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The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research

Genetics in Medicine(2021)10.1016/j.gim.2021.09.021Source: DataRank Database

The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research is a research paper published in Genetics in Medicine (2021). On theSindex it has a DataRank of 0. It has been cited 9 times.

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0DataRank · unranked

Scored on demand from live citation data

Open Access9 citations

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›Methodology & internals

datarank_citation_only_1hop_v6· scope data_onlyMethodology

Pipeline:MetadataData-paper checkEnrichmentCitation networkScoring

Enrichment:Funding (2 grants)Impact (FWCI 1.14)OA: greenTopics (28)IDs (PubMed, PMC, OpenAlex)

FAIR Checklist

Context only (not used in score)

Findable (1/2)

Has DOI

Accessible (1/2)

Open Access

Interoperable (0/2)

Reusable (0/3)

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Authors (9)

Simon Outram ORCID,Julia E. H. Brown ORCID,Astrid N. Zamora ORCID,Barbara A. Koenig ORCID,Neil Risch ORCID

Live enrichment

PubMed:34906477 PMC:PMC12970631 OpenAlex:https://openalex.org/W3217515989

National Institutes of Health

Grant: U01HG009599

National Human Genome Research Institute

FWCI

1.14

Citation Percentile

0.8%

Citation Trend

2022

2023

2024

2025

2026

greenLicense: http://www.elsevier.com/open-access/userlicense/1.0/

repositoryhttps://pubmed.ncbi.nlm.nih.gov/34906477/

publisherhttps://api.elsevier.com/content/article/PII:S1098360021053491?httpAccept=text/xml

publisherhttps://api.elsevier.com/content/article/PII:S1098360021053491?httpAccept=text/plain

journalhttps://doi.org/10.1016/j.gim.2021.09.021

Fields of Study

Ethics in Clinical ResearchGenomics and Rare DiseasesBRCA gene mutations in cancerChildGenomic MedicineGenomicsHumansInformation DisseminationInformed ConsentPrivacy

MeSH Terms

Genomic MedicineChildHumansInformed ConsentPrivacyGenomicsInformation Dissemination

Keywords

Context (archaeology)Data sharingInformed consentMedicineSurvey data collectionFamily medicineDisadvantagedPsychologyAlternative medicinePrecision MedicineClinical Genomics