Sickle Cell Disease in Africa: SickleInAfrica Registry in Ghana, Nigeria and Tanzania is a dataset published in eJHaem (2025). On theSindex it has a DataRank of 0.425, placing it in the top 43.7% of the data-sharing corpus. It has been cited 10 times, with 8 citing works in its 1-hop citation network. Its calibrated FAIR score is 4/100.
Ranks in the top 44% for downstream scientific impact
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
No persistent identifier or repository accession is provided for the dataset.
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
No repository or host is named; data are held by the authors.
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
No identifier for the dataset appears anywhere in the paper.
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“The datasets generated during and/or analyzed during the current study are available from the corresponding author upon reasonable request.”
The statement points to a person, not a repository record (Colavizza category 1).
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
“After data from the three countries was cleaned, harmonized and filtered, only 14 out of 92 variables were available and complete across all facilities. These included six demographic variables (study identifier, country, facility, sex, age at enrolment into the registry, age at SCD diagnosis); five treatment/prophylaxis‐related variables (age of hydroxyurea (HU) therapy initiation, HU use, penicillin prophylaxis, malaria prophylaxis and folic acid use), and three hematology‐related variables (history of blood transfusion, SCD genotype, and blood group).”
The dataset content is described in running prose, not in an itemised inventory. [majority verdict 'partial' (3/5 passes agreed)]
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“The datasets generated during and/or analyzed during the current study are available from the corresponding author upon reasonable request.”
The only access route is a discretionary request to a person with no defined process.
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“The datasets generated during and/or analyzed during the current study are available from the corresponding author upon reasonable request.”
No access-level label is applied, but the text describes an access action (request from author) from which the level must be inferred. [majority verdict 'partial' (4/5 passes agreed)]
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“The datasets generated during and/or analyzed during the current study are available from the corresponding author upon reasonable request.”
The gatekeeper is a natural person (the corresponding author), not an institutional committee or repository.
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
No timing or persistence commitment is made for the data.
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
No file format is named for the released data.
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
No community data or metadata standard is named as applied to the data. [majority verdict 'no' (4/5 passes agreed)]
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
The paper does not provide identifiers (e.g., DOIs, accessions, RRIDs) for any external resources used (e.g., reference genome, software, databases). [majority verdict 'no' (3/5 passes agreed)]
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
No reuse licence is named for the data.
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
No version token or date is given for the dataset.
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
No code locator is provided.
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“This work was supported by the National Heart, Lung, And Blood Institute (NHLBI) of the US National Institutes of Health (NIH) under Award Number U24HL135600 for the Sickle in Africa Data Coordinating Centre (SADaCC) and U24HL135881 for the Sickle Pan‐African Research Consortium (SPARCo), and the National Institute of Mental Health (NIMH) DSI‐Africa program under Award Number NIMH U01MH127692.”
Award/grant numbers are provided.
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“All data cleaning, harmonization, and analysis were performed at SADaCC and SPARCo CCC using the R programming language (version 4.4.1).”
The specific software (R version 4.4.1) used for data processing is named.
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
“with 92 of these being collected across all facilities (see Table S1).”— not found in the paper; verdict downgraded
Variable definitions live inside the article's supplementary material. [downgraded to 'no' — no verifiable quote from the paper] [majority verdict 'no' (4/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.360
From this paper's citation signal
Citation Network Contribution
0.0655
From 1 citing papers with measurable signal
Ranked by each citer's contribution to N(p) — log1p(Cq) divided by its reference count — out of 8 citers.
NHLBI NIH HHS
Grant: U24 HL135881
NHLBI NIH HHS
Grant: U01 HL156853
FWCI
7.86
Citation Percentile
1.0%
Influential Citations
1
Citation Trend
Fields of Study
Keywords
Sustainable Development Goals