Diverse-Ancestry GWAS of Age-Related Macular Degeneration on 16,108 Examined Cases and 18,038 Controls is a dataset published in Investigative Ophthalmology & Visual Science (2025). On theSindex it has a DataRank of 0.104, placing it in the top 77.8% of the data-sharing corpus. It has been cited 1 time, with 1 citing works in its 1-hop citation network. Its calibrated FAIR score is 63/100.
Ranks in the top 78% for downstream scientific impact
Linked data & code
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
“Data permitted for sharing by respective IRBs have been deposited in dbGaP under accession phs001039.v1.p1.”
The paper provides a dbGaP accession (phs001039.v1.p1), which is a persistent identifier scheme.
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
“Data permitted for sharing by respective IRBs have been deposited in dbGaP under accession phs001039.v1.p1.”
dbGaP is a named data repository, classified as a curated archive.
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
“Data permitted for sharing by respective IRBs have been deposited in dbGaP under accession phs001039.v1.p1.”
The dataset identifier appears only in the body text (data availability statement), not in the reference list.
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“Data Availability: GWAS summary statistics are available (upon publication) on the websites of IAMDGC data holders in USA (Cleveland; http://amdgenetics.org/ ) and Germany (Regensburg; https://www.genepi-regensburg.de/gwas-summary-statistics ). Data permitted for sharing by respective IRBs have been deposited in dbGaP under accession phs001039.v1.p1.”
The statement points to a repository record (dbGaP with accession) and also to websites, meeting Colavizza category 3.
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
“Table 1. Analyzed Individuals and Well-Imputed Autosomal Genetic Variants”
The paper includes a table that itemizes the dataset (number of individuals and variants per ancestry), serving as an itemized inventory.
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“GWAS summary statistics are available (upon publication) on the websites of IAMDGC data holders”
The access route carries a precondition (upon publication) and controlled access via dbGaP, so it is not unconditional.
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“GWAS summary statistics are available (upon publication) on the websites of IAMDGC data holders in USA (Cleveland; http://amdgenetics.org/ ) and Germany (Regensburg; https://www.genepi-regensburg.de/gwas-summary-statistics ).”
The paper describes an access action (websites and dbGaP) but does not explicitly label the access level with a COAR vocabulary term.
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“Data permitted for sharing by respective IRBs have been deposited in dbGaP under accession phs001039.v1.p1.”
The paper names dbGaP, a controlled-access repository, as the institutional gatekeeper for the data.
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
“GWAS summary statistics are available (upon publication)”
The paper states when the data become available (upon publication) but does not commit to how long they persist.
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
No file format for the released data is named anywhere in the text.
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
No named data or metadata community standard (e.g., MIAME, MINSEQE) is applied to the data; only tools and methods are mentioned.
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
No identifier for any external resource (other than the paper's own dataset) is provided; references are bare names or citations. [majority verdict 'no' (3/5 passes agreed)]
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
No license or reuse terms are stated for the data; only the article is licensed under CC BY-NC-ND. [majority verdict 'no' (4/5 passes agreed)]
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
“phs001039.v1.p1”
The dbGaP accession includes a version suffix (v1.p1), identifying the specific snapshot.
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
“The code used for this study is available at GitHub: https://github.com/genepi-regensburg/IAMDGC_2.0 .”
The paper provides a machine-resolvable URL to a code repository (GitHub).
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“NIH grant R01 EY022310”
An award/grant number (R01 EY022310) is given, attached to a named funder. [majority verdict 'yes' (4/5 passes agreed)]
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“We phased genomic data using Eagle version 2.4 and imputed untyped variants using minimac4.”— not found in the paper; verdict downgraded
The paper names specific tools and software versions used to produce the data. [downgraded to 'partial' — no verifiable quote from the paper] [majority verdict 'partial' (3/5 passes agreed)]
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
“Table 1. Analyzed Individuals and Well-Imputed Autosomal Genetic Variants”
Variable definitions are provided inside the article (Table 1), but no separate documentation file is mentioned as traveling with the data. [majority verdict 'partial' (3/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.104
From this paper's citation signal
Citation Network Contribution
0
From 0 citing papers with measurable signal
This paper's DataRank is currently driven only by its base citation score. None of the citing papers had measurable citation signal.
Learn more about DataRank methodology →NEI NIH HHS
Grant: R01 EY012118
NEI NIH HHS
Grant: R01 EY022310
FWCI
2.77
Citation Percentile
0.9%
Citation Trend
Fields of Study
MeSH Terms
Keywords