Answer ALS, a large-scale resource for sporadic and familial ALS combining clinical and multi-omics data from induced pluripotent cell lines is a dataset published in Nature Neuroscience (2022). On theSindex it has a DataRank of 3.1, placing it in the top 7.1% of the data-sharing corpus. It has been cited 159 times, with 100 citing works in its 1-hop citation network. Its calibrated FAIR score is 29/100.
Ranks in the top 7% for downstream scientific impact
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
“All data supporting the findings of the present study are available within the paper, its Supplementary information files and the AALS web portals listed in Supplementary Table 3 (or via data.answerals.org).”
The dataset is identified by a web URL (data.answerals.org), not a persistent identifier scheme. [majority verdict 'partial' (4/5 passes agreed)]
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
“The AALS data portal (http://data.answerals.org; Supplementary Table 3) was designed to provide information about the various types of biological and clinical data generated by the AALS partners and to allow easy visualization/access to the metadata and data, along with links to obtain biofluids and iPS cell lines.”— not found in the paper; verdict downgraded
The data are held in the AALS web portal, a named host but not a standard repository listed in re3data. [downgraded to 'no' — no verifiable quote from the paper] [majority verdict 'no' (3/5 passes agreed)]
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
“All data supporting the findings of the present study are available within the paper, its Supplementary information files and the AALS web portals listed in Supplementary Table 3 (or via data.answerals.org).”
The dataset identifier (portal URL) appears only in the body text, not in the reference list. [majority verdict 'partial' (3/5 passes agreed)]
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“All data supporting the findings of the present study are available within the paper, its Supplementary information files and the AALS web portals listed in Supplementary Table 3 (or via data.answerals.org).”
The statement points to the article and supplementary files as well as a web portal, not a specific repository record with an accession.
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
“The AALS data portal (http://data.answerals.org; Supplementary Table 3) provides all raw and processed data including longitudinal clinical data and biological data generated by the AALS program, along with visualization/access to the metadata, data and biosamples released.”
The dataset content is described in running prose, not in an itemised inventory (section, table, or list). [majority verdict 'partial' (3/5 passes agreed)]
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“Users interested in downloading datasets are required to submit an online form, acknowledge data use parameters and return a signed Data Use Agreement in compliance with the HIPAA.”
The access route requires a signed Data Use Agreement, a stated precondition.
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“Users interested in downloading datasets are required to submit an online form, acknowledge data use parameters and return a signed Data Use Agreement in compliance with the HIPAA.”
The paper describes an access action (submit form, sign DUA) but does not label the access level with a standard term. [majority verdict 'partial' (2/5 passes agreed)]
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
“Users interested in downloading datasets are required to submit an online form, acknowledge data use parameters and return a signed Data Use Agreement in compliance with the HIPAA.”
The paper names a Data Use Agreement as the gatekeeper, which is an institutional/controlled-access process.
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
No sentence states how long the data will remain available or gives a persistence commitment.
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
“CASE-NEUAA599TMX-5310-T_P10_1.fastq.gz”
The paper names FASTQ and VCF formats, both open, community-standard formats. [majority verdict 'yes' (4/5 passes agreed)]
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
No named data or metadata community standard (e.g., MIAME, FAIRsharing-registered) is applied to the data. [majority verdict 'no' (3/5 passes agreed)]
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
“The AALS program is registered at clinicaltrials.gov (NCT02574390).”
The paper gives the clinical trial identifier NCT02574390 for the trial that generated the data. [majority verdict 'yes' (3/5 passes agreed)]
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
No reuse license is named for the data; only the article's license is mentioned. [majority verdict 'no' (4/5 passes agreed)]
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
No version token or date is given to identify the snapshot of the data. [majority verdict 'no' (4/5 passes agreed)]
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
No code availability statement or locator is provided for the study's own code.
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“Program support was provided by the following: Robert Packard Center for ALS Research at Johns Hopkins, Travelers Insurance, ALS Finding a Cure Foundation, Stay Strong Vs. ALS, Answer ALS Foundation, Microsoft, Caterpillar Foundation, American Airlines, Team Gleason, National Institutes of Health, Fishman Family Foundation, Aviators Against ALS, AbbVie Foundation, Chan Zuckerberg Initiative, ALS Association, National Football League, F. Prime, M. Armstrong, Bruce Edwards Foundation, The Judith and Jean Pape Adams Charitable Foundation, Muscular Dystrophy Association, Les Turner ALS Foundation, PGA Tour and Bari Lipp Foundation.”— not found in the paper; verdict downgraded
Funder names are given but no grant or award numbers are provided. [downgraded to 'no' — no verifiable quote from the paper] [majority verdict 'no' (4/5 passes agreed)]
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“Each complementary DNA library was then subjected to 100 Illumina (Novaseq 6000) PE sequencing cycles”
The paper names specific instruments and kits (e.g., Illumina NovaSeq 6000, QIAGEN RNeasy mini-kit).
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
“The data portal provides users with information about the AALS program, the data, relevant terminology and data release notes.”
Documentation is described as inside the portal (online), not as a file shipped with the data. [majority verdict 'partial' (3/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.761
From this paper's citation signal
Citation Network Contribution
2.4
From 82 citing papers with measurable signal
Ranked by each citer's contribution to N(p) — log1p(Cq) divided by its reference count — out of 100 citers.