🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Nawel Lalout

Radboud University Nijmegen

ORCID: 0000-0003-3707-8373

Also affiliated with Radboud University Medical Center, Sorbonne Université, Radboud Institute for Molecular Life Sciences, Duchenne Parent Project, Pitié-Salpêtrière Hospital

Biochemistry, Genetics and Molecular BiologyComputer ScienceDecision SciencesEngineering

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 2%percentile
2.7Author DataRank

Indexed papers

3in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 3 indexed papers attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Semantic modelling of common data elements for rare disease registries, and a prototype workflow for their deployment over registry data

Journal of Biomedical Semantics(2022)10.1186/s13326-022-00264-6
Top 14%
1.5DataRank
Top 14%53 citations

Mark D D. Wilkinson, Pablo Alarcón Moreno, Nirupama Benis, Ronald Cornet, Bruna dos Santos Vieira +14 more

Papers

Driven by 6 papers — median percentile 83. Top paper: “Semantic modelling of common data elements for rare disease registries, and a prototype workflow for their deployment over registry data”.

Semantic modelling of common data elements for rare disease registries, and a prototype workflow for their deployment over registry data

Journal of Biomedical Semantics(2022)10.1186/s13326-022-00264-6
Top 14%
1.5DataRank
Top 14%53 citations

Mark D D. Wilkinson, Pablo Alarcón Moreno, Nirupama Benis, Ronald Cornet, Bruna dos Santos Vieira +14 more

EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders

Orphanet Journal of Rare Diseases(2024)10.1186/s13023-024-03059-3
Top 17%
1.2DataRank
Top 17%22 citations

Dagmar Wandrei, Nawel Lalout, Rachel Thompson, Adrian Tassoni, Dimitrios Athanasiou +37 more

The FAIR journey of a patient-driven registry: Reflections and practical solutions from the Duchenne Data Platform FAIRification experience

Journal of Neuromuscular Diseases(2025)10.1177/22143602251382969
N/A
0.104DataRank · unranked
1 citations

Mark D D. Wilkinson, Dagmar Wandrei, Adrian Tassoni, Antonio Atalaia, Mario Prieto Godoy +15 more

Building expertise on FAIR through evolving Bring Your Own Data (BYOD) workshops: describing the data, software, and management-focused approaches and their evolution

Zenodo (CERN European Organization for Nuclear Research)(2023)10.5281/zenodo.8247728
N/A
0DataRank · unranked
0 citations

Lieze Thielemans, Rajaram Kaliyaperumal, Claudio Carta, Shuxin Zhang, Celia W. G. van Gelder +28 more

607P A patient-centered registry for rare neuromuscular disorders with federated FAIR infrastructure: the EURO-NMD Registry Hub

Neuromuscular Disorders(2024)10.1016/j.nmd.2024.07.565
Top 100%
0DataRank
Top 100%0 citations

A.C. ’t Hoen P, D. Athanasiou, C. D'Angelo, C. Kornblum, J. Kirschner +17 more

Building Expertise on FAIR Through Evolving Bring Your Own Data (BYOD) Workshops: Describing the Data, Software, and Management-focused Approaches and Their Evolution

Data Intelligence(2024)10.1162/dint_a_00236
N/A
0DataRank · unranked
0 citations

Lieze Thielemans, Rajaram Kaliyaperumal, Claudio Carta, Shuxin Zhang, Nirupama Benis +28 more