The Geospatial Distribution of Myositis and Its Phenotypes in the United States and Associations With Roadways: Findings From a National Myositis Patient Registry is a dataset published in Frontiers in Medicine (2022). On theSindex it has a DataRank of 0.364, placing it in the top 49% of the data-sharing corpus. It has been cited 8 times, with 7 citing works in its 1-hop citation network. Its calibrated FAIR score is 4/100.
Ranks in the top 49% for downstream scientific impact
Linked data & code
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
The paper does not provide any persistent identifier or accession for the dataset.
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
No repository is named as the holder of the data; the data are held by the authors.
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
No identifier for the dataset appears anywhere in the paper.
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“The raw data supporting the conclusions of this article will be made available by the authors, without undue reservation.”
The statement points to the authors, not a repository, which is Colavizza category 1.
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
“We extracted data from a U.S. national myositis patient registry database, called 'MYOVISION' (17, 25) containing IIM patients who enrolled between December 2010 and July 2012 by completion of a patient questionnaire after signing informed consent. The present study cohort consisted of 1,247 adult and juvenile DM, PM, and IBM cases, diagnosed between 1985 and 2011, residing in one of the 48 contiguous U.S. states where road network locations were available.”— not found in the paper; verdict downgraded
The dataset is described in running prose, not in an itemised inventory. [downgraded to 'no' — no verifiable quote from the paper]
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“The raw data supporting the conclusions of this article will be made available by the authors, without undue reservation.”
The route is a discretionary request to a person, which is not a followable access route.
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
The paper does not label the access level of the data; the data availability statement only mentions availability from the authors. [majority verdict 'no' (3/5 passes agreed)]
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“The raw data supporting the conclusions of this article will be made available by the authors, without undue reservation.”
The only gatekeeper named is the authors, a natural person, not an institutional gatekeeper.
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
The paper states data will be made available by the authors but gives no timing or persistence commitment. [majority verdict 'no' (4/5 passes agreed)]
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
No file format for the released data is named in the paper.
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
No community standard for data or metadata (e.g., MIAME, BIDS) is named; only disease names are used.
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
No identifier for any external resource (e.g., accession, DOI) is given for resources other than the paper's own dataset.
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
The CC BY license applies to the article, not the data; no license for the data is stated.
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
No version token or specific date is given to identify a snapshot of the dataset.
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
No code locator is provided; the study used R packages but no custom code is made available.
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“This work was supported in part by the Intramural Research Program of the NIH, the National Institute of Environmental Health Sciences (ZIAES101074), the Myositis Association, and the Centers for Disease Control and Prevention (grant 1H75DP001743-01).”
Award numbers ZIAES101074 and 1H75DP001743-01 are given, attached to named funders.
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“We used ArcGIS (26) to geocode the latitude-longitude coordinates of the zip code centroid of each patient's residence at diagnosis”— not found in the paper; verdict downgraded
The paper names specific software tools (ArcGIS, R, spatstat) used to produce the data. [downgraded to 'partial' — no verifiable quote from the paper] [majority verdict 'partial' (3/5 passes agreed)]
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
“TABLE 1 | Demographic and clinical characteristics of the myositis study cohort (n = 1,247).”— not found in the paper; verdict downgraded
Variable definitions are provided in a table within the article, not in a separate documentation object shipped with the data. [downgraded to 'no' — no verifiable quote from the paper] [majority verdict 'no' (4/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.330
From this paper's citation signal
Citation Network Contribution
0.0345
From 3 citing papers with measurable signal
Ranked by each citer's contribution to N(p) — log1p(Cq) divided by its reference count — out of 7 citers.
NCCDPHP CDC HHS
Grant: H75 DP001743
NIAMS NIH HHS
Grant: P30 AR076316
National Institutes of Health
Grant: 5P30AR076316-02
Pediatric musculOskeletal & RheumaTology Innovation COre center (PORTICO)
National Institutes of Health
Grant: 1H75DP001743-01
CREATING A NATIONAL MYOSITIS PATIENT REGISTRY
National Institutes of Health
Grant: 1ZIAES101074-14
Environmental/genetic Risk Factors and Pathogenesis of Autoimmune Disease
FWCI
1.03
Citation Percentile
0.7%
Citation Trend
Fields of Study
Keywords
Sustainable Development Goals