Lessons learned from 40 novel PIGA patients and a review of the literature is a dataset published in Epilepsia (2020). On theSindex it has a DataRank of 2.0, placing it in the top 10.5% of the data-sharing corpus. It has been cited 58 times, with 42 citing works in its 1-hop citation network. Its calibrated FAIR score is 4/100.
Ranks in the top 10% for downstream scientific impact
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
The paper provides no persistent identifier string for its own dataset; the article's DOI does not identify the data.
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
No repository is named as the holder; the data are to be obtained from the investigators.
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
No identifier for the dataset appears anywhere in the paper, neither in the reference list nor in body text.
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“Anonymized data including data not published within this article will be made available by request from any qualified investigator.”
The statement points to a personal request (Colavizza category 1), not a repository record. [majority verdict 'partial' (3/5 passes agreed)]
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
The dataset's extent is described in running prose ('Our cohort encompasses 40 affected males with a pathogenic PIGA variant'), but no itemised inventory of files is provided. [downgraded to 'no' — no verifiable quote from the paper] [majority verdict 'no' (2/5 passes agreed)]
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“Anonymized data including data not published within this article will be made available by request from any qualified investigator.”
The data are offered only through a discretionary request to a person, which is not a followable access route.
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“Anonymized data including data not published within this article will be made available by request from any qualified investigator.”
The data availability statement describes an action (request) but does not apply an access-level label. [majority verdict 'partial' (3/5 passes agreed)]
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“Anonymized data including data not published within this article will be made available by request from any qualified investigator.”
The only gatekeeper named is a qualified investigator (a natural person) rather than an institutional committee. [majority verdict 'partial' (3/5 passes agreed)]
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
No sentence states when the data become available or how long they persist.
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
No file format token of any kind is named for the released data.
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
No data or metadata community standard (e.g., MIAME, ISA-Tab, an ontology) is named.
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
The paper does not provide an identifier (accession, DOI, RRID) for any external resource its data depend on.
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
No reuse licence is named for the data; the article's copyright statement covers the paper only.
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
Neither a version token nor a date pins the snapshot of the data.
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
The paper does not mention any code or software written for the study.
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“B.C. was supported by a grant from the European Academy of Dermatology and Venereology (PPRC-2018-50)”
The paper includes specific award numbers (e.g., PPRC-2018-50, HE 5415/5‑1) for the funding. [majority verdict 'yes' (3/5 passes agreed)]
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“All patients were subjected to NGS based panel or exome sequencing approaches”— not found in the paper; verdict downgraded
The data production method is described in generic terms without naming specific instruments, kits, or software versions. [downgraded to 'no' — no verifiable quote from the paper]
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
No documentation object (README, data dictionary, codebook) is said to accompany the data, and the article's tables do not define the dataset's files or variables. [majority verdict 'no' (4/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.612
From this paper's citation signal
Citation Network Contribution
1.4
From 30 citing papers with measurable signal
Ranked by each citer's contribution to N(p) — log1p(Cq) divided by its reference count — out of 42 citers.
Universiteit Gent
Grant: BOF‐Start 01N04516
Deutsche Forschungsgemeinschaft
Grant: HE 5415/5‐1
Deutsche Forschungsgemeinschaft
Grant: HE 5415/6‐1
Deutsche Forschungsgemeinschaft
Grant: FOR2715 HE5415/7‐1
Nederlandse Organisatie voor Wetenschappelijk Onderzoek
Grant: 9161702
Danmarks Grundforskningsfond
Grant: DNRF107
Deutsche Forschungsgemeinschaft
Grant: unidentified
unidentified
European Commission
Grant: 602531
Development and Epilepsy - Strategies for Innovative Research to improve diagnosis, prevention and treatment in children with difficult to treat Epilepsy
Intramural NIH HHS
Grant: Z99 HG999999
German Research Foundation
Grant: HE 5415/5-1
Ghent University
Grant: BOF-Start 01N04516
European Union Seventh Framework Program
Grant: FP7/2007-2013
European Academy of Dermatology and Venereology
Grant: PPRC-2018-50
German Research Foundation
Grant: FOR2715 HE5415/7-1
German Research Foundation
Grant: HE 5415/6-1
University of Kiel
Brain & Behavior Research Foundation
Fields of Study
MeSH Terms
Keywords
Sustainable Development Goals