke, Eric D. Marsh, Bernhard Suter, Cary Fu, Robin C. Ryther +9 more

Normalized Clinical Severity Scores Reveal a Correlation between X Chromosome Inactivation and Disease Severity in Rett Syndrome

Genes(2024)10.3390/genes15050594

N/A

0DataRank · unranked

8 citations

Xiaolan Fang, Raymond Caylor, Steven A. Skinner, Michael J. Friez, Alan K. Percy +2 more

Rett syndrome diagnostic odyssey: Limitations of NextGen sequencing

American Journal of Medical Genetics Part A(2024)10.1002/ajmg.a.63725

N/A

0DataRank · unranked

3 citations

Katie Angione, Emily K. Forbes, Mikayla Stoecker, Margarita Sáenz, Jeffrey L. Neul +5 more

Deletions in the CDKL5 5′ untranslated region lead to CDKL5 deficiency disorder

American Journal of Medical Genetics Part A(2024)10.1002/ajmg.a.63843

N/A

0DataRank · unranked

2 citations

Ralph D. Hector, Lindsay C. Swanson, Aubrie Soucy Verran, Emma Sherrill, Zoë Frazier +20 more

Rett syndrome: A coming of age

Translational Science of Rare Diseases(2024)10.3233/trd-240069

N/A

0DataRank · unranked

0 citations

Alan K. Percy

Symptom Onset in Classic Rett Syndrome: Analysis of Initial Clinical Severity Scale Entries

Annals of the Child Neurology Society(2025)10.1002/cns3.70017

N/A

0DataRank · unranked

1 citations

Jeffrey L. Neul, Amitha Ananth, Tim A. Benke, Eric D. Marsh, Alan K. Percy

Living With Rett Syndrome: From Discovery to Clinical Advancements and Emerging Therapies

Pediatric Neurology(2025)10.1016/j.pediatrneurol.2025.10.021

N/A

0DataRank · unranked

0 citations

Alan K. Percy, Amitha Ananth, Sasha Taluri

Metabolic Signatures Differentiate Rett Syndrome From Unaffected Siblings

Frontiers in Integrative Neuroscience(2020)10.3389/fnint.2020.00007

N/A

0DataRank · unranked

44 citations

Steven A. Skinner, Fran Annese, Jane B. Lane, Peter Heydemann, Mary Jones +4 more

Trajectory of skill acquisition, loss, and regain in females with classic Rett syndrome

Research Square(2025)10.21203/rs.3.rs-8245192/v1

N/A

0DataRank · unranked

0 citations

Tim A. Benke, Eric D. Marsh, Sarika U. Peters, Cary Fu, Jonathan K. Merritt +2 more

Current neurologic treatment and emerging therapies in CDKL5 deficiency disorder

Journal of Neurodevelopmental Disorders(2021)10.1186/s11689-021-09384-z

N/A

0DataRank · unranked

48 citations

Carolyn I. Daniels, Isabel Haviland, Lindsay C. Swanson, Caitlin Greene, Anne Marie M. Denny +14 more

Progressive, Long-Term Hearing Loss in Congenital CMV Disease After Ganciclovir Therapy

Journal of the Pediatric Infectious Diseases Society(2021)10.1093/jpids/piab095

N/A

0DataRank · unranked

32 citations

A. Chantal Caviness, Peggy Blum, Gail J. Demmler‐Harrison, Congenital Cytomegalovirus Longitudinal Study Group, Shahzad Ahmed +39 more

Recommendations by the ClinGen Rett/Angelman‐like expert panel for gene‐specific variant interpretation methods

Human Mutation(2021)10.1002/humu.24302

N/A

0DataRank · unranked

16 citations

Lora Jh Bean, Izabela Karbassi, Katelynn Beattie, Thierry Bienvenu, Hope Bonin +13 more

Alan K. Percy

Indexed papers

Top data-sharing exemplar

Papers