🏆 Finalist — NIH Data Sharing Index (“S-Index”) Challenge

Mario Jonas

University of Cape Town

ORCID: 0009-0001-7679-5167

Also affiliated with The Coordinating Center

MedicineBiochemistry, Genetics and Molecular Biology

Pilot corpus only

This score is computed over theSindex pilot corpus and does not cover the full scientific literature. Scores are relative to papers we have ingested — papers, authors, and institutions outside the pilot are not represented. Methodology.

Top 3%percentile
1.6Author DataRank

Indexed papers

4in pilot corpus
datarank_citation_only_1hop_v6· scope data_onlyMethodology
Why this DataRank?

An author's DataRank is the sum of the DataRanks of all 4 indexed papers attributed to them. A prolific author with many moderate-impact papers can outrank one with a single high-impact paper.

Author scores recompute whenever paper DataRanks are refreshed, so this number lags the underlying paper scores by at most one batch run.

Read the full methodology →

Top data-sharing exemplar

The highest-impact dataset this researcher has shared, ranked by DataRank — the single contribution doing the most to lift their data-sharing standing.

Development of the sickle Pan-African research consortium registry in Tanzania: opportunity to harness data science for sickle cell disease

Frontiers in Hematology(2023)10.3389/frhem.2023.1040720
Top 40%
0.480DataRank
Top 40%14 citations

Raphael Zozimus Sangeda, Upendo Masamu, Eliah Kazumali, Agnes Jonathan, Michael Msangawale +18 more

Papers

Driven by 12 papers — median percentile 56. Top paper: “Development of the sickle Pan-African research consortium registry in Tanzania: opportunity to harness data science for sickle cell disease”.

Development of the sickle Pan-African research consortium registry in Tanzania: opportunity to harness data science for sickle cell disease

Frontiers in Hematology(2023)10.3389/frhem.2023.1040720
Top 40%
0.480DataRank
Top 40%14 citations

Raphael Zozimus Sangeda, Upendo Masamu, Eliah Kazumali, Agnes Jonathan, Michael Msangawale +18 more

Sickle Cell Disease in Africa: SickleInAfrica Registry in Ghana, Nigeria and Tanzania

eJHaem(2025)10.1002/jha2.70044
Top 44%
0.425DataRank
Top 44%10 citations

Wilson Mupfururirwa, Reuben Chianumba, Evans Xorse Amuzu, Daniel Kandonga, Victoria Nembaware +19 more

Establishing a database for sickle cell disease patient mapping and survival tracking: The sickle pan-african research consortium Nigeria example

Frontiers in Genetics(2022)10.3389/fgene.2022.1041462
Top 44%
0.423DataRank
Top 44%11 citations

Anazoeze Jude Madu, Reuben Chianumba, Hezekiah Isa, Isaac Olanrewaju, Samuel Osagie +10 more

Strengthening global partnerships for sustainable sickle cell disease care: insights from SickleInAfrica at the 77th United Nations General Assembly and the US-Africa Leaders’ Summit

BMJ Global Health(2025)10.1136/bmjgh-2024-017154
N/A
0.292DataRank · unranked
6 citations

Siana Nkya, Daima Bukini, Nesia Mahenge, Upendo Masamu, Janeth Manongi +27 more

The Ugandan sickle Pan-African research consortium registry: design, development, and lessons

BMC Medical Informatics and Decision Making(2024)10.1186/s12911-024-02618-9
Top 61%
0.241DataRank
Top 61%4 citations

Henry Mutegeki, Daudi Jjingo, Deogratias Munube, Ruth Namazzi, Robert Opoka +13 more

Whole-exome sequencing reveals known and candidate genes for hearing impairment in Mali

Human Genetics and Genomics Advances(2024)10.1016/j.xhgg.2024.100391
N/A
0.104DataRank · unranked
1 citations

Isabelle Schrauwen, Oumou Traoré, Salia Bamba, Elvis Twumasi Aboagye, Anushree Acharya +14 more

Exome sequencing of families from Ghana reveals known and candidate hearing impairment genes

Communications Biology(2022)10.1038/s42003-022-03326-8
N/A
0DataRank · unranked
21 citations

Samuel Mawuli Adadey, Isabelle Schrauwen, Elvis Twumasi Aboagye, Edmond Wonkam‐Tingang, Kevin Esoh +17 more

Acceptability, barriers and facilitators of using dried blood spots-point-of-care testing for sickle cell disease in Africa: an implementation science protocol for a multinational qualitative study

BMJ Open(2024)10.1136/bmjopen-2024-089056
N/A
0DataRank · unranked
11 citations

Nchangwi Syntia Munung, Lulu Chirande, Catherine Chunda‐Liyoka, Sarah Kiguli, Fred Stephen Sarfo +18 more

Establishing a Sickle Cell Disease Registry in Africa: Experience From the Sickle Pan-African Research Consortium, Kumasi-Ghana

Frontiers in Genetics(2022)10.3389/fgene.2022.802355
N/A
0DataRank · unranked
33 citations

Evans Xorse Amuzu, Isaac Nyanor, Emmanuel Asafo‐Adjei, Abdul Razak Mohammed, Suraj Abubakar Yawnumah +13 more

The Implementation of Laboratory Information Management System in Multi-Site Genetics Study in Africa: The Challenges and Up-Scaling Opportunities

Journal of Molecular Pathology(2022)10.3390/jmp3040022
N/A
0DataRank · unranked
11 citations

Chandre Oosterwyk, Dominique Anderson, Samuel Mawuli Adadey, Khuthala Mnika, Noluthando Manyisa +13 more

Utilization of Pneumococcal Vaccine and Penicillin Prophylaxis in Sickle Cell Disease in Three African Countries: Assessment among Healthcare Providers in SickleInAfrica

Hemoglobin(2021)10.1080/03630269.2021.1954943
N/A
0DataRank · unranked
12 citations

Anazoeze Jude Madu, Raphael Zozimus Sangeda, Siana Nkya, Emmanuel Peprah, Vivian Paintsil +20 more

Age Estimate of GJB2-p.(Arg143Trp) Founder Variant in Hearing Impairment in Ghana, Suggests Multiple Independent Origins across Populations

Biology(2022)10.3390/biology11030476
N/A
0DataRank · unranked
11 citations

Samuel Mawuli Adadey, Kevin Esoh, Mario Jonas, Carmen De Kock, Lucas Amenga–Etego +3 more