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Mental Health, Quality of Life, and Work Functioning of Parents of Children Who Have Died of Spinal Muscular Atrophy

Value in Health(2025)10.1016/j.jval.2025.08.018Source: DataRank Database

Mental Health, Quality of Life, and Work Functioning of Parents of Children Who Have Died of Spinal Muscular Atrophy is a research paper published in Value in Health (2025). On theSindex it has a DataRank of 0. It has been cited 4 times.

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4 citations

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›Methodology & internals

datarank_citation_only_1hop_v6· scope data_onlyMethodology

Pipeline:MetadataData-paper checkEnrichmentCitation networkScoring

Enrichment:Funding (3 grants)Impact (FWCI 2.96)OA: closedTopics (31)IDs (PubMed, OpenAlex)

FAIR Checklist

Context only (not used in score)

Findable (1/2)

Has DOI

Accessible (0/2)

Interoperable (0/2)

Reusable (0/3)

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Authors (11)

Abigail Riley,Stacey Kowal ORCID,Sheila Shapouri ORCID,David A. Fox ORCID,Hanwen Zhang ORCID

Live enrichment

PubMed:40939700 OpenAlex:https://openalex.org/W4414107143

National Institutes of Health

Grant: UM1TR004398

Genentech Inc

National Center for Advancing Translational Sciences

FWCI

2.96

Citation Percentile

0.9%

Citation Trend

2025

2026

closedLicense: https://www.elsevier.com/legal/tdmrep-license

publisherhttps://api.elsevier.com/content/article/PII:S1098301525025343?httpAccept=text/xml

publisherhttps://api.elsevier.com/content/article/PII:S1098301525025343?httpAccept=text/plain

journalhttps://doi.org/10.1016/j.jval.2025.08.018

repositoryhttps://pubmed.ncbi.nlm.nih.gov/40939700

Fields of Study

Neurogenetic and Muscular Disorders ResearchAdolescent and Pediatric HealthcareFamily and Disability Support Research

MeSH Terms

AbsenteeismAdultAnxietyBereavementChildCost-Benefit AnalysisDepressionEfficiencyFemaleHumansMaleMental HealthMiddle AgedParentsQuality of LifeSurveys and QuestionnairesUnited StatesSpinal Muscular Atrophies of Childhood

Keywords

Spinal muscular atrophyQuality (philosophy)Mental healthWork (physics)Face (sociological concept)ProductivityGriefHealth-related Quality Of LifeRare DiseaseWork Productivity

Mental Health, Quality of Life, and Work Functioning of Parents of Children Who Have Died of Spinal Muscular Atrophy

FAIR Checklist

Authors (11)

Funding (3 grants)

Impact

Open Access

Topics