Cognitive outcomes of children and adults with sickle cell anaemia: A contemporary cohort is a dataset published in British Journal of Haematology (2024). On theSindex it has a DataRank of 0.104, placing it in the top 77.8% of the data-sharing corpus. It has been cited 1 time. Its calibrated FAIR score is 13/100.
Ranks in the top 78% for downstream scientific impact
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
No persistent identifier string for the dataset is given.
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
“Individual deidentified data will be available to researchers who provide a methodologically sound proposal beginning at time of publication until 5 years following article publication.”
No repository is named as the holder; the data are to be made available on request from the authors.
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
No identifier or link for the dataset appears anywhere in the paper.
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“Individual deidentified data will be available to researchers who provide a methodologically sound proposal beginning at time of publication until 5 years following article publication.”
The statement offers data on request, which is Colavizza category 1 ('data available on request'). [majority verdict 'partial' (4/5 passes agreed)]
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
“Patients with SCA and healthy controls were recruited from a tertiary hospital between 2014 and 2022 to complete cognitive [NIH Toolbox Cognition Battery (NIHTB-CB)] and laboratory (haemoglobin, haemoglobin electrophoresis) assessments.”
The paper describes the dataset's content in running prose but does not provide an itemised inventory of files or variables. [majority verdict 'partial' (3/5 passes agreed)]
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“Individual deidentified data will be available to researchers who provide a methodologically sound proposal beginning at time of publication until 5 years following article publication.”
Access requires submitting a methodologically sound proposal, a defined followable precondition, so the data are not openly accessible without condition. [majority verdict 'partial' (3/5 passes agreed)]
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“Individual deidentified data will be available to researchers who provide a methodologically sound proposal beginning at time of publication until 5 years following article publication.”
The paper describes the access condition (proposal required) but does not label the access level. [majority verdict 'partial' (3/5 passes agreed)]
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“Individual deidentified data will be available to researchers who provide a methodologically sound proposal beginning at time of publication until 5 years following article publication.”
The gatekeeper is a personal (corresponding author) via a proposal; no institutional committee or repository is named. [majority verdict 'partial' (4/5 passes agreed)]
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
“Individual deidentified data will be available to researchers who provide a methodologically sound proposal beginning at time of publication until 5 years following article publication.”
The paper states a retention period of 5 years following publication. [majority verdict 'yes' (4/5 passes agreed)]
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
No file format is named for the released data.
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
No data or metadata community standard (e.g., FAIRsharing-registered checklist, ontology) is named for the data.
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
No identifier for any external resource (e.g., source dataset, reference genome) is given.
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
No licence or terms of use are named for the data.
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
No version token or snapshot date is given for the released data.
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
No code location is provided; only a commercial software (SAS 9.4) is mentioned, not the study's own code.
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“This research was supported by the National Institutes of Health, National Heart, Lung, and Blood Institute (K23HL136904 (MEF), R01HL157188 (MEF), R01HL129241 (ALF), K24HL148305 (AAK)), National Center for Advancing Translational Sciences (UL1TR000448 (MEF)), the American Society of Hematology (MEF) and The Foundation for Barnes-Jewish Hospital (MEF).”
Specific award/grant numbers are attached to named funders. [majority verdict 'yes' (4/5 passes agreed)]
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“Patients with SCA and healthy controls were recruited from a tertiary hospital between 2014 and 2022 to complete cognitive [NIH Toolbox Cognition Battery (NIHTB-CB)] and laboratory (haemoglobin, haemoglobin electrophoresis) assessments.”
The paper names the specific instrument (NIH Toolbox Cognition Battery) used to produce the data. [majority verdict 'yes' (4/5 passes agreed)]
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
“Online Only Table 2a. Cognitive Performance of Study Participants Reported as Age-Corrected Standard Scores and Demographically Adjusted T-Scores”
Variable definitions (cognitive test scores) are provided in tables inside the article, not in a separate documentation object deposited with the data. [majority verdict 'partial' (3/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.104
From this paper's citation signal
Citation Network Contribution
0
Citation network not refreshed for this result
This paper's DataRank is currently driven only by its base citation score. Citation network data was not refreshed for this result.
Learn more about DataRank methodology →National Heart, Lung, and Blood Institute
Grant: K23HL136904
National Heart, Lung, and Blood Institute
Grant: K24HL148305
National Heart, Lung, and Blood Institute
Grant: R01HL129241
National Heart, Lung, and Blood Institute
Grant: R01HL157188
National Center for Advancing Translational Sciences
Grant: UL1TR000448
FWCI
0.29
Citation Percentile
0.6%
Citation Trend
Fields of Study
Keywords
Sustainable Development Goals