🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Saima Kayani

Southwestern Medical Center

ORCID: 0000-0003-1081-6428

Also affiliated with The University of Texas Southwestern Medical Center

Biochemistry, Genetics and Molecular BiologyMedicine

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 6%percentile
0.280Author DataRank

Indexed papers

1in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 1 indexed paper attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Neuronal ceroid lipofuscinoses type 7 (CLN7): a case series reporting cross sectional and retrospective clinical data to evaluate validity of standardized tools to assess disease progression, quality of life, and adaptive skills

Orphanet Journal of Rare Diseases(2024)10.1186/s13023-024-03448-8
Top 57%
0.280DataRank
Top 57%5 citations

Veronica BordesEdgar, Andrea Lowden, Emily R. Nettesheim, Hamza Dahshi, Souad Messahel +3 more

Papers

Driven by 4 papers — median percentile 43. Top paper: “Combination of triheptanoin with the ketogenic diet in Glucose transporter type 1 deficiency (G1D)”.

Combination of triheptanoin with the ketogenic diet in Glucose transporter type 1 deficiency (G1D)

Scientific Reports(2023)10.1038/s41598-023-36001-x
N/A
0.301DataRank · unranked
5 citations

Ignacio Málaga, Deepa Sirsi, Saima Kayani, Sharon Primeaux, Gauri Kathote +7 more

Neuronal ceroid lipofuscinoses type 7 (CLN7): a case series reporting cross sectional and retrospective clinical data to evaluate validity of standardized tools to assess disease progression, quality of life, and adaptive skills

Orphanet Journal of Rare Diseases(2024)10.1186/s13023-024-03448-8
Top 57%
0.280DataRank
Top 57%5 citations

Veronica BordesEdgar, Andrea Lowden, Emily R. Nettesheim, Hamza Dahshi, Souad Messahel +3 more

Neuronal Ceroid Lipofuscinoses Type 7 (CLN7)- A Case Series Reporting Cross Sectional and Retrospective Clinical Data to Evaluate Validity of Standardized Tools to Assess Disease Progression, Quality of Life, and Adaptive Skills

Research Square(2024)10.21203/rs.3.rs-3983366/v1
N/A
0DataRank · unranked
0 citations

Veronica Bordes Edgar, Andrea Lowden, Emily R. Nettesheim, Hamza Dahshi, Souad Messahel +3 more

First-in-human high dose AAV9 intrathecal gene therapy for paediatric CLN7 disease: a phase 1, open-label, single ascending dose, non-randomised clinical trial

EBioMedicine(2025)10.1016/j.ebiom.2025.106044
N/A
0DataRank · unranked
1 citations

Berge A. Minassian, Souad Messahel, Veronica Bordes Edgar, Andrea Lowden, Hamza Dahshi +10 more