The Sickle Cell Disease Ontology: recent development and expansion of the universal sickle cell knowledge representation is a dataset published in Database (2022). On theSindex it has a DataRank of 0.540, placing it in the top 36% of the data-sharing corpus. It has been cited 9 times, with 6 citing works in its 1-hop citation network. Its calibrated FAIR score is 73/100.
Ranks in the top 36% for downstream scientific impact
DataRank reads this dataset's downstream impact straight off the citation graph — no black box, no proprietary weighting. How is this computed?
FAIR checklist signals are shown for context only and do not affect DataRank scoring.
Full FAIR picture · advisory
The headline score is computed from the scored criteria — the fact-shaped checks (a repository, an accession, a licence) that two independent models agree on. The advisory criteria below are real FAIR guidance but rest on judgment calls that models read differently, so they inform without moving the number.
“The data underlying this article are available in [Ontology IRI] at [ http://purl.obolibrary.org/obo/scdo.owl ]”
The identifier is a URL (http://purl.obolibrary.org/obo/scdo.owl) that is not in the accepted persistent-identifier scheme list (DOI, Handle, ARK, URN, or repository accession).
RDA-F1-01D — FAIR Data Maturity Model: 'Data is identified by a persistent identifier' (priorit · RDA-F1-02D — FAIR Data Maturity Model: 'Data is identified by a globally unique identifier' · FsF-F1-02D — F-UJI/FAIRsFAIR: 'Data is assigned a persistent identifier'
“The SCDO is freely available under the GNU General Public License (GPL: https://www.gnu.org/licenses/gpl-3.0.en.html ) and accessible from the SCDO website at https://scdontology.h3abionet.org/ .”
The holder named is the SCDO website, a non-repository host (project website) rather than a curated repository.
RDA-F4-01M — FAIR Data Maturity Model: metadata is offered so it can be harvested and indexed ( · NIH DMS Policy Element 4 (NOT-OD-21-014) — name the repository where data will be archived · NSTC Desirable Characteristics of Data Repositories (2022) — 'Long-Term Sustainability', 'Reten
“The data underlying this article are available in [Ontology IRI] at [ http://purl.obolibrary.org/obo/scdo.owl ] and in [SCDO website] at [ https://scdontology.h3abionet.org/ ].”
The dataset identifier appears only in the body text (data availability statement), not as a reference-list entry.
FORCE11 Joint Declaration of Data Citation Principles (2014) — data should be cited as a first- · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes · FsF-F3-01M — F-UJI: 'Metadata includes the identifier of the data it describes'
Advisory · not in the published score
“The data underlying this article are available in [Ontology IRI] at [ http://purl.obolibrary.org/obo/scdo.owl ] and in [SCDO website] at [ https://scdontology.h3abionet.org/ ].”
The statement points to a URL (the OBO PURL and the SCDO website) rather than to a repository record with an accession or DOI. [majority verdict 'partial' (2/5 passes agreed)]
Colavizza, Hrynaszkiewicz, Staden, Whitaker & McGillivray (2020), 'The citation advantage of li · Springer Nature research data policy — Data Availability Statements: standard statement templat · RDA-F3-01M — metadata clearly and explicitly includes the identifier of the data it describes
“The SCDO currently contains 2072 concepts, of which 1950 are non-deprecated, covering various aspects of SCD, including phenotypes, diagnostics, therapeutics, disease modifiers, modes of inheritance, SCD-related complications, genetic phenomena and gene products, as well as other environmental and clinical research aspects (personal attributes, quality of life and quality of care for patients and research).”
The dataset content is described in running prose rather than in an itemised inventory (section, table, or list). [majority verdict 'partial' (4/5 passes agreed)]
RDA-F2-01M — 'Rich metadata is provided to allow discovery' (priority Essential) · FsF-F2-01M — F-UJI: 'Metadata includes descriptive core elements to support data findability' · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data'
“The SCDO is freely available under the GNU General Public License (GPL: https://www.gnu.org/licenses/gpl-3.0.en.html ) and accessible from the SCDO website at https://scdontology.h3abionet.org/ .”
The data are stated to be 'freely available' with no precondition such as embargo, registration, or application. [majority verdict 'yes' (3/5 passes agreed)]
RDA-A1.1-01D — 'Data is accessible through a free access protocol' · FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · NSTC Desirable Characteristics of Data Repositories (2022) — 'Free and Easy Access'
Advisory · not in the published score
“The SCDO is freely available under the GNU General Public License (GPL: https://www.gnu.org/licenses/gpl-3.0.en.html ) and accessible from the SCDO website at https://scdontology.h3abionet.org/ .”
The phrase 'freely available' is a natural-language synonym for 'open access', which is a recognized access-level label. [majority verdict 'yes' (4/5 passes agreed)]
FsF-A1-01M — F-UJI: 'Metadata contains access level and access conditions of the data' · RDA-A1-01M — metadata contains information to enable the user to get access to the data · COAR Controlled Vocabularies — Access Rights v1.0 (open / embargoed / restricted / metadata-onl
The data are not sensitive or human-subject data; therefore no gatekeeper is named.
NIH Genomic Data Sharing Policy (NOT-OD-14-124) — controlled-access via a Data Access Committee · RDA-A1.2-01D — 'Data is accessible through an access protocol that supports authentication and · NIH DMS Policy Element 5 (NOT-OD-21-014) — Access, Distribution, or Reuse Considerations (conse
The paper does not state how long the data will remain available or make any persistence commitment.
