🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Annika Jacobsen

Leiden University Medical Center

ORCID: 0000-0003-4818-2360
Computer ScienceBiochemistry, Genetics and Molecular BiologyDecision Sciences

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 2%percentile
1.9Author DataRank

Indexed papers

5in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 5 indexed papers attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Semantic modelling of common data elements for rare disease registries, and a prototype workflow for their deployment over registry data

Journal of Biomedical Semantics(2022)10.1186/s13326-022-00264-6
Top 14%
1.5DataRank
Top 14%53 citations

Mark D D. Wilkinson, Pablo Alarcón Moreno, Nirupama Benis, Ronald Cornet, Bruna dos Santos Vieira +14 more

Papers

Driven by 10 papers — median percentile 25. Top paper: “Applying the FAIR principles to data in a hospital: challenges and opportunities in a pandemic”.

Applying the FAIR principles to data in a hospital: challenges and opportunities in a pandemic

Journal of Biomedical Semantics(2022)10.1186/s13326-022-00263-7
N/A
2.1DataRank · unranked
65 citations

Rajaram Kaliyaperumal, César H. Bernabé, Qinqin Long, Simone A. Joosten, Henk Jan van der Wijk +6 more

Semantic modelling of common data elements for rare disease registries, and a prototype workflow for their deployment over registry data

Journal of Biomedical Semantics(2022)10.1186/s13326-022-00264-6
Top 14%
1.5DataRank
Top 14%53 citations

Mark D D. Wilkinson, Pablo Alarcón Moreno, Nirupama Benis, Ronald Cornet, Bruna dos Santos Vieira +14 more

MECP2 variation in Rett syndrome-An overview of current coverage of genetic and phenotype data within existing databases

Human Mutation(2018)10.1002/humu.23542
N/A
0.470DataRank · unranked
22 citations

Friederike Ehrhart, Henk J. van Kranen, Mark D D. Wilkinson, Annika Jacobsen, Marco Roos +5 more

Semantic modelling of Common Data Elements for Rare Disease registries, and a prototype workflow for their deployment over registry data

medRxiv(2021)10.1101/2021.07.27.21261169
Top 51%
0.345DataRank
Top 51%9 citations

Mark D D. Wilkinson, Pablo Alarcón Moreno, Nirupama Benis, Ronald Cornet, Bruna dos Santos Vieira +14 more

Additional file 1 of Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries

University of Groningen research database (University of Groningen / Centre for Information Technology)(2023)10.6084/m9.figshare.22609630
Top 100%
0DataRank
Top 100%0 citations

César H. Bernabé, Shuxin Zhang, Haitham Abaza, Nirupama Benis, Alberto Cámara +10 more

Building expertise on FAIR through evolving Bring Your Own Data (BYOD) workshops: describing the data, software, and management-focused approaches and their evolution

Zenodo (CERN European Organization for Nuclear Research)(2023)10.5281/zenodo.8247728
N/A
0DataRank · unranked
0 citations

Lieze Thielemans, Rajaram Kaliyaperumal, Claudio Carta, Shuxin Zhang, Celia W. G. van Gelder +28 more

FAIR-Prinzipien: Interpretationen und Überlegungen zur Umsetzung

Zenodo (CERN European Organization for Nuclear Research)(2020)10.5281/zenodo.6255623
N/A
0DataRank · unranked
0 citations

Ricardo de Miranda Azevedo, Nick Juty, Dominique Batista, Simon J. Coles, Ronald Cornet +38 more

FAIR implementation choices and challenges

Open MIND(2019)10.17605/osf.io/4v9pm
N/A
0DataRank · unranked
0 citations

Luiz Bonino, Barend Mons, Erik Anthony Schultes, Tobias Kuhn, Mark D D. Wilkinson +7 more

Building Expertise on FAIR Through Evolving Bring Your Own Data (BYOD) Workshops: Describing the Data, Software, and Management-focused Approaches and Their Evolution

Data Intelligence(2024)10.1162/dint_a_00236
N/A
0DataRank · unranked
0 citations

Lieze Thielemans, Rajaram Kaliyaperumal, Claudio Carta, Shuxin Zhang, Nirupama Benis +28 more

Additional file 2 of Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries

University of Groningen research database (University of Groningen / Centre for Information Technology)(2023)10.6084/m9.figshare.22609633
Top 100%
0DataRank
Top 100%0 citations

César H. Bernabé, Shuxin Zhang, Haitham Abaza, Nirupama Benis, Alberto Cámara +10 more