🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Victoria Nembaware

University of Cape Town

ORCID: 0000-0001-7966-4042

Also affiliated with The Coordinating Center

MedicineBiochemistry, Genetics and Molecular Biology

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 2%percentile
2.1Author DataRank

Indexed papers

5in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 5 indexed papers attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

The Sickle Cell Disease Ontology: recent development and expansion of the universal sickle cell knowledge representation

Database(2022)10.1093/database/baac014
Top 36%
0.540DataRank
Top 36%9 citations

Jade Hotchkiss, Victoria Nembaware, Ambroise Wonkam, Nicola Mulder, Gaston K. Mazandu

Papers

Driven by 25 papers — median percentile 56. Top paper: “The Sickle Cell Disease Ontology: recent development and expansion of the universal sickle cell knowledge representation”.

The Sickle Cell Disease Ontology: recent development and expansion of the universal sickle cell knowledge representation

Database(2022)10.1093/database/baac014
Top 36%
0.540DataRank
Top 36%9 citations

Jade Hotchkiss, Victoria Nembaware, Ambroise Wonkam, Nicola Mulder, Gaston K. Mazandu

Patient-centric research in the time of COVID-19: conducting ethical COVID-19 research in Africa

BMJ Global Health(2020)10.1136/bmjgh-2020-003035
N/A
0.515DataRank · unranked
30 citations

Nchangwi Syntia Munung, Alice Matimba, Nicki Tiffin, Victoria Nembaware

Guideline for feedback of individual genetic research findings for genomics research in Africa

BMJ Global Health(2022)10.1136/bmjgh-2021-007184
N/A
0.500DataRank · unranked
27 citations

Stuart A. Ali, Katherine Littler, Ebony Madden, Patricia A. Marshall, Sheryl McCurdy +7 more

Development of the sickle Pan-African research consortium registry in Tanzania: opportunity to harness data science for sickle cell disease

Frontiers in Hematology(2023)10.3389/frhem.2023.1040720
Top 40%
0.480DataRank
Top 40%14 citations

Raphael Zozimus Sangeda, Upendo Masamu, Eliah Kazumali, Agnes Jonathan, Michael Msangawale +18 more

Exome sequencing of families from Ghana reveals known and candidate hearing impairment genes

Communications Biology(2022)10.1038/s42003-022-03326-8
N/A
0.464DataRank · unranked
21 citations

Samuel Mawuli Adadey, Isabelle Schrauwen, Elvis Twumasi Aboagye, Edmond Wonkam‐Tingang, Kevin Esoh +17 more

Sickle Cell Disease in Africa: SickleInAfrica Registry in Ghana, Nigeria and Tanzania

eJHaem(2025)10.1002/jha2.70044
Top 44%
0.425DataRank
Top 44%10 citations

Wilson Mupfururirwa, Reuben Chianumba, Evans Xorse Amuzu, Daniel Kandonga, Victoria Nembaware +19 more

Establishing a database for sickle cell disease patient mapping and survival tracking: The sickle pan-african research consortium Nigeria example

Frontiers in Genetics(2022)10.3389/fgene.2022.1041462
Top 44%
0.423DataRank
Top 44%11 citations

Anazoeze Jude Madu, Reuben Chianumba, Hezekiah Isa, Isaac Olanrewaju, Samuel Osagie +10 more

Acceptability, barriers and facilitators of using dried blood spots-point-of-care testing for sickle cell disease in Africa: an implementation science protocol for a multinational qualitative study

BMJ Open(2024)10.1136/bmjopen-2024-089056
N/A
0.373DataRank · unranked
11 citations

Nchangwi Syntia Munung, Lulu Chirande, Catherine Chunda‐Liyoka, Sarah Kiguli, Fred Stephen Sarfo +18 more

Genomics and Health Data Governance in Africa: Democratize the Use of Big Data and Popularize Public Engagement

The Hastings Center Report(2024)10.1002/hast.4933
N/A
0.360DataRank · unranked
10 citations

Charmaine Royal, Carmen De Kock, Gordon A. Awandare, Victoria Nembaware, Séraphin Nguefack +3 more

Strengthening global partnerships for sustainable sickle cell disease care: insights from SickleInAfrica at the 77th United Nations General Assembly and the US-Africa Leaders’ Summit

BMJ Global Health(2025)10.1136/bmjgh-2024-017154
N/A
0.292DataRank · unranked
6 citations

Siana Nkya, Daima Bukini, Nesia Mahenge, Upendo Masamu, Janeth Manongi +27 more

Clinical characteristics and risk factors of relative systemic hypertension and hypertension among sickle cell patients in Cameroon

Frontiers in Medicine(2022)10.3389/fmed.2022.924722
N/A
0.269DataRank · unranked
5 citations

Valentina Josiane Ngo Bitoungui, Khuthala Mnika, Gaston K. Mazandu, Victoria Nembaware, André Pascal Kengne +2 more

The Ugandan sickle Pan-African research consortium registry: design, development, and lessons

BMC Medical Informatics and Decision Making(2024)10.1186/s12911-024-02618-9
Top 61%
0.241DataRank
Top 61%4 citations

