Quality of life in long-term breast cancer survivors in Sub-Saharan Africa: the African Breast Cancer–Disparities in Outcomes study is a dataset published in Journal of Cancer Survivorship (2024). On theSindex it has a DataRank of 0.122, placing it in the top 71.3% of the data-sharing corpus. It has been cited 1 time, with 1 citing works in its 1-hop citation network. Its calibrated FAIR score is 29/100.
Ranks in the top 71% for downstream scientific impact
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
“The datasets generated during and/or analysed during the current study are available on the study website (https:// abc- do. iarc. fr/)”
The paper provides a web URL (https://abc-do.iarc.fr/) that is not a persistent identifier scheme (DOI, Handle, ARK, or repository accession). [majority verdict 'partial' (3/5 passes agreed)]
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
“available on the study website (https:// abc- do. iarc. fr/)”
The holder named is the study website (abc-do.iarc.fr), which is a project website, not a curated repository listed in re3data/FAIRsharing. [majority verdict 'partial' (4/5 passes agreed)]
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
“The datasets generated during and/or analysed during the current study are available on the study website (https://abc-do.iarc.fr/) or from reasonable request to the study PI (Dr. Valerie McCormack, Prof. Isabel dos Santos Silva).”— not found in the paper; verdict downgraded
The dataset identifier appears only in the body text (data availability statement) and not as a reference-list entry. [downgraded to 'no' — no verifiable quote from the paper] [majority verdict 'no' (3/5 passes agreed)]
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“Data availability The datasets generated during and/or analysed during the current study are available on the study website (https:// abc- do. iarc. fr/) or from reasonable request to the study PI (Dr. Valerie McCormack, Prof. Isabel dos Santos Silva).”
The statement points to a study website (not a repository record) and a person, placing it in Colavizza categories 2/1; thus partial. [majority verdict 'partial' (3/5 passes agreed)]
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
The paper contains no itemised inventory (section, table, or list) describing the dataset's files, variables, or samples; it only states that datasets exist. [majority verdict 'no' (3/5 passes agreed)]
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“The datasets generated during and/or analysed during the current study are available on the study website (https://abc-do.iarc.fr/) or from reasonable request to the study PI (Dr. Valerie McCormack, Prof. Isabel dos Santos Silva).”— not found in the paper; verdict downgraded
The text provides a URL route to the data with no stated precondition (e.g., registration, embargo, or application). [downgraded to 'partial' — no verifiable quote from the paper] [majority verdict 'partial' (2/5 passes agreed)]
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“The datasets generated during and/or analysed during the current study are available on the study website (https://abc-do.iarc.fr/) or from reasonable request to the study PI (Dr. Valerie McCormack, Prof. Isabel dos Santos Silva).”— not found in the paper; verdict downgraded
The paper describes an access action (website URL or request to PI) but does not label the access level with a standard vocabulary term. [downgraded to 'no' — no verifiable quote from the paper] [majority verdict 'no' (3/5 passes agreed)]
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“or from reasonable request to the study PI (Dr. Valerie McCormack, Prof. Isabel dos Santos Silva)”
The paper names a natural person (the study PI) as the gatekeeper for the request route, not an institutional committee. [majority verdict 'partial' (3/5 passes agreed)]
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
The paper neither states when the data become available (implied as now) nor how long they persist, so no temporal commitment is made. [majority verdict 'no' (4/5 passes agreed)]
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
No file format (open or proprietary) is named for the released data.
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
The paper uses WHOQOL-BREF (a questionnaire) but does not name a data/metadata community standard (e.g., MIAME, DOI, or ontology) applied to the data. [majority verdict 'no' (4/5 passes agreed)]
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
The paper provides no identifier (DOI, accession, RRID) for any external resource used (e.g., the ABC-DO cohort, WHOQOL-BREF, or reference databases).
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
The Creative Commons Attribution 4.0 license is stated for the article, not for the data; no license is explicitly applied to the dataset.
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
The paper gives no version token or date for the dataset snapshot; it only refers to 'the datasets generated during and/or analysed during the current study'. [majority verdict 'no' (4/5 passes agreed)]
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
The paper does not mention any code availability; only the use of STATA v17 is noted without providing code.
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“The ABC-DO study and this QoL survey are funded by the US NIH National Cancer Institute (1R01CA244559)”
The paper provides an alphanumeric award/grant number (1R01CA244559) attached to a named funder, satisfying the 'yes' class.
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“QoL information was collected during a one-off interview (i) at BCS’ last ABC-DO follow-up phone call and (ii) face-to-face at recruitment for CF women.”
The data collection is described in generic terms without naming any specific instrument, kit, or software version used to produce the data. [majority verdict 'partial' (2/5 passes agreed)]
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
The paper does not mention a README, data dictionary, or codebook accompanying the data, nor does it contain a variable-definition table inside the article. [majority verdict 'no' (4/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.104
From this paper's citation signal
Citation Network Contribution
0.0182
From 1 citing papers with measurable signal
Ranked by each citer's contribution to N(p) — log1p(Cq) divided by its reference count — out of 1 citer.
US NIH National Cancer Institute
Grant: 1R01CA244559
Susan G. Komen
Grant: IIR 13264158
NCI NIH HHS
Grant: R01 CA244559
World Health Organization
Grant: 001
National Institutes of Health
Grant: 3R01CA244559-03S1
African Breast Cancer - Disparities in Outcomes - Plus (ABC-DO Plus): Ghana mentoring supplement
International Agency for Research on Cancer
FWCI
0.36
Citation Percentile
0.6%
Citation Trend
Fields of Study
MeSH Terms
Keywords
Sustainable Development Goals