🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Marinka Twilt

University of Calgary

ORCID: 0000-0003-1954-2822
MedicineHealth Professions

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 4%percentile
0.906Author DataRank

Indexed papers

2in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 2 indexed papers attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

A decade of progress in juvenile idiopathic arthritis treatments and outcomes in Canada: results from ReACCh-Out and the CAPRI registry

Lara D. Veeken(2023)10.1093/rheumatology/kead560
Top 34%
0.576DataRank
Top 34%16 citations

Julie Barsalou, Daniah Basodan, Michelle Batthish, Susanne M Benseler, Roberta Berard +69 more

Papers

Driven by 19 papers — median percentile 57. Top paper: “The 2021 EULAR/American College of Rheumatology points to consider for diagnosis, management and monitoring of the interleukin-1 mediated autoinflammatory diseases: cryopyrin-associated periodic syndromes, tumour necrosis factor receptor-associated periodic syndrome, mevalonate kinase deficiency, and deficiency of the interleukin-1 receptor antagonist”.

The 2021 EULAR/American College of Rheumatology points to consider for diagnosis, management and monitoring of the interleukin-1 mediated autoinflammatory diseases: cryopyrin-associated periodic syndromes, tumour necrosis factor receptor-associated periodic syndrome, mevalonate kinase deficiency, and deficiency of the interleukin-1 receptor antagonist

Annals of the Rheumatic Diseases(2022)10.1136/annrheumdis-2021-221801
N/A
0.737DataRank · unranked
135 citations

Zehra Serap Arıcı, David Piskin, Sara Alehashemi, Daniel Aletaha, Karyl S. Barron +26 more

A decade of progress in juvenile idiopathic arthritis treatments and outcomes in Canada: results from ReACCh-Out and the CAPRI registry

Lara D. Veeken(2023)10.1093/rheumatology/kead560
Top 34%
0.576DataRank
Top 34%16 citations

Julie Barsalou, Daniah Basodan, Michelle Batthish, Susanne M Benseler, Roberta Berard +69 more

The 2021 EULAR/American College of Rheumatology Points to Consider for Diagnosis, Management and Monitoring of the Interleukin‐1 Mediated Autoinflammatory Diseases: Cryopyrin‐Associated Periodic Syndromes, Tumour Necrosis Factor Receptor‐Associated Periodic Syndrome, Mevalonate Kinase Deficiency, and Deficiency of the Interleukin‐1 Receptor Antagonist

Arthritis & Rheumatology(2022)10.1002/art.42139
N/A
0.561DataRank · unranked
41 citations

Zehra Serap Arıcı, David Piskin, Sara Alehashemi, Daniel Aletaha, Karyl S. Barron +26 more

2021 American College of Rheumatology Guideline for the Treatment of Juvenile Idiopathic Arthritis: Recommendations for Nonpharmacologic Therapies, Medication Monitoring, Immunizations, and Imaging

Arthritis & Rheumatology(2022)10.1002/art.42036
N/A
0.550DataRank · unranked
38 citations

Daniel B. Horton, Daniel J. Lovell, Susan Shenoi, Carlos A. Cuello‐García, Sheila T. Angeles‐Han +32 more

Feasibility of Conducting Comparative Effectiveness Research and Validation of a Clinical Disease Activity Score for Chronic Nonbacterial Osteomyelitis

The Journal of Rheumatology(2023)10.3899/jrheum.2022-1323
N/A
0.464DataRank · unranked
21 citations

Melissa Oliver, Joshua Scheck, Sivia Lapidus, Ümmüşen Kaya Akça, Shima Yasin +26 more

Patterns of etanercept use in juvenile idiopathic arthritis in the Childhood Arthritis and Rheumatology Research Alliance Registry

Pediatric Rheumatology(2021)10.1186/s12969-021-00625-y
Top 52%
0.330DataRank
Top 52%5 citations

Aimee Lougee, Roland Matsouaka, David H. Collier, Dax G. Rumsey, Jennifer Schenfeld +93 more

“Online survey of COVID-19 immunization and infection in patients with systemic juvenile idiopathic arthritis and adult-onset still’s disease.”