Henry Mutegeki, Daudi Jjingo, Deogratias Munube, Ruth Namazzi, Robert Opoka +13 more

Consent Codes: Maintaining Consent in an Ever-expanding Open Science Ecosystem

Neuroinformatics(2022)10.1007/s12021-022-09577-4
N/A
0.208DataRank · unranked
3 citations

Kathleen Connor, Victoria Nembaware, Nchangwi Syntia Munung, Kathy Reinold, Giselle Kerry +11 more

A potential roadmap to overcome the current eastern DRC Ebola virus disease outbreak: From a computational perspective

Scientific African(2020)10.1016/j.sciaf.2020.e00282
N/A
0DataRank · unranked
4 citations

Victoria Nembaware, Nicholas Ekow Thomford, Christian Domilongo Bope, Ousmane Ly, Emile R. Chimusa +2 more

IHP-PING—generating integrated human protein–protein interaction networks on-the-fly

Briefings in Bioinformatics(2020)10.1093/bib/bbaa277
N/A
0DataRank · unranked
10 citations

Christopher Hooper, Kenneth Opap, Funmilayo Makinde, Victoria Nembaware, Nicholas Ekow Thomford +4 more

Developing Clinical Phenotype Data Collection Standards for Research in Africa

Global Health(2023)10.1155/2023/6693323
N/A
0DataRank · unranked
6 citations

Katherine Johnston, Alia Benkahla, Melek Chaouch, Judit Kumuthini, Fouzia Radouani +16 more

Advancing intercontinental collaboration in human genetics: success story of the African and European Young Investigator Forum

European Journal of Human Genetics(2023)10.1038/s41431-023-01487-6
N/A
0DataRank · unranked
0 citations

Khuthala Mnika, Samuel Mawuli Adadey, Rita Barbosa‐Matos, Elena Avram, Patracia Nevondwe +14 more

The Implementation of Laboratory Information Management System in Multi-Site Genetics Study in Africa: The Challenges and Up-Scaling Opportunities

Journal of Molecular Pathology(2022)10.3390/jmp3040022
N/A
0DataRank · unranked
11 citations

Chandre Oosterwyk, Dominique Anderson, Samuel Mawuli Adadey, Khuthala Mnika, Noluthando Manyisa +13 more

A View on Genomic Medicine Activities in Africa: Implications for Policy

Frontiers in Genetics(2022)10.3389/fgene.2022.769919
N/A
0DataRank · unranked
32 citations

Maritha J. Kotze, Archana Bhaw‐Luximon, Faisal M. Fadlelmola, Yasmina Jaufeerally Fakim, Yosr Hamdi +7 more

Establishing a Sickle Cell Disease Registry in Africa: Experience From the Sickle Pan-African Research Consortium, Kumasi-Ghana

Frontiers in Genetics(2022)10.3389/fgene.2022.802355
N/A
0DataRank · unranked
33 citations

Evans Xorse Amuzu, Isaac Nyanor, Emmanuel Asafo‐Adjei, Abdul Razak Mohammed, Suraj Abubakar Yawnumah +13 more

Human genetics and genomics as a unifying factor for harmony and progress in Africa: a report from the 12th African Society of Human Genetics meeting in Bamako, Mali

Pan African Medical Journal(2024)10.11604/pamj.2024.49.19.41189
N/A
0DataRank · unranked
1 citations

Abdoulaye Yalcouyé, Djénéba Dabitao, Oumar Samassékou, Victoria Nembaware, Fousseyni Kané +10 more

Mapping Epigenetic Gene Variant Dynamics: Comparative Analysis of Frequency, Functional Impact and Trait Associations in African and European Populations

medRxiv(2024)10.1101/2024.08.11.24311816
N/A
0DataRank · unranked
0 citations

Gaone Retshabile, Phelelani Thokozani Mpangase, Salia Bamba, Modibo K. Goita, Victoria Nembaware +11 more

Harnessing genomics and translational research to improve health in Africa: a report of the 13th African Society of Human Genetics meeting in Dar es Salaam, Tanzania

Pan African Medical Journal(2024)10.11604/pamj.2024.49.79.42550
N/A
0DataRank · unranked
0 citations

Siana Nkya, Mohamed Zahir Alimohamed, Kilaza Samson, Grantina Modern, Michèle Ramsay +5 more

An Integrated Platform Supporting Semantic Similarity Score Calculation and Reproducibility

Research Square(2021)10.21203/rs.3.rs-806346/v1
N/A
0DataRank · unranked
0 citations

Kenneth Opap, Funmilayo Makinde, Victoria Nembaware, Francis E. Agamah, Christian Domilongo Bope +4 more

Utilization of Pneumococcal Vaccine and Penicillin Prophylaxis in Sickle Cell Disease in Three African Countries: Assessment among Healthcare Providers in SickleInAfrica

Hemoglobin(2021)10.1080/03630269.2021.1954943
N/A
0DataRank · unranked
12 citations

Anazoeze Jude Madu, Raphael Zozimus Sangeda, Siana Nkya, Emmanuel Peprah, Vivian Paintsil +20 more