Bridging Huntington’s disease research with big data science: Harmonized neuroimaging datasets from multiple studies is a dataset published in Imaging Neuroscience (2024). On theSindex it has a DataRank of 0, placing it in the top 100% of the data-sharing corpus. Its calibrated FAIR score is 42/100.
Ranks in the top 100% for downstream scientific impact
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
“The data described here can be obtained from CHDI Foundation (see https://www.enroll-hd.org/for-researchers/datasets/ ).”
The paper gives a web URL, not a persistent identifier scheme (DOI, Handle, etc.).
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
“The data described here can be obtained from CHDI Foundation (see https://www.enroll-hd.org/for-researchers/datasets/ ).”
The holder is CHDI Foundation, which is not a repository listed in re3data/FAIRsharing; it is a non-repository host.
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
“The data described here can be obtained from CHDI Foundation (see https://www.enroll-hd.org/for-researchers/datasets/ ).”
The dataset identifier (URL) appears only in the body text, not in the reference list.
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“The data described here can be obtained from CHDI Foundation (see https://www.enroll-hd.org/for-researchers/datasets/ ).”
The statement points to a URL but does not include a persistent identifier or accession number.
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
“The final outcome consists of six final BIDS datasets with combined counts of 2,216 participants and 7,073 sessions.”
The dataset content is described in running prose, not in an itemised inventory (section, table, or list). [majority verdict 'partial' (4/5 passes agreed)]
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“The process requires signing data use agreements that prohibit participant reidentification, and verification of the computing systems that will hold the data (as per GDPR regulations).”— not found in the paper; verdict downgraded
The access route carries a stated precondition (signing DUA and verification), so it is not unconditional. [downgraded to 'no' — no verifiable quote from the paper] [majority verdict 'no' (4/5 passes agreed)]
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“The process requires signing data use agreements that prohibit participant reidentification, and verification of the computing systems that will hold the data (as per GDPR regulations).”— not found in the paper; verdict downgraded
The paper does not apply an explicit access-level label; it describes the access process instead. [downgraded to 'no' — no verifiable quote from the paper]
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“The data described here can be obtained from CHDI Foundation (see https://www.enroll-hd.org/for-researchers/datasets/ ). The process requires signing data use agreements that prohibit participant reidentification, and verification of the computing systems that will hold the data (as per GDPR regulations).”— not found in the paper; verdict downgraded
The paper names an institutional gatekeeper (CHDI Foundation) with a formal Data Use Agreement process. [downgraded to 'partial' — no verifiable quote from the paper] [majority verdict 'partial' (4/5 passes agreed)]
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
The paper says nothing about how long the data will persist or when they become available. [majority verdict 'no' (4/5 passes agreed)]
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
“Scans are stored in Niftii files, while their metadata are stored in corresponding JavaScript Object Notation (JSON) files.”
NIfTI and JSON are open, non-proprietary formats.
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
“Raw data are converted into Brain Imaging Data Structure (BIDS) format”
BIDS is a community standard for neuroimaging data, registered in FAIRsharing. [majority verdict 'yes' (4/5 passes agreed)]
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
“ClinicalTrials.gov ID NCT00051324”
The paper includes identifiers for external resources (ClinicalTrials.gov, dbGaP).
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
“The process requires signing data use agreements that prohibit participant reidentification, and verification of the computing systems that will hold the data (as per GDPR regulations).”— not found in the paper; verdict downgraded
The paper does not name an open standard license; it instead describes a Data Use Agreement (DUA), which is a named non-open license artefact. [downgraded to 'no' — no verifiable quote from the paper] [majority verdict 'no' (4/5 passes agreed)]
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
“export a copy of the dataset from Datalad (e.g., TRACK_bids_master-v2.0) and assign a number-tag for publication reference (e.g., DATA-00000928).”
The paper states a version token and a number-tag for the dataset.
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
“The code used to organize the data, QC the results, and create phenotypic tables is provided together with each dataset.”
The code is distributed with the data but not via a separate machine-resolvable locator (URL/DOI).
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“National Institute of Health (NIH) under Grant# NS040068”
The paper includes specific grant numbers.
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“We processed anatomical data with Freesurfer v6 (longitudinal pipeline)”
The paper names specific instruments and software versions (Freesurfer v6, fmriprep) used to produce the data. [majority verdict 'yes' (3/5 passes agreed)]
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
“All this information is stored within the data description file provided with the dataset.”
A documentation object (data description file) is provided with the dataset. [majority verdict 'yes' (4/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
National Institutes of Health
Grant: 3R01NS040068-01A1S1
NEUROBIOLOGICAL PREDICTORS OF HUNTINGTONS DISEASE
Wellcome Trust
Grant: 200181
TREAT-HD: targeting neurodegeneration in Huntington's disease
Keywords