🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Nancy L. Kuntz

Northwestern University

ORCID: 0000-0003-2253-5156

Also affiliated with Lurie Children's Hospital, Lurie Children's Hospital, University Hospital Carl Gustav Carus, Robert H. Lurie Comprehensive Cancer Center of Northwestern University, Technische Universität Dresden

MedicineBiochemistry, Genetics and Molecular BiologyNeuroscience

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 4%percentile
0.610Author DataRank

Indexed papers

1in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 1 indexed paper attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Findings from the Longitudinal CINRG Becker Natural History Study

Journal of Neuromuscular Diseases(2023)10.3233/jnd-230178
Top 32%
0.610DataRank
Top 32%9 citations

Heather Gordish‐Dressman, Gabriela Niizawa, Ksenija Gorni, Michela Guglieri, Anne M. Connolly +15 more

Papers

Driven by 14 papers — median percentile 68. Top paper: “Efficacy and Safety of Vamorolone in Duchenne Muscular Dystrophy”.

Efficacy and Safety of Vamorolone in Duchenne Muscular Dystrophy

JAMA Network Open(2022)10.1001/jamanetworkopen.2021.44178
N/A
2.0DataRank · unranked
89 citations

Paula R. Clemens, Michela Guglieri, Edward C. Smith, Richard S. Finkel, M. Tulinius +92 more

Efficacy and Safety of Vamorolone Over 48 Weeks in Boys With Duchenne Muscular Dystrophy

Neurology(2024)10.1212/wnl.0000000000208112
N/A
1.5DataRank · unranked
71 citations

Jesse M. Damsker, Michela Guglieri, Paula R. Clemens, Seth J. Perlman, Edward C. Smith +39 more

Efficacy and safety of vamorolone in Duchenne muscular dystrophy: An 18-month interim analysis of a non-randomized open-label extension study

PLoS Medicine(2020)10.1371/journal.pmed.1003222
N/A
0.729DataRank · unranked
82 citations

Laurie S. Conklin, Eric P. Hoffman, Paula R. Clemens, Jean K. Mah, Richard S. Finkel +22 more

Intrathecal Onasemnogene Abeparvovec for Sitting, Nonambulatory Patients with Spinal Muscular Atrophy: Phase I Ascending-Dose Study (STRONG)

Journal of Neuromuscular Diseases(2023)10.3233/jnd-221560
N/A
0.626DataRank · unranked
64 citations

Basil T. Darras, Jerry R. Mendell, John W. Day, Nancy L. Kuntz, Anne M. Connolly +12 more

Findings from the Longitudinal CINRG Becker Natural History Study

Journal of Neuromuscular Diseases(2023)10.3233/jnd-230178
Top 32%
0.610DataRank
Top 32%9 citations

Heather Gordish‐Dressman, Gabriela Niizawa, Ksenija Gorni, Michela Guglieri, Anne M. Connolly +15 more

Pathogenic Variants in the Myosin Chaperone UNC-45B Cause Progressive Myopathy with Eccentric Cores

The American Journal of Human Genetics(2020)10.1016/j.ajhg.2020.11.002
N/A
0.578DataRank · unranked
46 citations

Carl Elias Kutzner, Ying Hu, Xavière Lornage, John Rendu, Tanya Stojkovic +42 more

Effects of gene replacement therapy with resamirigene bilparvovec (AT132) on skeletal muscle pathology in X-linked myotubular myopathy: results from a substudy of the ASPIRO open-label clinical trial

EBioMedicine(2023)10.1016/j.ebiom.2023.104894
N/A
0DataRank · unranked
10 citations

Benedikt Schoser, Marta Margeta, Caroline A. Sewry, Karra A. Jones, Perry B. Shieh +34 more

Rasch Analysis of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales Administered to Patients With Duchenne Muscular Dystrophy

Value in Health(2021)10.1016/j.jval.2021.05.016
N/A
0DataRank · unranked
12 citations

Joel Iff, Erik Henricson, V. Vishwanathan, S. Chidambaranathan, W. Douglas Biggar +33 more

Longitudinal Assessment of Timed Function Tests in Ambulatory Individuals with SMA Treated with Nusinersen

Journal of Neuromuscular Diseases(2023)10.3233/jnd-221519
N/A
0DataRank · unranked
6 citations

Laurey Brown, Katie Hoffman, Katelyn Zumpf, Hannah Munson, Jessa Bidwell +7 more

A Virtual Reality Exergame: Clinician-Guided Breathing and Relaxation for Children with Muscular Dystrophy

PubMed(2023)10.1109/vrw58643.2023.00065
N/A
0DataRank · unranked
14 citations

Jennifer M. Vojtech, Serge H. Roy, Elise L. Townsend, Julie J. Keysor, Nancy L. Kuntz +4 more

Outcomes of early‐treated infants with spinal muscular atrophy: A multicenter, retrospective cohort study

Muscle & Nerve(2024)10.1002/mus.28267
N/A
0DataRank · unranked
12 citations

Amanda Rogers, Mark Fisher, Kapil Arya, John F. Brandsema, Hiba Farah +16 more

Circulating protein biomarkers identified in two independent clinical trial cohorts of glucocorticoid-naive Duchenne muscular dystrophy patients.

Scientific Reports(2025)10.1038/s41598-025-23758-6
N/A
0DataRank · unranked
3 citations

Rebecca Tobin, C. Degan, Ahmed Naveed, Michela Guglieri, Albert Jiménez-Requena +88 more

Health related quality of life in young, steroid-naïve boys with Duchenne muscular dystrophy

Neuromuscular Disorders(2021)10.1016/j.nmd.2021.06.001
N/A
0DataRank · unranked
8 citations

Elaine McColl, Michael McDermott, William B. Martens, Michela Guglieri, Robert C. Griggs +42 more

Exposure-response of serum biomarkers to vamorolone, a dissociative corticosteroidal anti-inflammatory drug, in 4- to <7-year children

Steroids(2025)10.1016/j.steroids.2025.109721
N/A
0DataRank · unranked
0 citations

Utkarsh J. Dang, Michael Ziemba, Yetrib Hathout, Paula R. Clemens, Jesse M. Damsker +17 more