Leveraging multi-site electronic health data for characterization of subtypes: a pilot study of dementia in the N3C Clinical Tenant is a dataset published in JAMIA Open (2024). On theSindex it has a DataRank of 0.346, placing it in the top 50.7% of the data-sharing corpus. It has been cited 5 times, with 5 citing works in its 1-hop citation network. Its calibrated FAIR score is 6/100.
Ranks in the top 51% for downstream scientific impact
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
“As per the N3C Clinical Tenant Pilot Data Usage Agreement (DUA), the source data cannot be shared publicly.”
The paper provides no persistent identifier for its own dataset.
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
“As per the N3C Clinical Tenant Pilot Data Usage Agreement (DUA), the source data cannot be shared publicly.”
The paper does not name a repository as the holder of its own data; the source data are not deposited.
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
No identifier for the study's own dataset appears in either the reference list or body text.
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“As per the N3C Clinical Tenant Pilot Data Usage Agreement (DUA), the source data cannot be shared publicly.”
The data availability statement declares the data cannot be shared publicly and offers no route, matching Colavizza category 0.
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
“Table 1. Summary of the demographics characteristics of the final study cohort after combining subtypes (the proportion is too small to quantitatively).”
The paper provides Table 1, an itemized inventory of the study cohort demographics. [majority verdict 'yes' (3/5 passes agreed)]
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“As per the N3C Clinical Tenant Pilot Data Usage Agreement (DUA), the source data cannot be shared publicly.”
The data are not accessible; the text states the source data cannot be shared publicly and offers no route.
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
The paper does not label the access level of the data; it only states that the source data cannot be shared publicly. [majority verdict 'no' (3/5 passes agreed)]
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“As per the N3C Clinical Tenant Pilot Data Usage Agreement (DUA), the source data can only be accessed and used by individuals covered by the pilot DUA.”— not found in the paper; verdict downgraded
The paper names the N3C Clinical Tenant Pilot Data Usage Agreement (DUA) as the institutional gatekeeper. [downgraded to 'partial' — no verifiable quote from the paper] [majority verdict 'partial' (2/5 passes agreed)]
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
No retention timeline is stated for the data.
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
No file format is named for the released data.
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
“which is then harmonized to the Observational Medical Outcomes Partnership (OMOP) common data model”
The paper names the OMOP Common Data Model, a community standard for observational data. [majority verdict 'yes' (3/5 passes agreed)]
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
“DUR-A97711D”— not found in the paper; verdict downgraded
The paper cites the N3C Tenant identifier (DUR-A97711D) for the source data, which is a resource other than the study's own dataset. [downgraded to 'no' — no verifiable quote from the paper] [majority verdict 'no' (3/5 passes agreed)]
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
“This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License”
The CC BY-NC license applies to the article, not the data; no data reuse license is stated.
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
“which compiles EHR data from 9 US sites, covering 119 946 patients living with dementia (PLWD) up to January 2023.”
The paper provides a date range (up to January 2023) but no version token. [majority verdict 'partial' (4/5 passes agreed)]
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
No code availability statement or locator is provided.
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“This research was funded by the NIH National Center for Advancing Translational Sciences (NCATS) through award UL1TR003015”
The paper provides award numbers (UL1TR003015, UM1TR004406, U54GM115458) attached to named funders. [majority verdict 'yes' (3/5 passes agreed)]
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“Our data was sourced from the Alzheimer's disease and related dementias (AD/ADRD) Tenant (DUR-A97711D) in the N3C Clinical enclave, which compiles EHR data from 9 US sites, covering 119 946 patients living with dementia (PLWD) up to January 2023.”
The description of data production is generic (EHR data from multiple sites) and does not name a specific instrument, kit, or versioned software. [majority verdict 'partial' (3/5 passes agreed)]
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
“Supplementary Material provides in-depth dataset details and subtype information.”
The supplementary material is referenced but not explicitly named as a codebook or data dictionary that travels with the data; no deposit is made. [majority verdict 'no' (3/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.269
From this paper's citation signal
Citation Network Contribution
0.0776
From 4 citing papers with measurable signal
Ranked by each citer's contribution to N(p) — log1p(Cq) divided by its reference count — out of 5 citers.
NIH
Grant: UL1TR003015
NIDA NIH HHS
Grant: 75N95021D00001
NIGMS NIH HHS
Grant: U54 GM115458
NHLBI NIH HHS
Grant: 75N92023D00001
CLC NIH HHS
Grant: 75N90023D00001
NCATS NIH HHS
Grant: UM1 TR004406
ORFDO NIH HHS
Grant: 75N99023D00001
National Institutes of Health
Grant: 3UL1TR003015-03S1
The integrated Translational Health Research Institute of Virginia (iTHRIV): Using Data to Improve Health
National Institutes of Health
Grant: 5UM1TR004406-02
North Carolina Translational and Clinical Sciences Institute (NC TraCS)
National Institutes of Health
Grant: 3U54GM115458-07S2
Great Plains IDeA-CTR
FWCI
1.42
Citation Percentile
0.8%
Citation Trend
Fields of Study
Keywords