Quantifying neurobehavioral profiles across neurodevelopmental genetic syndromes and idiopathic neurodevelopmental disorders is a dataset published in Developmental Medicine & Child Neurology (2024). On theSindex it has a DataRank of 0.529, placing it in the top 36.7% of the data-sharing corpus. It has been cited 9 times, with 8 citing works in its 1-hop citation network. Its calibrated FAIR score is 4/100.
Ranks in the top 37% for downstream scientific impact
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
No persistent identifier string (DOI, Handle, ARK, URN, or repository accession) is assigned to the dataset.
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
No repository is named; the data are held by the corresponding author.
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
No identifier or link for the dataset appears anywhere in the paper, either in the body or the reference list. [majority verdict 'no' (3/5 passes agreed)]
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“The data that support the findings of this study are available from the corresponding author upon reasonable request.”
The statement falls under Colavizza category 1 (available on request), not pointing to a repository record.
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
“Study groups included participants (total n = 498) with PHTS (n = 112), SYNGAP1 (n = 47), or NFIX (n = 24)...”— not found in the paper; verdict downgraded
The dataset's content is described only in running prose; no itemised inventory (section, table, or list) of files or variables is provided.
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“The data that support the findings of this study are available from the corresponding author upon reasonable request.”
The only route offered is a discretionary request to a person, which is not a followable access route with a defined precondition.
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“The data that support the findings of this study are available from the corresponding author upon reasonable request.”
The paper describes an action (contacting the author) but does not apply an explicit access-level label like 'open access' or 'restricted'.
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“The data that support the findings of this study are available from the corresponding author upon reasonable request.”
The gatekeeper is a natural person (the corresponding author) with no institutional committee or agreement named.
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
No sentence in the paper addresses when the data become available or how long they persist.
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
No file format is named for the released data (survey responses).
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
No data or metadata community standard (e.g., MIAME, GO, BIDS) is named; only manuscript reporting guidelines (none) or generic standards are missing.
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
“10.1111/jir.12787”
The paper cites DOIs of other studies' resources but does not provide an identifier for a resource that the paper's own data depend on or derive from (e.g., a reference database, cohort, or code). The DOIs are for references in the bibliography, not for external resources used in the study.
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
The CC-BY-NC-ND license applies to the article, not to the data. No license or terms are named for the data itself.
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
“Data were collected from 13th October 2021 to 5th May 2024”
A date range is given for data collection, but no version token or release identifier is stated for the dataset.
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
No code availability statement or locator is provided; the study's own code is not mentioned.
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“grant number JCU‐20‐001 and UOM‐20‐001”
A specific grant number is attached to the PTEN Research Foundation, and other funders are named without award numbers.
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“Data preparation, descriptive analyses, internal consistency reliability, corrected item-total correlations, bivariate correlations, and generalized estimating equation models used SPSS version 29 (IBM Corp., Armonk, NY, USA).”
The paper names the specific software (SPSS version 29) and platform (Qualtrics-XM) used to produce and analyse the data. [majority verdict 'yes' (4/5 passes agreed)]
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
“Table 1 NET scale and subscale internal consistency and test–retest reliability”
Variable definitions (subscales, items) are presented inside the article in Table 1 and Appendix S1; no documentation object is said to accompany the data deposit. [majority verdict 'partial' (3/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.345
From this paper's citation signal
Citation Network Contribution
0.183
From 3 citing papers with measurable signal
Ranked by each citer's contribution to N(p) — log1p(Cq) divided by its reference count — out of 8 citers.
Simons Foundation
Grant: 971361
PTEN Research
Grant: JCU‐20‐001
PTEN Research
Grant: UOM‐20‐001
Autism Speaks
Grant: 12776
NICHD NIH HHS
Grant: P50 HD105351
PTEN Research
Grant: JCU-20-001
PTEN Research
Grant: UOM-20-001
SYNGAP Research Fund
Malan Syndrome Foundation
ADNP Kids Foundation
FWCI
3.51
Citation Percentile
0.9%
Citation Trend
Fields of Study
MeSH Terms
Keywords
Sustainable Development Goals