Pediatric Rheumatology(2023)10.1186/s12969-023-00911-x
N/A
0DataRank · unranked
0 citations

Subrata Paul, Carol L. Lake, Ly-Lan Bergeron, Rashmi Sinha, Luciana Peixoto +3 more

Approaches and outcomes of adalimumab discontinuation in patients with well-controlled inflammatory arthritis: a systematic search and review

Pediatric Rheumatology(2024)10.1186/s12969-024-01046-3
N/A
0DataRank · unranked
4 citations

Jessica Fennell, Kevin Baszis, Y. Ingrid Goh, Daniel B. Horton, Tzielan Lee +6 more

Provider assessment of the temporomandibular joint in Juvenile idiopathic arthritis: a retrospective analysis from the CARRA database

Pediatric Rheumatology(2024)10.1186/s12969-024-00968-2
N/A
0DataRank · unranked
2 citations

Marinka Twilt, Melissa A. Lerman, for the CARRA Registry investigators, Anna Costello

Reliability assessment of the OMERACT whole-body magnetic resonance imaging scoring system for juvenile idiopathic arthritis

Seminars in Arthritis and Rheumatism(2024)10.1016/j.semarthrit.2024.152437
N/A
0DataRank · unranked
4 citations

Mirkamal Tolend, Eva Kirkhus, Arthur B. Meyers, Bernadette Redd, Iwona Sudoł‐Szopińska +20 more

Renal Response Outcomes of the EuroLupus and National Institutes of Health Cyclophosphamide Dosing Regimens in Childhood‐Onset Proliferative Lupus Nephritis

UNC Libraries(2024)10.17615/v1nc-ge85
N/A
0DataRank · unranked
4 citations

William Daniel Soulsby, Rebecca E. Sadun, Elmer Y. Tu, Meredith Riebschleger, Christine Wang +17 more

Provider Assessment of the Temporomandibular Joint in Juvenile Idiopathic Arthritis: A Retrospective Analysis from the CARRA Database

Research Square(2024)10.21203/rs.3.rs-3837818/v1
N/A
0DataRank · unranked
1 citations

Marinka Twilt, Melissa A. Lerman, Anna Costello

Consensus-driven conceptual development of a standardized whole body-MRI scoring system for assessment of disease activity in juvenile idiopathic arthritis: MRI in JIA OMERACT working group

Seminars in Arthritis and Rheumatism(2021)10.1016/j.semarthrit.2021.07.017
N/A
0DataRank · unranked
27 citations

Mirkamal Tolend, Bernadette Redd, Hemalatha Srinivasalu, Robert A. Colbert, Jonathan Akikusa +19 more

Characteristics Associated With EuroLupus Versus Modified National Institutes of Health Cyclophosphamide Regimen Use in Children and Young Adults With Lupus Nephritis

ACR Open Rheumatology(2025)10.1002/acr2.70132
N/A
0DataRank · unranked
0 citations

Rebecca E. Sadun, Wenru Zhou, Kristen Miller, Stacy P. Ardoin, Christine Bearer +15 more

2021 American College of Rheumatology Guideline for the Treatment of Juvenile Idiopathic Arthritis: Therapeutic Approaches for Oligoarthritis, Temporomandibular Joint Arthritis, and Systemic Juvenile Idiopathic Arthritis

Arthritis & Rheumatology(2022)10.1002/art.42037
N/A
0DataRank · unranked
232 citations

Daniel B. Horton, Daniel J. Lovell, Susan Shenoi, Carlos A. Cuello‐García, Sheila T. Angeles‐Han +32 more

2021 American College of Rheumatology Guideline for the Treatment of Juvenile Idiopathic Arthritis: Therapeutic Approaches for Oligoarthritis, Temporomandibular Joint Arthritis, and Systemic Juvenile Idiopathic Arthritis

Arthritis Care & Research(2022)10.1002/acr.24853
N/A
0DataRank · unranked
99 citations

Daniel B. Horton, Daniel J. Lovell, Susan Shenoi, Carlos A. Cuello‐García, Sheila T. Angeles‐Han +32 more

2021 American College of Rheumatology Guideline for the Treatment of Juvenile Idiopathic Arthritis: Recommendations for Nonpharmacologic Therapies, Medication Monitoring, Immunizations, and Imaging

Arthritis Care & Research(2022)10.1002/acr.24839
N/A
0DataRank · unranked
47 citations

Daniel B. Horton, Daniel J. Lovell, Susan Shenoi, Carlos A. Cuello‐García, Sheila T. Angeles‐Han +32 more

Feasibility of Conducting Comparative Effectiveness Research and Validation of a Clinical Disease Activity Score for Chronic Nonbacterial Osteomyelitis

medRxiv(2022)10.1101/2022.10.03.22280351
N/A
0DataRank · unranked
1 citations

Melissa Oliver, Joshua Scheck, Sivia Lapidus, Ümmüşen Kaya Akça, Shima Yasin +26 more

Renal Response Outcomes of the EuroLupus and National Institutes of Health Cyclophosphamide Dosing Regimens in Childhood‐Onset Proliferative Lupus Nephritis

Arthritis & Rheumatology(2023)10.1002/art.42725
N/A
0DataRank · unranked
13 citations

Rebecca E. Sadun, Wenru Zhou, Kristen Miller, Laura Pyle, Stacey P. Ardoin +16 more