Understanding the evolving treatment landscape of hidradenitis suppurativa: An analysis of All of Us is a dataset published in PLoS ONE (2025). On theSindex it has a DataRank of 0.165, placing it in the top 70.2% of the data-sharing corpus. It has been cited 2 times, with 2 citing works in its 1-hop citation network. Its calibrated FAIR score is 42/100.
Ranks in the top 70% for downstream scientific impact
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
The paper does not provide any persistent identifier string (DOI, Handle, ARK, or repository accession) for the study's own dataset.
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
The study's own data are provided as supplementary material within the article, not deposited in a named repository. [majority verdict 'no' (3/5 passes agreed)]
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
No identifier or link for the study's own dataset appears in the reference list or body text; the dataset is only mentioned as a supplementary table.
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“The data that we have accessed in this study are part of the National Institute of Health’s (NIH) All of Us research program which contains third party data owned by the NIH. Aggregate data are available on the All of Us research program website (https://www.researchallofus.org), where individuals affiliated with partnered institutions are able register with the program for full dataset access. We have made all codes that we have used within study available within the supplementary data file and a summary of our aggregate data has been included as a supplementary table (S2 Table).”— not found in the paper; verdict downgraded
The statement points to the article's supplementary material for the study's own data (Colavizza category 2) and to a third-party website for the original data. [downgraded to 'no' — no verifiable quote from the paper] [majority verdict 'no' (4/5 passes agreed)]
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
“Table 1. List of medications, demographic factors and comorbid conditions.”
The paper includes a table that itemizes the variables used in the dataset, providing a structured inventory of the data's content. [majority verdict 'yes' (4/5 passes agreed)]
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“a summary of our aggregate data has been included as a supplementary table (S2 Table)”
The study's own aggregate data are included in the article's supplementary material, which is openly accessible without any precondition. [majority verdict 'yes' (4/5 passes agreed)]
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“a summary of our aggregate data has been included as a supplementary table (S2 Table)”
The data availability statement describes the location of the aggregate data but does not provide an explicit access-level label such as 'open access' or 'publicly available'. [majority verdict 'partial' (3/5 passes agreed)]
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“researchers at partnered institutions must complete data usage and privacy training before access can be granted to the dataset”
The paper describes a controlled-access procedure for the original All of Us data, but this does not apply to the study's own aggregate data, which are openly available without a gatekeeper. [majority verdict 'no' (4/5 passes agreed)]
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
The paper does not specify any retention period, availability timing, or persistence commitment for the study's own data.
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
“S2 Table. Summary data for HS population within the AoU program. (DOCX)”
The only file format specified for the study's own data is DOCX, which is a proprietary format. [majority verdict 'partial' (3/5 passes agreed)]
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
“All concept identification codes (concept IDs) used to identify medications, conditions and survey responses are found within the Observational Medical Outcomes Partnership (OMOP) framework”
The paper names the OMOP framework, a registered community standard for observational data, applied to the data.
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
No identifier for any external resource (database, cohort, code) is provided; external resources are mentioned only by name or URL.
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
“This is an open access article distributed under the terms of the Creative Commons Attribution License”
The Creative Commons Attribution License (CC BY) is an open standard license explicitly attached to the article, which includes the supplementary data. [majority verdict 'yes' (3/5 passes agreed)]
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
“The NIH’s AoU controlled tier dataset version 8 was used for all analyses performed.”
While a version token is given for the third-party data, no version is provided for the study's own aggregate data or code.
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
“We have made all codes that we have used within study available within the supplementary data file”
The code is located in the article's supplementary material, which is not a machine-resolvable locator like a repository URL or DOI. [majority verdict 'partial' (4/5 passes agreed)]
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“The author(s) received no specific funding for this work.”
No funder or award number is named.
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“All analyses were performed within the AoU’s Researcher Workbench with the SAS Studio application (Statistical Analysis Software, SAS Institute, Cary, North Carolina).”
The paper names the specific software (SAS Studio) used to produce the data, satisfying the requirement for a named tool.
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
“Table 1. List of medications, demographic factors and comorbid conditions.”
Variable definitions are provided within the article itself in a table, not as a separate documentation object shipped with the data. [majority verdict 'partial' (4/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.165
From this paper's citation signal
Citation Network Contribution
0
From 0 citing papers with measurable signal
This paper's DataRank is currently driven only by its base citation score. None of the citing papers had measurable citation signal.
Learn more about DataRank methodology →FWCI
2.18
Citation Percentile
0.9%
Citation Trend
Fields of Study
MeSH Terms
Keywords