🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Katy Eichinger

University of Rochester Medicine

ORCID: 0000-0003-4623-7014
Biochemistry, Genetics and Molecular BiologyNeuroscienceMedicine

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 7%percentile
0.104Author DataRank

Indexed papers

1in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 1 indexed paper attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Patient‐reported disease burden in the Accelerate Clinical Trials in Charcot–Marie–Tooth Disease Study

Journal of the Peripheral Nervous System(2024)10.1111/jns.12662
Top 78%
0.104DataRank
Top 78%1 citations

Jennifer L. Purks, Nuran Dilek, Steffen Behrens‐Spraggins, Janet E. Sowden, Katy Eichinger +10 more

Papers

Driven by 9 papers — median percentile 22. Top paper: “Antisense oligonucleotide targeting DMPK in patients with myotonic dystrophy type 1: a multicentre, randomised, dose-escalation, placebo-controlled, phase 1/2a trial”.

Antisense oligonucleotide targeting DMPK in patients with myotonic dystrophy type 1: a multicentre, randomised, dose-escalation, placebo-controlled, phase 1/2a trial

The Lancet Neurology(2023)10.1016/s1474-4422(23)00001-7
N/A
1.7DataRank · unranked
60 citations

Richard T. Moxley, Katy Eichinger, Chad Heatwole, Laurence Mignon, W. David Arnold +22 more

Safety and efficacy of arimoclomol for inclusion body myositis: a multicentre, randomised, double-blind, placebo-controlled trial

The Lancet Neurology(2023)10.1016/s1474-4422(23)00275-2
N/A
0.867DataRank · unranked
34 citations

Michael McDermott, Thomas Blaettler, Claus Sundgreen, Anthony A. Amato, Emma Ciafaloni +74 more

Patient‐reported disease burden in the Accelerate Clinical Trials in Charcot–Marie–Tooth Disease Study

Journal of the Peripheral Nervous System(2024)10.1111/jns.12662
Top 78%
0.104DataRank
Top 78%1 citations

Jennifer L. Purks, Nuran Dilek, Steffen Behrens‐Spraggins, Janet E. Sowden, Katy Eichinger +10 more

Recruiting for an International Rare Disease Clinical Trial Readiness Study during the COVID‐19 pandemic: Challenges and solutions

Journal of the Peripheral Nervous System(2023)10.1111/jns.12559
N/A
0DataRank · unranked
1 citations

Steffen Behrens‐Spraggins, Janet E. Sowden, Davide Pareyson, Mary M. Reilly, Steven S. Scherer +4 more

A longitudinal study of disease progression in facioscapulohumeral muscular dystrophy (FSHD)

Muscle & Nerve(2024)10.1002/mus.28031
N/A
0DataRank · unranked
12 citations

Michael S. Todinca, Katy Eichinger, Susanne Heininger, Nuran Dilek, William B. Martens +6 more

Natural history of Charcot-Marie-Tooth disease type 2A: a large international multicentre study

Brain(2020)10.1093/brain/awaa323
N/A
0DataRank · unranked
92 citations

Shawna Feely, James M. Polke, Mariola Skorupinska, Laura Pérez, Rosemary Shy +55 more

Strength and functional correlates of reachable workspace in facioscapulohumeral muscular dystrophy

Neuromuscular Disorders(2025)10.1016/j.nmd.2025.105279
N/A
0DataRank · unranked
2 citations

Maya N. Hatch, Michael P. McDermott, William B. Martens, Katy Eichinger, Leann Lewis +14 more

Reliability of the Charcot‐Marie‐Tooth functional outcome measure

Journal of the Peripheral Nervous System(2020)10.1111/jns.12406
N/A
0DataRank · unranked
13 citations

Kayla Cornett, Timothy Estilow, Davide Pareyson, Riccardo Zuccarino, Mariola Skorupinska +9 more

Functional outcome measures in young, steroid-naïve boys with Duchenne muscular dystrophy

Neuromuscular Disorders(2022)10.1016/j.nmd.2022.02.012
N/A
0DataRank · unranked
9 citations

D. Moat, Michael McDermott, Michelle Eagle, Robert C. Griggs, Wendy King +46 more