Development of the sickle Pan-African research consortium registry in Tanzania: opportunity to harness data science for sickle cell disease is a dataset published in Frontiers in Hematology (2023). On theSindex it has a DataRank of 0.480, placing it in the top 39.7% of the data-sharing corpus. It has been cited 14 times, with 3 citing works in its 1-hop citation network. Its calibrated FAIR score is 4/100.
Ranks in the top 40% for downstream scientific impact
Linked data & code
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
No persistent identifier (DOI, Handle, repository accession) is given for this study's data.
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
No repository name is given; the data are held by the authors.
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
No identifier for the dataset appears in the reference list or body text.
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“The raw data supporting the conclusions of this article will be made available by the authors, without undue reservation.”
The statement points to the authors (category 1), not to a repository record.
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
“Case report forms (CRF) included data elements with socio-demographic details (name, marital status, gender, contact information), management details (hydroxyurea, penicillin prophylaxis, folic acid, anti-malarial and pneumococcal vaccine), diagnosis (HbSS, HbSC, HbB + Thalassemia), and clinical visits (pain episodes, admission, blood transfusion, hemoglobin level, use of health insurance) for the first and follow-ups.”
The dataset's content is described in running prose, not in an itemised inventory (section, table, or list). [majority verdict 'partial' (4/5 passes agreed)]
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“The raw data supporting the conclusions of this article will be made available by the authors, without undue reservation.”
The route is a discretionary request to the authors, not a followable process with no precondition.
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“The raw data supporting the conclusions of this article will be made available by the authors, without undue reservation.”
The paper does not use a standard access-level label (e.g., 'open access'), and the statement only describes availability via authors. [majority verdict 'no' (4/5 passes agreed)]
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“The raw data supporting the conclusions of this article will be made available by the authors, without undue reservation.”
The only gatekeeper named is the authors themselves, a natural person, not an institutional committee or repository.
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
No sentence states when the data become available or how long they persist.
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
No file format is named for the released data; the registry uses REDCap but that is not a data format.
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
“The data elements used by the registry in Tanzania, similar to other countries in SickleInAfrica, were derived from the SCD ontology (17,18) to support a uniform database for SCD in Africa.”— not found in the paper; verdict downgraded
The SCD ontology is a community-standard ontology (registered in FAIRsharing) applied to the data. [downgraded to 'partial' — no verifiable quote from the paper] [majority verdict 'partial' (3/5 passes agreed)]
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
No identifier (accession, DOI, RRID) is given for any external resource used by the study.
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
No reuse license is stated for the data; the article's CC-BY license applies to the paper, not the data.
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
No version token or date pins the snapshot of the data. [majority verdict 'no' (4/5 passes agreed)]
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
No code locator is given; the study used a third-party tool (SPSS) and does not address its own code.
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“This work was supported by the National Heart, Lung, And Blood Institute of the US National Institutes of Health under Award Number U24HL135881– Sickle Pan-African Research Consortium (SPARCO).”
A specific award number (U24HL135881) is provided for the funding.
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“Alkaline cellulose acetate electrophoresis or high-performance liquid chromatography (HPLC) were used as confirmatory tests for SCD.”— not found in the paper; verdict downgraded
The paper names specific instruments (HPLC, electrophoresis) used to produce the diagnostic data. [downgraded to 'partial' — no verifiable quote from the paper]
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
No documentation object (README, data dictionary, codebook) is named as accompanying the data, and no variable-definition table exists inside the article. [majority verdict 'no' (3/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.406
From this paper's citation signal
Citation Network Contribution
0.0739
From 3 citing papers with measurable signal
Ranked by each citer's contribution to N(p) — log1p(Cq) divided by its reference count — out of 3 citers.
National Heart and Lung Institute
Grant: U24HL135881
NHLBI NIH HHS
Grant: U01 HL156853
Wellcome Trust
Grant: unidentified
unidentified
National Institutes of Health
Grant: 5U01HL156853-02
Sickle Pan-African Research Consortium (SPARCO)- Tanzania
National Institutes of Health
Grant: 3U24HL135881-03S1
The Sickle Pan-African Research Consortium (SPARCO)
FWCI
2.32
Citation Percentile
0.9%
Citation Trend
Fields of Study
Keywords
Sustainable Development Goals