A natural language processing pipeline for identifying pediatric long COVID symptoms and functional impacts in freeform clinical notes: a RECOVER study is a dataset published in JAMIA Open (2025). On theSindex it has a DataRank of 0.165, placing it in the top 70.2% of the data-sharing corpus. It has been cited 2 times, with 1 citing works in its 1-hop citation network. Its calibrated FAIR score is 13/100.
Ranks in the top 70% for downstream scientific impact
Linked data & code
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
The paper does not provide any persistent identifier (DOI, Handle, ARK, or repository accession) for its own dataset.
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
The paper does not name a repository as the holder of the data; the data are held by the RECOVER program coordinating center with no repository name. [majority verdict 'no' (4/5 passes agreed)]
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
No identifier for the dataset appears anywhere in the paper, either in the reference list or in the body text.
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“The results reported here are based on detailed individual-level patient data compiled as part of the RECOVER Program. Due to the high risk of reidentification based on the number of unique patterns in the data, particularly physician notes data, patient privacy regulations prohibit us from releasing the data publicly. The data are maintained in a secure enclave, with access managed by the program coordinating center to remain compliant with regulatory and program requirements. Please direct requests to access the data, either for reproduction of the work reported here or for other purposes, to [email protected].”— not found in the paper; verdict downgraded
The data availability statement points to a person ([email protected]) for access, which is Colavizza category 1 (available on request). [downgraded to 'no' — no verifiable quote from the paper]
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
“We analyzed 48 287 outpatient progress notes from 10 618 pediatric patients from 12 institutions.”
The dataset is described in running prose in the abstract, but there is no itemised inventory such as a section, table, or list of files.
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“Please direct requests to access the data, either for reproduction of the work reported here or for other purposes, to [email protected].”— not found in the paper; verdict downgraded
The only access route offered is a discretionary request to an email address, which is not a followable process and is classified as 'no'.
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“Please direct requests to access the data, either for reproduction of the work reported here or for other purposes, to [email protected].”— not found in the paper; verdict downgraded
The paper does not use an explicit access-level label from the standard vocabulary, but it describes the action of requesting access, which allows inference of the level. [downgraded to 'no' — no verifiable quote from the paper] [majority verdict 'no' (4/5 passes agreed)]
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“The data are maintained in a secure enclave, with access managed by the program coordinating center to remain compliant with regulatory and program requirements. Please direct requests to access the data, either for reproduction of the work reported here or for other purposes, to [email protected].”— not found in the paper; verdict downgraded
The gatekeeper is an institutional entity (the program coordinating center) with a defined request route, not a natural person. [downgraded to 'partial' — no verifiable quote from the paper] [majority verdict 'partial' (2/5 passes agreed)]
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
The paper neither states a persistence commitment nor specifies when the data become available; it only mentions that they are maintained in a secure enclave with access managed.
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
No file format is named for the released data; the data are clinical notes but their format is not specified.
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
“To facilitate comparison of note-based clinical concepts with structured data, we assembled ICD-10-CM diagnostic code sets for each of the 25 clinical concepts”
The paper names ICD-10-CM, which is a community-standard vocabulary registered in FAIRsharing, as applied to the data. [majority verdict 'yes' (4/5 passes agreed)]
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
“code for both the RE and word2vec training and application is available at https://github.com/RECOVER-Coordinating-Center/pediatric_nlp_manuscript_1”
The paper gives a URL for the code, which is a locator for a resource other than the dataset itself.
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
No license or reuse terms are stated for the data; the CC-BY license applies only to the article, not the data.
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
No version token or date identifies a snapshot of the data; the time span (2020-2022) is a range, not a specific release. [majority verdict 'no' (3/5 passes agreed)]
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
“code for both the RE and word2vec training and application is available at https://github.com/RECOVER-Coordinating-Center/pediatric_nlp_manuscript_1”
The paper gives a GitHub URL for the code, which is a machine-resolvable locator in a version-controlled repository.
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“This work was supported by the National Institutes of Health (NIH) Agreement OTA OT2HL161847-01 as part of the Researching COVID to Enhance Recovery (RECOVER) research Initiative.”
The paper includes an award number (OT2HL161847-01) attached to a named funder (NIH).
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“The pipeline ( Figure 1 ) used openly available as well as commercially licensed Spark-NLP models from John Snow Labs (JSL).”
The paper names specific software tools (Spark-NLP, JSL models) used to produce the data, satisfying the class-1 requirement. [majority verdict 'yes' (3/5 passes agreed)]
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
“We identified 21 symptom concepts... An additional 4 clinical concepts addressed impairments in physical, cognitive, sleep, and school functioning. We then created a set of expressions—a pediatric Long COVID lexicon—to represent each concept.”— not found in the paper; verdict downgraded
Variable definitions are provided within the article text and tables, but no documentation object (e.g., README, codebook) is said to accompany the data. [downgraded to 'no' — no verifiable quote from the paper]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.165
From this paper's citation signal
Citation Network Contribution
0
From 0 citing papers with measurable signal
This paper's DataRank is currently driven only by its base citation score. None of the citing papers had measurable citation signal.
Learn more about DataRank methodology →National Institutes of Health
Grant: OT2HL161847-01
National Institutes of Health
Grant: 1K01HL169493-01
Development and Validation of an Equitable Computable Phenotype for Classifying Pediatric Sleep Deficiency in Electronic Health Records
National Institutes of Health
Grant: 3OT2HL161847-01S3
OTA-21-015A Post-Acute Sequelae of SARS-CoV-2 Infection Initiative: NYU Langone Health Clinical Science Core, Data Resource Core, and PASC Biorepository Core
Researching COVID to Enhance Recovery
FWCI
1.46
Citation Percentile
0.8%
Citation Trend
Fields of Study
Keywords