Clinical presentation of calmodulin mutations: the International Calmodulinopathy Registry is a dataset published in European Heart Journal (2023). On theSindex it has a DataRank of 1.3, placing it in the top 15.5% of the data-sharing corpus. It has been cited 61 times, with 38 citing works in its 1-hop citation network. Its calibrated FAIR score is 4/100.
Ranks in the top 15% for downstream scientific impact
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
“Data Availability Data are available upon reasonable request.”
No persistent identifier (DOI, Handle, ARK, or repository accession) is given for the dataset anywhere in the text.
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
“Data Availability Data are available upon reasonable request.”
No repository is named as the holder; the data are held by the authors themselves.
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
“Data Availability Data are available upon reasonable request.”
No identifier for the dataset appears in the reference list or body text; the data availability statement does not provide a citation.
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“Data Availability Data are available upon reasonable request.”
The statement points to a person (corresponding author) on request, which is Colavizza category 1 (data available on request).
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
“The ICalmR has enrolled 140 subjects (median age 10.8 years [interquartile range 5–19]), 97 index cases and 43 family members.”
The dataset's content is described in running prose only, without an itemised inventory or section heading.
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“Data Availability Data are available upon reasonable request.”
The only route offered is a discretionary request to a person, which is not a followable access route and is classified as no.
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“Data Availability Data are available upon reasonable request.”
The data availability statement describes an action (request to authors) from which access level can be inferred, but no explicit access-level label is applied.
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“Data Availability Data are available upon reasonable request.”
The data are sensitive (human genetic data) and the gatekeeper is the corresponding author, a natural person, not an institutional committee.
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
“Data Availability Data are available upon reasonable request.”
No statement about how long the data will be retained or a persistence commitment; only a request route is given.
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
No file format token (open or proprietary) is named for the released data.
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
No data or metadata community standard (e.g., MIAME, BIDS, an ontology) is named for the dataset. [majority verdict 'no' (4/5 passes agreed)]
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
“including gnomAD v2, with exome/genome data on > 140 000 individuals”
gnomAD is mentioned but without an identifier (DOI, accession, or RRID); no other external resource is given a persistent identifier.
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
No license or terms of use are named for the data; the article's CC-BY-NC license applies to the paper, not the data.
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
No version token or date is given to identify a specific snapshot of the dataset.
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
No code availability is mentioned; only third-party software (IBM SPSS Statistics 28.0) is named.
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“by the Medical Research Council (MRC) Clinical Academic Research Partnership (CARP) Award (MR/T024062/1)”
A specific award number (MR/T024062/1) is given along with the funder name.
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“The ICalmR is an international, collaborative, observational study, assembling and analysing clinical and genetic data on CALM-positive patients.”
The data production is described in generic terms without naming specific instruments, kits, or software versions. [majority verdict 'partial' (3/5 passes agreed)]
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
“Table 1 Study population from the ICalmR”
Variable definitions are provided inside the article (Table 1 and Supplementary Table S1), but no documentation object (README, codebook) is said to accompany the data. [majority verdict 'partial' (3/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.619
From this paper's citation signal
Citation Network Contribution
0.712
From 27 citing papers with measurable signal
Ranked by each citer's contribution to N(p) — log1p(Cq) divided by its reference count — out of 38 citers.
Registro internazionale delle calmodulinopatie
Grant: 2019-ATESP-0045
Fondation Leducq
Grant: 18CVD05
Clinical Academic Research Partnership
Grant: T024062/1
Clinical Academic Research Partnership
Grant: NIH K23HL130554
Danish Independent Research Council
Grant: 2032–00333B
Lundbeck Foundation
Grant: R324-2019-1933
Novo Nordisk Foundation
Grant: 18OC0031258
NHLBI NIH HHS
Grant: K23 HL130554
Medical Research Council
Grant: MR/T024062/1
Childhood hypertrophic cardiomyopathy: characterising early phenotypes and disease progression to identify novel therapeutic targets
Novo Nordisk Fonden
Grant: NNF18OC0031258
Novo Nordisk Foundation
Grant: unidentified
unidentified
National Institutes of Health
Grant: 5K23HL130554-03
Evaluation of First-Degree Relatives after Sudden Unexplained Death
Heart and Stroke Foundation of Canada
Italian Ministry of Health Ricerca Corrente
Medical Research Council
Canadian Institutes of Health Research
Mayo Clinic Windland Smith Rice Comprehensive Sudden Cardiac Death Program
Netherlands Cardiovascular Research Initiative
Cartwright Family Fellowship
The Labatt Family Heart Centre
Carter Heart Arrhythmia Trainee Fund and the Caitlin Elizabeth Morris fund
ERN GUARD-Heart
FWCI
11.29
Citation Percentile
1.0%
Citation Trend
Fields of Study
MeSH Terms
Keywords
Sustainable Development Goals