NIH DMS Plan Element 4 (NOT-OD-21-014) — Data Preservation, Access, and Associated Timelines · NSTC Desirable Characteristics (2022), Organizational Infrastructure: 'Retention Policy' · RDA-A2-01M — 'Metadata is guaranteed to remain available after data is no longer available'
“ROBOT (14), an open source tool for automating ontology development workflows and tasks, is used to compile the complete ontology release files, including Web Ontology Language (OWL) and OBO formats.”— not found in the paper; verdict downgraded
OWL and OBO are both open, community-standard formats for ontologies. [downgraded to 'partial' — no verifiable quote from the paper] [majority verdict 'partial' (3/5 passes agreed)]
FsF-R1.3-02D — F-UJI: 'Data is available in a file format recommended by the target research co · RDA-R1.3-02D — data is expressed in a machine-understandable community standard · RDA-I1-01D — data uses a knowledge representation expressed in a standardised format
Advisory · not in the published score
“Compliance with OBO Foundry guiding principles: IRIs were updated to the standard OBO prefix”
The OBO Foundry is a community standard for biomedical ontologies, and the paper explicitly states compliance with its guiding principles. [majority verdict 'yes' (4/5 passes agreed)]
RDA-R1.3-01M — 'Metadata complies with a community standard' (priority Essential) · RDA-R1.3-01D — 'Data complies with a community standard' · RDA-I2-01M — '(Meta)data use vocabularies that follow FAIR principles'
“Impaired Renal Concentrating Ability' is reused from the HPO under the identifier HPO:0004727.”
The paper provides a qualified reference (HPO identifier) to an external resource (HPO) that the data depends on. [majority verdict 'yes' (4/5 passes agreed)]
RDA-I3-01M — '(meta)data include references to other (meta)data' · RDA-I3-03M — 'metadata includes qualified references to other metadata' · FsF-I3-01M — F-UJI: 'Metadata includes links between the data and its related entities'
“The SCDO is freely available under the GNU General Public License (GPL: https://www.gnu.org/licenses/gpl-3.0.en.html )”
The GNU General Public License (GPL) is an open standard license listed in SPDX. [majority verdict 'yes' (4/5 passes agreed)]
RDA-R1.1-01M — 'Metadata includes information about the licence under which the data can be reu · RDA-R1.1-02M — 'Metadata refers to a standard reuse licence' · RDA-R1.1-03M — 'Metadata refers to a machine-understandable reuse licence'
“the new SCDO version released on 15 April 2021”
A date (15 April 2021) is provided to pin the snapshot, but no version token (e.g., v1.2) is given.
DataCite Metadata Schema 4.6 — the 'Version' property · RDA-R1.2-01M — provenance information (which version was used is provenance) · NSTC Desirable Characteristics of Data Repositories (2022) — 'Provenance', 'Retention Policy'
“Ontology Development Kit: https://github.com/scdodev/scdo-ontology”
The paper provides a machine-resolvable URL to a code repository (GitHub) for the study's own code.
NIH DMS Policy Element 2 (NOT-OD-21-014) — 'Related Tools, Software and/or Code' · FAIR4RS Principles v1.0 (Chue Hong et al., 2022; RDA/FORCE11/ReSA) — FAIR Principles for Resear · FORCE11 Software Citation Principles (Smith, Katz & Niemeyer, 2016, PeerJ CS 2:e86)
“National Heart, Lung, and Blood Institute of the National Institutes of Health (NIH) (U24HL135600 to the Sickle Africa Data Coordinating Center (SADaCC) at the University of Cape Town, Health Sciences in the Department of Pathology, Division of Human Genetics); the National Institutes of Health Common Fund grant (U24HG006941) (H3ABioNet).”
Award numbers (U24HL135600, U24HG006941) are provided for the named funders.
DataCite Metadata Schema 4.6 — 'FundingReference' property (funderName, funderIdentifier, award · Crossref Funder Registry — canonical funder identifiers for funding metadata · RDA-F2-01M — rich metadata provided to allow discovery (funding is part of the descriptive reco
Advisory · not in the published score
“ROBOT (14), an open source tool for automating ontology development workflows and tasks, is used to compile the complete ontology release files, including Web Ontology Language (OWL) and OBO formats.”— not found in the paper; verdict downgraded
The paper names specific tools (ROBOT, WebProtege) used to produce the data. [downgraded to 'partial' — no verifiable quote from the paper] [majority verdict 'partial' (4/5 passes agreed)]
RDA-R1.2-01M — 'Metadata includes provenance information according to community- specific standa · FsF-R1.2-01M — F-UJI: 'Metadata includes provenance information about data creation or generati · W3C PROV-O (W3C Recommendation, 2013) — the entity/activity/agent model of provenance
The paper does not name a documentation object (README, codebook, schema) that travels with the data, nor does it provide a variable-definition table inside the article. [majority verdict 'no' (3/5 passes agreed)]
RDA-R1-01M — '(Meta)data are richly described with a plurality of accurate and relevant attribu · FsF-R1-01MD — F-UJI: 'Metadata specifies the content of the data' · NIH DMS Policy Element 3 (NOT-OD-21-014) — Standards (documentation and metadata to accompany t
Calibrated FAIR score — a parallel quality metric, independent of the DataRank citation score. See the full evaluation →
Base Score Contribution
0.345
From this paper's citation signal
Citation Network Contribution
0.194
From 5 citing papers with measurable signal
Ranked by each citer's contribution to N(p) — log1p(Cq) divided by its reference count — out of 6 citers.
National Institutes of Health
Grant: U24HG006941
National Institutes of Health
Grant: U24HL135600
National Institutes of Health
Grant: 5U24HG006941-07
H3ABioNet: informatics solutions for H3Africa
National Institutes of Health
Grant: 5U24HL135600-07
Sickle Africa Data Coordinating Center
FWCI
0.63
Citation Percentile
0.6%
Citation Trend
Fields of Study
MeSH Terms
Keywords
Sustainable Development Goals