Mapping the mortality-to-incidence ratios of Alzheimer’s Disease and Related Dementias (ADRDs): Evidence from the South Carolina Alzheimer’s disease registry is a dataset published in PLoS ONE (2025). On theSindex it has a DataRank of 0, placing it in the top 100% of the data-sharing corpus. Its calibrated FAIR score is 33/100.
Ranks in the top 100% for downstream scientific impact
Linked data & code
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
“https://redcap.research.sc.edu/surveys/?s=AKXHXT8993L3KP9A”
The only locator for the data is a web URL, which is not a persistent identifier scheme (DOI, Handle, ARK, or repository accession). [majority verdict 'partial' (4/5 passes agreed)]
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
“Office for the Study of Aging, University of South Carolina”
The holder is the Office for the Study of Aging, a university office, not a curated repository listed in re3data or FAIRsharing.
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
“https://redcap.research.sc.edu/surveys/?s=AKXHXT8993L3KP9A”
The dataset's identifier (a URL) appears only in the body text of the data availability statement, not as a reference-list entry. [majority verdict 'partial' (4/5 passes agreed)]
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“Data cannot be shared publicly because of registry policy restrictions. The data underlying the results presented in the study are available from the Office for the Study of Aging, University of South Carolina ( https://redcap.research.sc.edu/surveys/?s=AKXHXT8993L3KP9A) .”
The statement points to a URL (a request form) rather than a repository record with an accession or DOI, falling under Colavizza category 1 (data available on request). [majority verdict 'partial' (4/5 passes agreed)]
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
“This study utilized data from the most recent five-year period available in the registry, 2017–2021 (N = 62,590).”
The dataset's extent is described in a single prose sentence; no section, table, or enumerated list itemises files or variables. [majority verdict 'partial' (2/5 passes agreed)]
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“Data cannot be shared publicly because of registry policy restrictions. The data underlying the results presented in the study are available from the Office for the Study of Aging, University of South Carolina ( https://redcap.research.sc.edu/surveys/?s=AKXHXT8993L3KP9A) .”
The text states a precondition (registry policy restrictions) and gives a defined followable process (a form at the URL) for access, not unconditional availability. [majority verdict 'partial' (3/5 passes agreed)]
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“Data cannot be shared publicly because of registry policy restrictions. The data underlying the results presented in the study are available from the Office for the Study of Aging, University of South Carolina ( https://redcap.research.sc.edu/surveys/?s=AKXHXT8993L3KP9A) .”
No explicit access-level label is used; the text describes an action (available from the Office via a link) from which the level must be inferred. [majority verdict 'partial' (2/5 passes agreed)]
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“Office for the Study of Aging, University of South Carolina”
The Office for the Study of Aging is an institutional gatekeeper offering a followable process (the URL form) for access to sensitive human-subject data.
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
No sentence states when the data are available or how long they persist; the data availability statement provides no temporal commitment.
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
No file format for the released data is named anywhere in the paper.
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
“International Classification of Diseases Codes (ICD-9 and ICD-10)”
ICD-9 and ICD-10 are a community-standard vocabulary (a data standard) registered in FAIRsharing, used for case definition.
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
“Source: US Census Bureau TIGER/Line Files publicly available at https://www.census.gov/geographies/mapping-files/time-series/geo/tiger-line-file.html”
A repository URL (TIGER/Line shapefiles) is provided for an external resource. [majority verdict 'yes' (3/5 passes agreed)]
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
No reuse licence or terms-of-use document is named for the data; the CC-BY licence applies only to the article.
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
“Data for this research was accessed on July 15th, 2024.”
No version token is given, but an access date is provided, which pins the snapshot of the data used.
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
No code availability statement or locator for the study's own code appears anywhere in the text.
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“R13AG074603 – PIs: DBF & SEL; K07AG088128 – PI: DBF”— not found in the paper; verdict downgraded
Award/grant numbers are provided for the funding, attached to the named funder (NIH). [downgraded to 'partial' — no verifiable quote from the paper]
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“all analyses were conducted using SAS version 9.4 (SAS Institute, Cary, NC)”
The paper names specific software (SAS version 9.4) used for data analysis, satisfying the requirement for a named tool. [majority verdict 'yes' (4/5 passes agreed)]
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
“S1 File Contains the supporting tables (S1 – S4 Tables).”
Variable definitions and data summaries are provided inside the article as supplementary tables, not as a separate documentation object shipped with the data. [majority verdict 'partial' (3/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
National Institute on Aging
Grant: R13AG074603
National Institute on Aging
Grant: K07AG088128
FWCI
0.00
Citation Percentile
0.6%
Fields of Study
MeSH Terms
Keywords
Sustainable Development Goals