Long-term survival and center volume for functionally single-ventricle congenital heart disease in England and Wales is a dataset published in Journal of Thoracic and Cardiovascular Surgery (2022). On theSindex it has a DataRank of 0.542, placing it in the top 35.9% of the data-sharing corpus. It has been cited 14 times, with 8 citing works in its 1-hop citation network. Its calibrated FAIR score is 10/100.
Ranks in the top 36% for downstream scientific impact
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
The paper provides no PID-scheme string (DOI, Handle, ARK, URN, or repository accession) for the dataset; the article DOI and CC-BY footer are not for the data.
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
“The study dataset is available only with the required approvals in place from the National Institute for Cardiac Outcomes Research (NICOR) and the National Congenital Heart Diseases Audit, the UK Health Research Authority including Research Ethics Committee Approval, and Confidentiality Advisory Group Approval and the approval of NHS Digital for use of the life status data.”
The paper names institutions (NICOR, NCHDA, etc.) but not a data repository as the holder of the dataset. [majority verdict 'no' (4/5 passes agreed)]
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
No identifier for the dataset appears anywhere in the paper, either in the body or in a reference list entry.
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“Data Availability Statement: The study dataset is available only with the required approvals in place from the National Institute for Cardiac Outcomes Research (NICOR) and the National Congenital Heart Diseases Audit, the UK Health Research Authority including Research Ethics Committee Approval, and Confidentiality Advisory Group Approval and the approval of NHS Digital for use of the life status data.”
The statement points to a controlled-access procedure (approvals from named bodies), not to a repository record (Colavizza category 1 or 2). [majority verdict 'partial' (4/5 passes agreed)]
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
The paper describes the study cohort in running prose but does not provide an itemised inventory of the dataset's files, records, or variables. [majority verdict 'no' (3/5 passes agreed)]
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“The study dataset is available only with the required approvals in place from the National Institute for Cardiac Outcomes Research (NICOR) and the National Congenital Heart Diseases Audit, the UK Health Research Authority including Research Ethics Committee Approval, and Confidentiality Advisory Group Approval and the approval of NHS Digital for use of the life status data.”
The access route carries a stated precondition (required approvals), making it a followable process but not unconditional. [majority verdict 'partial' (4/5 passes agreed)]
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“The study dataset is available only with the required approvals in place from the National Institute for Cardiac Outcomes Research (NICOR) and the National Congenital Heart Diseases Audit, the UK Health Research Authority including Research Ethics Committee Approval, and Confidentiality Advisory Group Approval and the approval of NHS Digital for use of the life status data.”
The paper describes an access action (obtaining approvals) but does not apply a standard access-level label like 'restricted access'. [majority verdict 'partial' (4/5 passes agreed)]
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“The study dataset is available only with the required approvals in place from the National Institute for Cardiac Outcomes Research (NICOR) and the National Congenital Heart Diseases Audit, the UK Health Research Authority including Research Ethics Committee Approval, and Confidentiality Advisory Group Approval and the approval of NHS Digital for use of the life status data.”
The paper names institutional gatekeepers (NICOR, NCHDA, HRA, CAG, NHS Digital) that must approve access to the sensitive human-subject data. [majority verdict 'yes' (4/5 passes agreed)]
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
The paper does not state when the data become available or how long they persist; no temporal commitment is made.
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
The paper does not name any file format for the released data.
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
The paper does not name a data or metadata community standard (e.g., MIAME, ISA-Tab, an ontology) or a manuscript reporting guideline; it uses clinical definitions but not as a named standard.
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
The paper does not provide an identifier for any external resource (e.g., source dataset, reference database, code) other than a grant number (PG/17/88/33401) which is not a resource identifier.
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
The paper attaches a CC-BY license to the article, not to the data; the data availability statement implies controlled access with no open license.
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
The paper gives a date range (2000-2018) and a survival ascertainment date (November 2020) but no version token for the dataset. [majority verdict 'no' (3/5 passes agreed)]
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
The paper does not provide a locator for the study's own code; it mentions using Stata 15 but does not release the code.
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“This study was funded by the British Heart Foundation (Project Grant no. PG/17/88/33401).”— not found in the paper; verdict downgraded
The paper provides an award/grant number (PG/17/88/33401) attached to a named funder. [downgraded to 'partial' — no verifiable quote from the paper]
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
The paper describes data sources (NCHDA, ONS) and analysis but does not name specific instruments, kits, or software used to produce the data (Stata 15 is for analysis, not data generation). [majority verdict 'no' (2/5 passes agreed)]
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
“We defined 'center volume' as the number of new patients with f-SV disease starting their first cardiac procedure per year within the center as a continuous variable.”— not found in the paper; verdict downgraded
Variable definitions are given inside the article's methods section, not in a separate documentation object shipped with the data. [downgraded to 'no' — no verifiable quote from the paper] [majority verdict 'no' (3/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.406
From this paper's citation signal
Citation Network Contribution
0.135
From 2 citing papers with measurable signal
Ranked by each citer's contribution to N(p) — log1p(Cq) divided by its reference count — out of 8 citers.
British Heart Foundation
Grant: PG/17/88/33401
FWCI
1.47
Citation Percentile
0.8%
Influential Citations
1
Citation Trend
Fields of Study
MeSH Terms
Keywords
Sustainable Development Goals